DS-TO-THE-MAX
All articles, easy-reads, and other research from the DS-TO-THE-MAX grant.
Easy Read: Co-Research Mental Health Survey
By The Rubenstein Lab This easy-read summary highlights key findings from a survey focused on stress, anxiety, and coping strategies among adults with Down syndrome. The study used a co-research approach, including team members with Down syndrome in the research process.
Down syndrome versus dementia
By Eden Rapp In this first-person essay, Eden Rapp, a co-researcher with Down syndrome, reflects on her experience supporting her grandmother with Alzheimer’s disease and connects it to the importance of health and advocacy for people with Down syndrome. She openly shares her experience and calls us to action to listen to people with Down […]
Easy Read: A study about how race and disability impact health for people with Down syndrome
By Salina Tewolde, Ashley Scott, Alianna Higgins, et al. This article looks at how racism and disability combine to affect the health of people of color with Down syndrome, showing that many face higher rates of hospital stays and other barriers to good healthcare.
Easy Read: A Population Study of Alzheimer’s Dementia in Down Syndrome
By Eric Rubenstein, Salina Tewolde, Amy Michals, et al. This study shows that Alzheimer’s disease is very common among adults with Down syndrome, often starting in their 50s, and calls for better understanding and care for this community.
Medicare, Medicaid, and dual enrollment for adults with intellectual and developmental disabilities
By Eric Rubenstein, Salina Tewolde, A. Alex Levine, et al. This poster looks at how adults with intellectual and developmental disabilities, including Down syndrome and autism, use Medicare and Medicaid, showing big differences by age, race, and state, and calling for fairer access to the care people need.
Easy Read: A study about Medicare, Medicaid, and dual enrollment for adults with intellectual and developmental disabilities
By Eric Rubenstein, Salina Tewolde, A. Alex Levine, et al. This study looks at how adults with intellectual and developmental disabilities, including Down syndrome and autism, use Medicare and Medicaid, showing big differences by age, race, and state, and calling for fairer access to the care people need.
Medicaid Is a Vital Lifeline for Adults with Down Syndrome
Featuring Eric Rubenstein A new study led by Boston University researchers found that nearly all U.S. adults with Down syndrome rely on Medicaid and use significantly more healthcare services and resources than those without developmental disabilities, highlighting both the program’s essential role in their wellbeing and persistent racial disparities in access to equitable care.
DS-TO-THE-MAX Grant Year 2
By The Rubenstein Lab This newsletter provides an overview of the discoveries, publications, and activities supported by Year 2 funding under the DS-TO-THE-MAX grant.
Medicaid Enrollment and Service Use Among Adults With Down Syndrome
By Eric Rubenstein, et al. This poster shows that adults with Down syndrome rely on Medicaid for long-term healthcare coverage and use more medical services than other groups with intellectual or developmental disabilities, highlighting how essential Medicaid is for meeting their health needs.
If We Knew Then Podcast: 110. The Future of Research and the Hope on the Horizon with Eric Rubenstein
Featuring Eric Rubenstein In this podcast episode, Eric Rubenstein discusses what inspired him to pursue epidemiology, his inclusion of people with Down syndrome in co-research, and how big data and policies can improve the lives of people with Down syndrome.