PROMISE IDD

Policies for Reproductive Outcomes in Medicaid–Improving Services for Enrollees with Intellectual and Developmental Disabilities (PROMISE-IDD) 

Funding: Eunice Kennedy Shriver National Institute of Child Health and Human Development, 1R01HD109135-01  

PI: Eric Rubenstein, PhD ScM 

We want to improve the experience of people with intellectual and developmental disabilities during pregnancy. To do this, we will conduct a research study using national data and conduct interviews with people with intellectual and developmental disabilities. 

We are interested in three key factors that may influence pregnancy health outcomes for people with intellectual and developmental disabilities: 

1. Medicaid: The timing of when people with intellectual and developmental disabilities enroll for Medicaid may influence their pregnancy experience and access to healthcare. 
2. Prenatal care: It is understood that good prenatal care improves the health of parents and newborns. However, there is very little research about how prenatal care helps people with intellectual and developmental disabilities. 
3. HCBS waivers: Medicaid Home and Community-Based Services (HCBS) waivers give people with intellectual and developmental disabilities the support they need to thrive in their communities. We want to know how these waivers affect prenatal care for people with intellectual and developmental disabilities.

Study Recruitment

We want to hear about your pregnancy experience.

We are looking for people with intellectual and developmental disabilities to participate in an hour-long virtual interview about their experiences with pregnancy for our research study. Participants will receive an honorarium for their time.

You may be eligible if you:

• Have a documented IDD diagnosis
• Were pregnant in the last 10 years
• Used Medicaid during pregnancy
• Be 18 years of age or older

If you are interested in participating, please email us at promidd@bu.edu