Publications

Selected Publications

*Kizildag, D., *Eilenberg, J.S., *Blakey, A., *Cardona, N., Broder-Fingert, S., Feinberg, E., & Long, K.A. (In Press). Family experiences with the autism developmental evaluation process: Perspectives of immigrant and US-born parents. Journal of Child and Family Studies. – doi.org/10.1007/s10826-022-02428-5

Long, K.A., *Davis, K., *Pariseau, E., Muriel, A.C., Kazak, A.E, & Alderfer, M.A. (2022). Initial validation of a new sibling-focused psychosocial screener: The PAT sibling modules. Psycho-Oncology. ncbi.nlm.nih.gov/pubmed/36029137/ 

*Amaro, C.M., Alderfer, M.A., Gerhardt, C., Wawrzynski, S., Goldish, M., & Long, K.A. (In Press). Bringing together a transdisciplinary team to create and advance a shared vision for research and support for siblings of youth with cancer. Journal of Pediatric Hematology/Oncology Nursing.

Long, K.A., *Chevalier, L., *Chu, A., Guthrie, K.M., Kao, B., Plante, W., & Lobato, D. (2022). Cultural influences on sibling relationships, roles, and self-concept in the context of autism: Perspectives of Latino/a/x and non-Latino/a/x siblings. Journal of Autism and Developmental Disorders, 52(9), 4100-4113. PMID: 34559336. – ncbi.nlm.nih.gov/pubmed/34559336/

*Gordillo, M., *Chu, A., & Long, K.A. (In Press). Differences in processes underlying autism service system engagement among Latina and Non-Latina mothers. Journal of Autism and Developmental Disorders. PMID: 35059950. – ncbi.nlm.nih.gov/pubmed/35059950/

*Eilenberg, J.S., *Kizildag, D., *Blakey, A., *Cardona, N., *Oberoi, A., Broder-Fingert, S., Feinberg, E., & Long, K.A. (2022). Implications of universal autism screening: Perspectives from culturally-diverse families with false positive screens. Academic Pediatrics, 22(2), 279-288. – ncbi.nlm.nih.gov/pubmed/34963655/

*Brosnan, P., *Davis, K.A., *Mazzenga, M., Buchbinder, D., Alderfer, M.A., *Sharkey, C.A., & Long, K.A. (2022). Psychosocial care providers’ perspectives: Barriers to implementing services for siblings of children with cancer. Pediatric Blood & Cancer, 69(2), PMID: 34786821. – ncbi.nlm.nih.gov/pubmed/34786821/

*Loo, S., Brochier, A., *Gordon Wexler, M., Long, K.A., Kavanagh, P.L., Garg, A., & Drainoni, M.L. (2021). Addressing unmet basic needs for children with sickle cell disease: Clinic and staff perspectives. BMC Health Services Research, 21(1), 55-62. PMID: 33435984 – ncbi.nlm.nih.gov/pubmed/33435984/

Long, K., Patterson, P., Fainsilber Katz, L., *Amaro, C., & Alderfer, M. (2021). Creating a pathway for psychosocial support in siblings of youth with a chronic illness: Findings from an international summit. Journal of Developmental and Behavioral Pediatrics, 42(4), 331-339. PMID: 33395147. – ncbi.nlm.nih.gov/pubmed/33395147/

Zhou, E.S., *Mazzenga, M., *Gordillo, M.L., Meltzer, L.J., & Long, K.L. (2020). Sleep education and training among practicing clinical psychologists in Canada and the United States. Behavioral Sleep Medicine. PMID: 33336599. – ncbi.nlm.nih.gov/pubmed/33336599/

Wiener, L., Canter, K., Long, K., Psihogios, A., & Thompson, A. (2020). Pediatric psychosocial standards of care in action: Research that bridges the gap from need to implementation. Psycho-Oncology, 29(12), 2033-2040. PMID: 32748495. – ncbi.nlm.nih.gov/pubmed/32748495/

Long, K.A., *Gordillo, M., & Orsmond, G. (2020). Improving the validity and generalizability of adult autism research through incorporating family and cultural contexts. Autism in Adulthood, 2(3), 177-184. PMID: 32959029. – ncbi.nlm.nih.gov/pubmed/32959029/

