Perspective

Down syndrome versus dementia

in Co-Research, DS-TO-THE-MAX, Perspective

By Eden Rapp In this first-person essay, Eden Rapp, a co-researcher with Down syndrome, reflects on her experience supporting her grandmother with Alzheimer’s disease and connects it to the importance of health and advocacy for people with Down syndrome. She openly shares her experience and calls us to action to listen to people with Down […]

Welcome our new summer 2024 intern, Dan O’Donnell!

in Co-Research, Perspective

By Dan O’Donnell I’m Dan O’Donnell. I’m a 2024 co-research intern with the Rubenstein lab. I’m interested to know what the quality of life for the IDD community is. I think it is important for IDD people to stay healthy. I’m focusing on health and sports. My experience is with Special Olympics. I’ve been doing […]

Co-Research Blog

in Co-Research, Perspective

Welcome to our research blog! We are a diverse team of individuals, some with Down syndrome and some without, who have come together to learn about the health of people with Down syndrome. Over the past year, we have worked together, shared our experiences, and collaborated on a research project focusing on mental health. Through […]