Publications

Selected Publications

*Sandler Eilenberg, J., *Paff, M., Harrison, A., & Long, K.A. (2019).  Disparities based on race, ethnicity, and socioeconomic status over the transition to adulthood among adolescents and young adults on the autism spectrum: A systematic review. Current Psychiatry Reports.

*Oberoi, A. R., Towry, L., Lerro, G., *Sandler Eilenberg, J., *Phyllis, L., Lerro, G., Alderfer, M. A.,  Long, K.A. (2019). Improving support to siblings of children with cancer through a community-academic partnership. Clinical Practice in Pediatric Psychology. 

Long, K., *Lehmann, V., Gerhardt, C., *Carpenter, A., Marsland, A., & Alderfer, M. (2018). Psychosocial functioning and risk factors for siblings of children with cancer: An updated systematic review. Psychooncology, 27, 1467-1479. PMID: 29441699. – ncbi.nlm.nih.gov/pubmed/29441699

Long, K., *Pariseau, E., Muriel, A., Kazak, A., *Chu, A., & Alderfer, A. (2018). Development of a psychosocial risk screener for siblings of children with cancer: Incorporating the perspectives of parents. Journal of Pediatric Psychology, 43, 693-701. PMID: 29617821. –ncbi.nlm.nih.gov/pubmed/29617821

Long, K.A., *Pariseau, E.M., Muriel, A.C., *Chu, A., Kazak, A.E., *Leon, M., & Alderfer, M.A. (2017). Psychosocial screening for siblings of children with cancer: Barriers and preferences. Clinical Practice of Pediatric Psychology, 5, 364-375.

Harrison, A.J., Long, K.A., Tommet, D., & Jones, R.N.  (2017). Examining the role of race, ethnicity, and gender on social and behavioral ratings within the Autism Diagnostic Observation Schedule. Journal of Autism and Developmental Disorders, 47, 2770-2782. PMID: 28597187.  –ncbi.nlm.nih.gov/pubmed/28597187

Harrison, A. Long, K., Manji, K., & Blane, K. (2016). Development of a brief intervention to improve knowledge of autism and behavioral strategies among parents in Tanzania. Intellectual & Developmental Disabilities, 54, 187-201PMID: 27268474. ncbi.nlm.nih.gov/pubmed/27268474

Gerhardt, C., Lehmann, V., Long, K., & Alderfer, A. (2015). Supporting siblings as a standard of care in pediatric oncology. Pediatric Blood & Cancer, 62, S678-S732. PMID: 26700924.  –ncbi.nlm.nih.gov/pubmed/26700924

Almy B, Long K, Lobato D, Plante W, Kao B, et al. Perceptions of siblings’ sexual
activity predict sexual attitudes among at-risk adolescents. Journal of
developmental and behavioral pediatrics : JDBP. 2015; 36(4):258-66. NIHMSID:
NIHMS647353 PubMed [journal] PMID: 25741948, PMCID: PMC4414693
– ncbi.nlm.nih.gov/pubmed/25741948

Alderfer MA, Stanley C, Conroy R, Long KA, Fairclough DL, et al. The social
functioning of siblings of children with cancer: a multi-informant investigation.
Journal of pediatric psychology. 2015; 40(3):309-19. PubMed [journal] PMID:
25256156, PMCID: PMC4366447
– ncbi.nlm.nih.gov/pubmed/25256156

Long KA, Kao B, Plante W, Seifer R, Lobato D. Cultural and child-related
predictors of distress among latina caregivers of children with intellectual
disabilities. American journal on intellectual and developmental disabilities.
2015; 120(2):145-65. PubMed [journal] PMID: 25715183
– ncbi.nlm.nih.gov/pubmed/25715183

Long KA, Goldish M, Lown EA, Ostrowski NL, Alderfer MA, et al. Major lessons
learned from a nationally-based community-academic partnership: addressing
sibling adjustment to childhood cancer. Families, systems & health : the journal
of collaborative family healthcare. 2015; 33(1):61-7. PubMed [journal] PMID:
25581558
– ncbi.nlm.nih.gov/pubmed/25581558

