In the News

When Research Includes Everyone

By Jennifer Guan and Dan O’Donnell Jennifer and Dan discuss their project from last year. They asked students at the BU Medical Campus a powerful question, “What does inclusion mean to you?”. They also led a focus group at Boston Children’s Hospital to ask how healthcare teams work together to care for people with intellectual […]

Redefining Inclusion: Co-Researchers with Down Syndrome Set their Own Research Agenda

Featuring Eric Rubenstein and the Co-Research Team Assistant professor Eric Rubenstein’s collaboration with a team of individuals with Down syndrome led to the creation of the nation’s first public health co-research program led entirely by people with Down syndrome, shifting the research focus from medical data to community-driven priorities like mental health and stress management.

Medicaid Is a Vital Lifeline for Adults with Down Syndrome

Featuring Eric Rubenstein A new study led by Boston University researchers found that nearly all U.S. adults with Down syndrome rely on Medicaid and use significantly more healthcare services and resources than those without developmental disabilities, highlighting both the program’s essential role in their wellbeing and persistent racial disparities in access to equitable care.