Libre Blog
Tracking the Road Toward Recovery
How did we develop the LIBRE Profile? Now we have an infographic to illustrate the process! It is a two-page roadmap that shows the steps through which burn survivors, medical/support team members, and researchers collaborated to build the LIBRE Profile. For a high resolution version to read or print, you can download a PDF of […]
2017 BSONE Walk
We had a wonderful time walking with everyone at the Burn Survivors of New England (BSONE) Walk for Advocacy and Awareness. It was a beautiful Saturday morning by the water in Boston. It’s always great to see the smiles on everyone’s faces! We also enjoy seeing #justsmile on the t-shirts referring to this PSA.
Busy September at LIBRE!
We started September off with a few big changes and events. Melinda Rossi, LIBRE’s Research Assistant since the beginning of the project, has moved on to a new and exciting job in health policy. We appreciate how much Melinda has done and we will miss her enormously! Thankfully, before she left, Melinda was able to train […]
LIBRE Facebook Page Launched
We’re pleased to announce that LIBRE has officially joined Facebook! We plan to use this page to: keep our LIBRE community up to date with what’s going on at LIBRE; release findings from the LIBRE study; post interesting information on the social recovery of burn survivors; and stay in touch with past participants and others […]
200 Surveys Completed! Only 400 to go…
Less than two months since the second phase of the LIBRE project began and we have officially completed 200 surveys with burn survivors! With a goal of 600 completed surveys, we’re certainly not slowing down in LIBRE headquarters but we wanted to take a moment to celebrate this milestone. From our kickoff at the World […]
LIBRE in Berlin: ISOQOL Conference October 2014
While this post is a little belated, we would be remiss to not mention LIBRE’s recent trip to Berlin! Back in October 2014, Molly Marino, LIBRE staff member and current PhD candidate, flew across the Atlantic to represent LIBRE at the International Society for Quality of Life Research (ISOQOL) Annual Conference. The theme of the […]
World Burn Congress Success!
We just got back in the office from a few days in sunny Anaheim, CA attending the Phoenix World Burn Congress (WBC). We’re still exhausted from an exhilarating few days meeting burn survivors, hearing amazing survivor stories, conducting surveys, and grabbing some California sun. This conference marked the official beginning of the second phase of […]
Drs. Kazis and Ryan Present on the Burn Outcomes Questionnaires (BOQ)
Drs. Lewis Kazis, Principal Investigator, and Colleen Ryan, co-investigator of the LIBRE project, presented at the Kaiser Permanente Population Health Strategy Webinar on August 28, 2014. Their presentation highlighted some of the excellent work they have done over the past decade to improve the care received by burn survivors. Drs. Kazis and Ryan spoke about […]
LIBRE at 9th Annual New England Walk for Burn Survivors
Saturday was a beautiful day in Boston for the 9th Annual New England Walk for Burn Survivors put on by the Burn Survivors of New England (BSoFNE). A team from the LIBRE project attended the gorgeous walk around the Charles River to support the great work of our friends at the BSoFNE. The walk raised […]
Interviews Complete!
We have just completed the last of our interviews for this phase of the LIBRE project, and we couldn’t be happier! The feedback and insight we received on the questions we hope to include in the LIBRE measurement tool was wonderful. We’re also so grateful for the interest of the burn survivor community and the […]