*Gordillo, M., *Chu, A., & Long, K. (2020). Mothers’ adjustment to autism: Exploring the roles of autism knowledge and culture. Journal of Pediatric Psychology, 45(8), 877-886. PMID: 32647887. – ncbi.nlm.nih.gov/pubmed/32647887/

*Pariseau, E., *Chevalier, L., Muriel, A., & Long, K.A. (2020). Parental awareness of sibling adjustment: Perspectives of parents and siblings of children with cancer. Journal of Family Psychology, 34(6), 698-708. PMID: 31829671. – ncbi.nlm.nih.gov/pubmed/31829671/

*Kim, H., Zhou, E., *Chevalier, L., *Lun, P., Davidson, R., *Pariseau, E. M. & Long, K. A. (2020). Parental behaviors, emotions at bedtime, and sleep disturbances in children with cancer. Journal of Pediatric Psychology, 45(5), 550-560. – ncbi.nlm.nih.gov/pubmed/32279072/

*Oberoi, A. R., *Cardona, N. D., *Davis, K. A., *Pariseau, E. M., Berk, D., Muriel, A. C., & Long, K. A. (2020). Parent decision-making about support for siblings of children with cancer: Sociodemographic influences. Clinical Practice in Pediatric Psychology, 8(2), 115-125. – doi/10.1037/cpp0000324

*Pariseau, E. M., *Chevalier, L., Muriel, A. C., & Long, K. A. (2019). Parental awareness of sibling adjustment: Perspectives of parents and siblings of children with cancer. Journal of Family Psychology. – doi/10.1037/fam0000615

*Sandler Eilenberg, J., *Paff, M., Harrison, A., & Long, K. A. (2019).  Disparities based on race, ethnicity, and socioeconomic status over the transition to adulthood among adolescents and young adults on the autism spectrum: A systematic review. Current Psychiatry Reports. – ncbi.nlm.nih.gov/pubmed/30903399/

*Oberoi, A. R., Towry, L., Lerro, G., *Sandler Eilenberg, J., *Phyllis, L., Lerro, G., Alderfer, M. A.,  Long, K.A. (2019). Improving support to siblings of children with cancer through a community-academic partnership. Clinical Practice in Pediatric Psychology.doi/10.1037/cpp0000280

Long, K. A., *Lehmann, V., Gerhardt, C., *Carpenter, A., Marsland, A., & Alderfer, M. (2018). Psychosocial functioning and risk factors for siblings of children with cancer: An updated systematic review. Psychooncology, 27, 1467-1479. PMID: 29441699. – ncbi.nlm.nih.gov/pubmed/29441699

Long, K. A., *Pariseau, E. M., Muriel, A., Kazak, A., *Chu, A., & Alderfer, A. (2018). Development of a psychosocial risk screener for siblings of children with cancer: Incorporating the perspectives of parents. Journal of Pediatric Psychology, 43, 693-701. PMID: 29617821. –ncbi.nlm.nih.gov/pubmed/29617821

Long, K.A., *Pariseau, E.M., Muriel, A.C., *Chu, A., Kazak, A.E., *Leon, M., & Alderfer, M.A. (2017). Psychosocial screening for siblings of children with cancer: Barriers and preferences. Clinical Practice of Pediatric Psychology, 5, 364-375. – doi/10.1037/cpp0000219

Harrison, A.J., Long, K.A., Tommet, D., & Jones, R.N.  (2017). Examining the role of race, ethnicity, and gender on social and behavioral ratings within the Autism Diagnostic Observation Schedule. Journal of Autism and Developmental Disorders, 47, 2770-2782. PMID: 28597187.  –ncbi.nlm.nih.gov/pubmed/28597187

Harrison, A. Long, K., Manji, K., & Blane, K. (2016). Development of a brief intervention to improve knowledge of autism and behavioral strategies among parents in Tanzania. Intellectual & Developmental Disabilities, 54, 187-201PMID: 27268474. ncbi.nlm.nih.gov/pubmed/27268474

Gerhardt, C., Lehmann, V., Long, K., & Alderfer, A. (2015). Supporting siblings as a standard of care in pediatric oncology. Pediatric Blood & Cancer, 62, S678-S732. PMID: 26700924.  –ncbi.nlm.nih.gov/pubmed/26700924

