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LIBRE Profile: Perspectives from PWBC
This new video, filmed at Phoenix World Burn Congress 2017, highlights the impact of burn injury on social participation and speaks to the need for a tool such as the LIBRE Profile to measure social recovery. The burn survivors and burn community throughout the country have played a critical role in the development of the LIBRE […]
LIBRE Profile Video
We recently completed filming a LIBRE Profile informational video starring LIBRE team members. The video describes why and how we created the LIBRE Profile, as well as how it will be used once it’s ready to be distributed to the burn community. Click the picture below to watch the short video. We hope you enjoy it!
LIBRE Profile Brochure
Need a quick and easy way to explain LIBRE Profile to someone? We have good news – we just created the LIBRE Profile brochure! The brochure is a 2-sided, tri-fold informational pamphlet that we plan to pass out to anyone interested in learning more about the LIBRE Profile. For a high-res version to print, please download […]
American Burn Association’s 49th Annual Meeting 2017
Last week was the American Burn Association’s 49th Annual Meeting in Boston, MA. The photo above was taken from Hynes Convention Center, the location for the majority of the conference. We enjoyed catching up with colleagues from burn communities across the United States, learning about the new research out there, and spreading the word about the […]
Lessons and Recovery: Burn Survivors Tell Their Stories – Second Edition with Gina
“I embrace my scars because they mean I am a survivor,” Gina told us when we spoke at the end of 2016. Gina and her son were struck by lightning after leaving the grocery store during a storm, just over twenty years ago. It was Father’s Day weekend and Gina was shopping for a cookout. […]
LIBRE Project Pilot Study Launched!
We have launched the next phase of the LIBRE Project: the Pilot Study! If you’re interested in participating, please click on the Become Involved tab to learn more and to get in touch. The goal of this phase is to test the LIBRE Profile to ensure it measures the social impact of a burn accurately. […]
Phoenix Society’s World Burn Congress 2016
We attended Phoenix Society’s World Burn Congress less than two weeks ago in Providence, Rhode Island. This is the third year LIBRE has attended, and we continue to be impressed by the Phoenix Society staff that runs the conference, the volunteers who help it run so smoothly, and the attendees that have welcomed us into […]
Lessons and Recovery: Burn Survivors Tell Their Stories – First Edition with Muji
Mujahid (“Muji”) Karim recently reached a milestone – the five-year anniversary of a car accident that has completely changed his life. On August 21, 2011 he was the passenger in a car that lost control and hit a tree. The car exploded on impact and it took four Jaws of Life to get Muji and […]
Geographical Representation of LIBRE Participants – Updated
Back in September, we posted about the geographical distribution of LIBRE participants when we had about 450 surveys completed. Now that data collection has finished, it makes sense to post an updated version of this map! Seen below, the map represents the geographical layout of the final 601 LIBRE participants in the United States and Canada. […]
Help us pick an updated logo for the LIBRE Profile!
As you may have seen in our newsletter, we are excited to announce that we have officially decided to call our measure The LIBRE Profile. The LIBRE Profile will be available for administration as a Computerized Adaptive Test (CAT) and through Short Forms, which can be filled out with pencil and paper. We decided on this […]