Long KA, Marsland AL, Wright A, Hinds P. Creating a tenuous balance: siblings’
experience of a brother’s or sister’s childhood cancer diagnosis. Journal of
pediatric oncology nursing : official journal of the Association of Pediatric
Oncology Nurses. 2015; 32(1):21-31. PubMed [journal] PMID: 25391285
– ncbi.nlm.nih.gov/pubmed/25391285

Long KA, Keeley L, Reiter-Purtill J, Vannatta K, Gerhardt CA, et al.
Child-rearing in the context of childhood cancer: perspectives of parents and
professionals. Pediatric blood & cancer. 2014; 61(2):326-32. PubMed [journal]
PMID: 24376229
– ncbi.nlm.nih.gov/pubmed/24376229

Long KA, Marsland AL, Alderfer MA. Cumulative family risk predicts sibling
adjustment to childhood cancer. Cancer. 2013; 119(13):2503-10. NIHMSID:
NIHMS454260 PubMed [journal] PMID: 23576115, PMCID: PMC3686993
– ncbi.nlm.nih.gov/pubmed/23576115

Long KA, Lobato D, Kao B, Plante W, Grullón E, et al. Perceptions of emotion
expression and sibling-parent emotion communication in Latino and non-Latino
white siblings of children with intellectual disabilities. Journal of pediatric
psychology. 2013; 38(5):551-62. PubMed [journal] PMID: 23459309, PMCID:
PMC3666121
– ncbi.nlm.nih.gov/pubmed/23459309

Long KA, Alderfer MA, Ewing LJ, Marsland AL. The role of contextual threat in
predicting self-reported distress among siblings of children with cancer. Journal
of clinical psychology in medical settings. 2013; 20(2):199-208. PubMed [journal]
PMID: 23053828
– ncbi.nlm.nih.gov/pubmed/23053828

Marsland AL, Long KA, Howe C, Thompson AL, Tersak J, et al. A pilot trial of a
stress management intervention for primary caregivers of children newly diagnosed
with cancer: preliminary evidence that perceived social support moderates the
psychosocial benefit of intervention. Journal of pediatric psychology. 2013;
38(4):449-61. PubMed [journal] PMID: 23341547, PMCID: PMC3633253
– ncbi.nlm.nih.gov/pubmed/23341547

Thompson AL, Long KA, Marsland AL. Impact of childhood cancer on emerging adult
survivors’ romantic relationships: a qualitative account. The journal of sexual
medicine. 2013; 10 Suppl 1:65-73. PubMed [journal] PMID: 23057814
– ncbi.nlm.nih.gov/pubmed/23057814

Long KA, Marsland AL. Family adjustment to childhood cancer: a systematic review.
Clinical child and family psychology review. 2011; 14(1):57-88. PubMed [journal]
PMID: 21221783
– ncbi.nlm.nih.gov/pubmed/21221783

Long KA, Ewing LJ, Cohen S, Skoner D, Gentile D, et al. Preliminary evidence for
the feasibility of a stress management intervention for 7- to 12-year-olds with
asthma. The Journal of asthma : official journal of the Association for the Care
of Asthma. 2011; 48(2):162-70. PubMed [journal] PMID: 21332379
– ncbi.nlm.nih.gov/pubmed/21332379

Alderfer MA, Long KA, Lown EA, Marsland AL, Ostrowski NL, et al. Psychosocial
adjustment of siblings of children with cancer: a systematic review.
Psycho-oncology. 2010; 19(8):789-805. PubMed [journal] PMID: 19862680
– ncbi.nlm.nih.gov/pubmed/19862680

Long KA. Informed consent in pediatric cancer clinical trials: giving adolescents
a voice. Pediatric blood & cancer. 2010; 55(1):8-9. PubMed [journal] PMID:
20486164 – ncbi.nlm.nih.gov/pubmed/20486164

Cluss PA, Ewing LJ, Long KA, Krieger WG, Lovelace J. Adapting pediatric obesity
treatment delivery for low-income families: a public-private partnership.
Clinical pediatrics. 2010; 49(2):123-9. PubMed [journal] PMID: 20080518
– ncbi.nlm.nih.gov/pubmed/20080518

 

Conference Presentations (2018-2019)

*Cowser, T., *Pariseau, E., *Carter, Q., *Adolf, E., Muriel, A., & Long, K. (2019). The Influence of Family Psychosocial Risk on Utilization of Sibling Support in Families of Children with Cancer [Poster Presentation]. American Psychological Association Annual Conference, Chicago, IL.