Almy B, Long K, Lobato D, Plante W, Kao B, et al. Perceptions of siblings’ sexual activity predict sexual attitudes among at-risk adolescents. Journal of developmental and behavioral pediatrics : JDBP. 2015; 36(4):258-66. NIHMSID: NIHMS647353 PubMed [journal] PMID: 25741948, PMCID: PMC4414693 – ncbi.nlm.nih.gov/pubmed/25741948

Alderfer MA, Stanley C, Conroy R, Long KA, Fairclough DL, et al. The social functioning of siblings of children with cancer: a multi-informant investigation. Journal of pediatric psychology. 2015; 40(3):309-19. PubMed [journal] PMID: 25256156, PMCID: PMC4366447 – ncbi.nlm.nih.gov/pubmed/25256156

Long KA, Kao B, Plante W, Seifer R, Lobato D. Cultural and child-related predictors of distress among latina caregivers of children with intellectual disabilities. American journal on intellectual and developmental disabilities. 2015; 120(2):145-65. PubMed [journal] PMID: 25715183 – ncbi.nlm.nih.gov/pubmed/25715183

Long KA, Goldish M, Lown EA, Ostrowski NL, Alderfer MA, et al. Major lessons learned from a nationally-based community-academic partnership: addressing sibling adjustment to childhood cancer. Families, systems & health : the journal of collaborative family healthcare. 2015; 33(1):61-7. PubMed [journal] PMID: 25581558 – ncbi.nlm.nih.gov/pubmed/25581558

Long KA, Marsland AL, Wright A, Hinds P. Creating a tenuous balance: siblings’ experience of a brother’s or sister’s childhood cancer diagnosis. Journal of
pediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. 2015; 32(1):21-31. PubMed [journal] PMID: 25391285 – ncbi.nlm.nih.gov/pubmed/25391285

Long KA, Keeley L, Reiter-Purtill J, Vannatta K, Gerhardt CA, et al. Child-rearing in the context of childhood cancer: perspectives of parents andprofessionals. Pediatric blood & cancer. 2014; 61(2):326-32. PubMed [journal] PMID: 24376229 – ncbi.nlm.nih.gov/pubmed/24376229

Long KA, Marsland AL, Alderfer MA. Cumulative family risk predicts sibling adjustment to childhood cancer. Cancer. 2013; 119(13):2503-10. NIHMSID: NIHMS454260 PubMed [journal] PMID: 23576115, PMCID: PMC3686993 – ncbi.nlm.nih.gov/pubmed/23576115

Long KA, Lobato D, Kao B, Plante W, Grullón E, et al. Perceptions of emotion expression and sibling-parent emotion communication in Latino and non-Latino white siblings of children with intellectual disabilities. Journal of pediatric psychology. 2013; 38(5):551-62. PubMed [journal] PMID: 23459309, PMCID: PMC3666121 – ncbi.nlm.nih.gov/pubmed/23459309

Long KA, Alderfer MA, Ewing LJ, Marsland AL. The role of contextual threat in predicting self-reported distress among siblings of children with cancer. Journal
of clinical psychology in medical settings. 2013; 20(2):199-208. PubMed [journal] PMID: 23053828 – ncbi.nlm.nih.gov/pubmed/23053828

Marsland AL, Long KA, Howe C, Thompson AL, Tersak J, et al. A pilot trial of a stress management intervention for primary caregivers of children newly diagnosed with cancer: preliminary evidence that perceived social support moderates the psychosocial benefit of intervention. Journal of pediatric psychology. 2013; 38(4):449-61. PubMed [journal] PMID: 23341547, PMCID: PMC3633253 – ncbi.nlm.nih.gov/pubmed/23341547

Thompson AL, Long KA, Marsland AL. Impact of childhood cancer on emerging adult survivors’ romantic relationships: a qualitative account. The journal of sexual
medicine. 2013; 10 Suppl 1:65-73. PubMed [journal] PMID: 23057814 – ncbi.nlm.nih.gov/pubmed/23057814

Long KA, Marsland AL. Family adjustment to childhood cancer: a systematic review. Clinical child and family psychology review. 2011; 14(1):57-88. PubMed [journal]
PMID: 21221783 – ncbi.nlm.nih.gov/pubmed/21221783

