Down syndrome versus dementia

By Eden Rapp

In this first-person essay, Eden Rapp, a co-researcher with Down syndrome, reflects on her experience supporting her grandmother with Alzheimer’s disease and connects it to the importance of health and advocacy for people with Down syndrome. She openly shares her experience and calls us to action to listen to people with Down syndrome as experts in their own lives, bringing unique perspectives that are critical to conversations about dementia within the Down syndrome community.