Co-Research
Easy Read: Co-Research Mental Health Survey
By The Rubenstein Lab This easy-read summary highlights key findings from a survey focused on stress, anxiety, and coping strategies among adults with Down syndrome. The study used a co-research approach, including team members with Down syndrome in the research process.
Down syndrome versus dementia
By Eden Rapp In this first-person essay, Eden Rapp, a co-researcher with Down syndrome, reflects on her experience supporting her grandmother with Alzheimer’s disease and connects it to the importance of health and advocacy for people with Down syndrome. She openly shares her experience and calls us to action to listen to people with Down […]
Sherman James Diverse & Inclusive Award 2025
Eric Rubenstein was awarded the Sherman James Diverse & Inclusive Award at the 2025 conference for the Society for Epidemiologic Research (SER).
Redefining Inclusion: Co-Researchers with Down Syndrome Set their Own Research Agenda
Featuring Eric Rubenstein and the Co-Research Team Assistant professor Eric Rubenstein’s collaboration with a team of individuals with Down syndrome led to the creation of the nation’s first public health co-research program led entirely by people with Down syndrome, shifting the research focus from medical data to community-driven priorities like mental health and stress management.
Welcome our new summer 2024 intern, Dan O’Donnell!
By Dan O’Donnell I’m Dan O’Donnell. I’m a 2024 co-research intern with the Rubenstein lab. I’m interested to know what the quality of life for the IDD community is. I think it is important for IDD people to stay healthy. I’m focusing on health and sports. My experience is with Special Olympics. I’ve been doing […]
DS-TO-THE-MAX Grant Year 2
By The Rubenstein Lab This newsletter provides an overview of the discoveries, publications, and activities supported by Year 2 funding under the DS-TO-THE-MAX grant.
Co-Research Blog
Welcome to our research blog! We are a diverse team of individuals, some with Down syndrome and some without, who have come together to learn about the health of people with Down syndrome. Over the past year, we have worked together, shared our experiences, and collaborated on a research project focusing on mental health. Through […]
If We Knew Then Podcast: 119. Walking The Walk, Breaking Down Stereotypes – with Dr. Eric Rubenstein and Kaethe Sigelko
Featuring Eric Rubenstein and Kaethe Sigelko In this podcast episode, Eric Rubenstein and co-researcher Kaethe Sigelko discuss navigating adulthood with Down syndrome.