Long KA, Ewing LJ, Cohen S, Skoner D, Gentile D, et al. Preliminary evidence for the feasibility of a stress management intervention for 7- to 12-year-olds with asthma. The Journal of asthma : official journal of the Association for the Care of Asthma. 2011; 48(2):162-70. PubMed [journal] PMID: 21332379 – ncbi.nlm.nih.gov/pubmed/21332379

Alderfer MA, Long KA, Lown EA, Marsland AL, Ostrowski NL, et al. Psychosocial adjustment of siblings of children with cancer: a systematic review. Psycho-oncology. 2010; 19(8):789-805. PubMed [journal] PMID: 19862680 – ncbi.nlm.nih.gov/pubmed/19862680

Long KA. Informed consent in pediatric cancer clinical trials: giving adolescents a voice. Pediatric blood & cancer. 2010; 55(1):8-9. PubMed [journal] PMID:
20486164 – ncbi.nlm.nih.gov/pubmed/20486164

Cluss PA, Ewing LJ, Long KA, Krieger WG, Lovelace J. Adapting pediatric obesity treatment delivery for low-income families: a public-private partnership.
Clinical pediatrics. 2010; 49(2):123-9. PubMed [journal] PMID: 20080518 – ncbi.nlm.nih.gov/pubmed/20080518


Conference Presentations (2017-2022)

Long, K.A., *Amaro, C.M., *Davis, K.A., *Mazzenga, M.M., *Cardona, N., Muriel, A.C., & Alderfer, M.A. (2022). Development of a new trauma-focused intervention for adolescent siblings of youth with cancer [Paper Presentation]. Society of Paediatric Oncology Annual Conference, Barcelona, Spain.

*Davis, K. A., Alderfer, M. A., *Pariseau, E. M., Lewis, A., Kazak, A. E., & Long, K. A. (2022). The PAT Sibling Modules: Psychometric properties of a sibling psychosocial risk screener [Paper Presentation]. Society of Paediatric Oncology Annual Conference, Barcelona, Spain.

Alderfer, M.A., Kripalani, S., *Amaro, C.M., Taggi Pinto, A., Lewis, A., Hidenbrand, A. K., Lown, E.A., & Long, K.A. (2022). Trajectories of cancer-related traumatic stress among siblings of children with cancer within two years of diagnosis [Paper Presentation]. International Society of Paediatric Oncology, Barcelona, Spain.

*Blakey, A.O., *Amaro, C. M., *Eilenberg, J., Brochier, A., Kavanagh, P., Garg, A., Drainoni, M-L., & Long, K.A. (2022) Disease management decision-making amongst caregivers of children with sickle cell anemia. American Society of Hematology Annual Meeting in New Orleans, LA.

Kim. Y., Mastrangelo, C., Long, K., Gordillo, M., & Orsmond, G.I. (2022). Feasibility of a program to support adult sibling involvement in family future planning for family members on the autism spectrum [Poster presentation]. Occupational Therapy Summit of Scholars, Madison, WI.

*Blakey, A.O., *Lavarin, C., *Amaro, C.M., Brochier, A., *Eilenberg, J., *Messmer, E., Kavanagh, P., Garg, A., Drainoni, M-L., & Long, K.A. (2022). Effects of perceived discrimination in pediatric sickle cell anemia: Caregiver and provider perspectives [Poster Presentation]. Society of Pediatric Psychology, Annual Conference, Phoenix, AZ.

  • Society for Pediatric Psychology Diversity Special Interest Group Poster Award Winner

*Davis, K.A., Mazzenga, M., *Brosnan, P., Buchbinder, D., Alderfer, M. A., *Sharkey, C.M., & Long, K. A. (2022). Development of a blueprint for psychosocial services for siblings of youth with cancer: A nationwide study [Invited Symposium Presentation]. American Psychosocial Oncology Society Annual Conference, Portland, OR.

*Davis, K. A., *Brosnan, P., Mazzenga, M., Buchbinder, D., Alderfer, M. A., & Long, K. A. (2022). Characterizing current sibling assessment and support services in pediatric cancer care [Poster Presentation]. Society of Pediatric Psychology Annual Conference, Phoenix, AZ.