Long, K.A., *Pariseau, E.M., Muriel, A.C., Kazak, A.E., & Alderfer, M.A. (2019). Initial Validation of the PAT Sibling Module: A Screener for Siblings of Children with Cancer. [Symposium]. American Psychological Association Annual Conference, Chicago, IL.

Long, K.L., Getz, M., *Gordillo, M., & Orsmond, G. (2019). Engaging adult siblings in autism-related planning for the future [Symposium Presentation]. American Psychological Association Annual Conference, Chicago, IL.

Long, K.A., Buchbinder, D., Amaro, C., Barrera, M., Fainsilber Katz, L., Gerhardt, C., Lown, A., Sharkey, C., & Alderfer, M.A. (2019). On the Outside Looking In: A Nationwide Examination of Barriers to and Facilitators of Implementing the Standard of Psychosocial Care for Siblings of Children with Cancer [Paper Presentation]. American Psychosocial Oncology Society Annual Conference, Atlanta, GA.

*Gordillo, M.L., Orsmond, G., & Long, K.A. (2019). Cultural considerations for future Planning: focus on Latino families of adults with autism. [Symposium Presentation]. 52nd Annual Gatlinburg Conference, San Antonio, TX.

*Gordillo, M.L., *Chu, A., & Long, K.A. (2019). Differences in how mothers conceptualize ASD generally and in their own children: When increased knowledge does not lead to acceptance. [Poster Presentation]. 52nd Annual Gatlinburg Conference, San Antonio, TX.

*Sandler Eilenberg, J., *Paff, M., Harrison, A., & Long, K. (2019). Racial, ethnic, and socioeconomic disparities over the transition to adulthood among adolescents and young adults with autism spectrum disorders: A systematic review. [Symposium Presentation]. 52nd Annual Gatlinburg Conference, San Antonio, TX.

*Pariseau, E., *Chevalier, L., Muriel, A., & Long, K. (2019).  Family functioning influences discrepancies in parent-sibling reports of the psychosocial functioning of siblings of children with cancer. [Poster Presentation]. Society of Pediatric Psychology Annual Conference. New Orleans, LA.

*Chevalier, L., Pariseau, E., Muriel, A., Long, K. (2018). Coping strategies used by siblings and parents when a child has cancer [Poster Presentation]. The 52nd Annual Convention of the Association of Behavioral and Cognitive Therapies. Washington, DC.

*Chu, A., Broder-Fingert, M., Long, K., & Feinberg, E. (2018). State-level autism policies and their impact on families’ access to early intensive behavioral interventions [Poster Presentation]. International Society for Autism Research Annual Meeting. Rotterdam, Netherlands.

*Chu, A., *Gordillo, M, & Long, K. (2018). The influence of culture on the decision-making process of disclosing a child’s autism diagnosis to family and friends: A qualitative study of parents’ experiences [Symposium]. Gatlinburg Conference, San Diego, CA.

*Kim, H., Zhou, E., & Long, K.A. (2018). Sleep quality in children with cancer: Associations with parental sleep hygiene and sleep quality [Poster Presentation]. The Society of Pediatric Psychology Annual Conference, Orlando, FL.

*Chevalier, L., *Pariseau, E.M., *Chu, A., Muriel, A.C., & Long, K.A. (2018). Communication with siblings of children with cancer in Hispanic and non-Hispanic Families [Poster Presentation]. The Society of Pediatric Psychology Annual Conference, Orlando, FL.

Long, K.A., *Pariseau, E., *Chu, A., Muriel, A.C., Kazak, A., & Alderfer, M.A. (2017). Development and initial validation of a screening module to assess psychosocial risk among siblings of children with cancer [Poster Discussion]. Society of Paediatric Oncology Annual Conference, Washington, DC.

 

*Student author