Welcome

The Rubenstein Lab

The Rubenstein Lab is focused on improving the lives of individuals with intellectual and developmental disabilities, including Down syndrome and autism.  Epidemiology, the science of public health, is the crucial tool that can help reach the ultimate goal of improving health and well-being for the population with intellectual and developmental disabilities. That work cannot be done without input and collaboration from the intellectual and developmental disability community, which motivates and drives our work to be impactful and translatable. Our current projects focus on health in Down syndrome, aging with intellectual and developmental disability, and pregnancy among people with intellectual and developmental disability. We use big data, epidemiologic methods paired with community-based inclusive methodologies.  

Diversity, Inclusion, and Equity

Now more than ever we need to prioritize justice and equity. The Rubenstein Lab is committed to fostering a safe and inclusive environment. Creating anti-racist, anti-sexist, and pro-inclusion settings is a continual process and we strive to learn and grow. As the Lab grows, we will recruit, retain, and develop a diverse group of individuals to ensure a vibrant community.

Contact information: 
Email: erubens@bu.edu | rubensteinlab.busph@gmail.com
715 Albany St T318E, Boston, Massachusetts 02121


What we’ve been up to:

Recent publications: 

Evaluation of a Co-Research Program: optimizing engagement in research. British Journal of Learning Disabilities. Scott, A., Rowland, S., Mehdi, A., Rubenstein, E., https://onlinelibrary.wiley.com/doi/10.1111/bld.70012 

Novel predictors of Alzheimer dementia in Down syndrome identified using machine learning. Journal of Alzheimer’s Disease. Rubenstein, E., Tewolde, S., Michals, A., Fortea, J., Jimenez, M.P., Skotko, B.G., Tripodis, Y., Weuve, J., Rossellini, A.J. https://journals.sagepub.com/doi/abs/10.1177/13872877251385423

The Occurrence of Obstructive Sleep Apnea and its Association with Alzheimer Dementia in Medicaid-enrolled Adults with Down Syndrome, 2011-2019. Higgins, A., Tewolde, S., Paige, S., Rubenstein, E. 2025. American Journal of Medical Genetics A. https://onlinelibrary.wiley.com/doi/10.1002/ajmg.a.64241