*Chevalier, L., *Pariseau, E., Long, K., Langer, D., Pincus, D. (2021). Efficacy of a treatment for sleep-related problems in children with anxiety: A mixed methods study [Poster Presentation]. SLEEP Annual Conference, Virtual.

*Amaro, C.M., *Blakey, A.O., *Eilenberg, J., Garg, A., Kavanagh, P., Drainoni, M.L., & Long, K.A. (2021). Family impact and involvement in pediatric sickle cell disease. In C. M. Amaro (Chair), A Multisystemic Approach to Improving Care in Pediatric Sickle Cell Disease [Symposium]. American Psychological Association Annual Convention, Virtual.

*Schmidt, E., *Gordillo, M., Getz, M., Orsmond, G., & Long, K. (2021). Sibling and service provider perspectives on sibling involvement in the lives of adults on the autism spectrum. International Society for Autism Research Annual Meeting, Virtual.

*Cardona, N.D., *Kizildag, D., *Eilenberg, J.S., *Blakey, A.O., Long, K.A. (2021). In their own words: Perceived hardiness in culturally-diverse caregivers of children with false-positive autism screens [Poster Presentation]. Society of Pediatric Psychology Annual Conference, Virtual.

*Brosnan, P., *Davis, K.A., Mazzenga, M., Buchbinder, D., Alderfer, M.A., & Long, K.A. (2021). Through the eyes of the provider: Facilitating sibling-specific services for siblings of children with cancer. Society of Pediatric Psychology Annual Conference, virtual.

*Blakey, A.O., *Eilenberg, J., *Amaro, C.M., Kavanagh, P., Garg, A., Drainoni, M-L., & Long, K.A. (2021). Links between social ecology and caregivers’ daily disease management in pediatric sickle cell anemia [Poster Presentation]. Society of Pediatric Psychology Annual Conference, virtual.

*Kizildag, D., *Eilenberg, J., *Cardona, N., *Blakey, A., & Long, K.A. (2021). Cultural influences in family experiences with early screening for autism spectrum disorder [Poster Presentation]. 54th Annual Gatlinburg Conference, virtual.

*Blakey, A.O., *Eilenberg, J., *Kizildag, D., *Cardona, N., & Long, K.A. (2021). Caregivers’ perspectives on family involvement during the autism evaluation process [Poster Presentation]. 54th Annual Gatlinburg Conference, virtual.

*Amaro, C., Alderfer, M., Gerhardt, C., & Long, K. (2021). Bringing together an international group of professional and family stakeholders to create a vision for research and support for siblings of youth with cancer [Podium Presentation]. American Psychosocial Oncology Society Annual Conference, Virtual.

*Chevalier, L., *Pariseau, E.M., *Kim, H., *Davidson, R.D., *Lun, P., Zhou, E.S., & Long, K.A. (2021). Elucidating changes in sleep-related parenting during inpatient and outpatient pediatric cancer treatment [Poster Presentation]. American Psychosocial Oncology Society Annual Conference, Virtual.

Long, K.A., *Mazzenga, M.M., *Davis, K., *Oberoi, A., *Brosnan, P., *Sharkey, C., Buchbinder, D., *Amaro, C., Barrera, M., Fainsilber Katz, L., Gerhardt, C., Lown, A., & Alderfer, M.A. (2020). “They are not the priority”: Characterizing and overcoming barriers to providing psychosocial services to siblings of children with cancer. Society of Paediatric Oncology Annual Conference, Annual Conference, Ottawa, ON. (Not presented due to COVID-19)

Long, K.A., *Davis, K., *Mazzenga, M.M., *Brosnan, P., *Oberoi, A., *Sharkey, C., Buchbinder, D., & Alderfer, M.A. (2020). Development of a Blueprint for Psychosocial Services for Siblings of Children with Cancer: A Nationwide Study. Society of Paediatric Oncology Annual Conference, Annual Conference, Ottawa, ON. (Not presented due to COVID-19)

*Pariseau, E. M., *Carter, Q. B., Long, K. A., & Ng, L. C. (2019, September). Barriers and facilitators to implementation of a brief PTSD intervention for adolescents in primary care. Poster presentation at the 2019 Developing and Researching Advanced Models of Integrated Primary Care (DREAM IPC) Biennial Conference, Wilmington, DE.

*Cowser, T., *Pariseau, E., *Carter, Q., *Adolf, E., Muriel, A., & Long, K. (2019). The Influence of Family Psychosocial Risk on Utilization of Sibling Support in Families of Children with Cancer [Poster Presentation]. American Psychological Association Annual Conference, Chicago, IL.

Long, K.A., *Pariseau, E.M., Muriel, A.C., Kazak, A.E., & Alderfer, M.A. (2019). Initial Validation of the PAT Sibling Module: A Screener for Siblings of Children with Cancer. [Symposium]. American Psychological Association Annual Conference, Chicago, IL.

Long, K.L., Getz, M., *Gordillo, M., & Orsmond, G. (2019). Engaging adult siblings in autism-related planning for the future [Symposium Presentation]. American Psychological Association Annual Conference, Chicago, IL.

Long, K.A., Buchbinder, D., Amaro, C., Barrera, M., Fainsilber Katz, L., Gerhardt, C., Lown, A., Sharkey, C., & Alderfer, M.A. (2019). On the Outside Looking In: A Nationwide Examination of Barriers to and Facilitators of Implementing the Standard of Psychosocial Care for Siblings of Children with Cancer [Paper Presentation]. American Psychosocial Oncology Society Annual Conference, Atlanta, GA.

*Gordillo, M.L., Orsmond, G., & Long, K.A. (2019). Cultural considerations for future Planning: focus on Latino families of adults with autism. [Symposium Presentation]. 52nd Annual Gatlinburg Conference, San Antonio, TX.

*Gordillo, M.L., *Chu, A., & Long, K.A. (2019). Differences in how mothers conceptualize ASD generally and in their own children: When increased knowledge does not lead to acceptance. [Poster Presentation]. 52nd Annual Gatlinburg Conference, San Antonio, TX.

*Sandler Eilenberg, J., *Paff, M., Harrison, A., & Long, K. (2019). Racial, ethnic, and socioeconomic disparities over the transition to adulthood among adolescents and young adults with autism spectrum disorders: A systematic review. [Symposium Presentation]. 52nd Annual Gatlinburg Conference, San Antonio, TX.

*Pariseau, E., *Chevalier, L., Muriel, A., & Long, K. (2019).  Family functioning influences discrepancies in parent-sibling reports of the psychosocial functioning of siblings of children with cancer. [Poster Presentation]. Society of Pediatric Psychology Annual Conference. New Orleans, LA.

*Chevalier, L., Pariseau, E., Muriel, A., Long, K. (2018). Coping strategies used by siblings and parents when a child has cancer [Poster Presentation]. The 52nd Annual Convention of the Association of Behavioral and Cognitive Therapies. Washington, DC.

*Chu, A., Broder-Fingert, M., Long, K., & Feinberg, E. (2018). State-level autism policies and their impact on families’ access to early intensive behavioral interventions [Poster Presentation]. International Society for Autism Research Annual Meeting. Rotterdam, Netherlands.

*Chu, A., *Gordillo, M, & Long, K. (2018). The influence of culture on the decision-making process of disclosing a child’s autism diagnosis to family and friends: A qualitative study of parents’ experiences [Symposium]. Gatlinburg Conference, San Diego, CA.

*Kim, H., Zhou, E., & Long, K.A. (2018). Sleep quality in children with cancer: Associations with parental sleep hygiene and sleep quality [Poster Presentation]. The Society of Pediatric Psychology Annual Conference, Orlando, FL.

*Chevalier, L., *Pariseau, E.M., *Chu, A., Muriel, A.C., & Long, K.A. (2018). Communication with siblings of children with cancer in Hispanic and non-Hispanic Families [Poster Presentation]. The Society of Pediatric Psychology Annual Conference, Orlando, FL.

Long, K.A., *Pariseau, E., *Chu, A., Muriel, A.C., Kazak, A., & Alderfer, M.A. (2017). Development and initial validation of a screening module to assess psychosocial risk among siblings of children with cancer [Poster Discussion]. Society of Paediatric Oncology Annual Conference, Washington, DC.

*Student author