Publications & Presentations
May 2018
The 7th manuscript on the LIBRE Project is available online:
Levi B, Kraft CT, Shapiro GD, Trinh NT, Dore EC, Jeng J, Lee AF, Acton A, Marino M, Jette A, Armstrong EA, Schneider JC, Kazis LE, Ryan CM. The Associations of Gender With Social Participation of Burn Survivors: A Life Impact Burn Recovery Evaluation Profile Study. Journal of Burn Care & Research. 2018 May 4. doi:10.1093/jbcr/iry007 [Epub ahead of print]
April 2018
The LIBRE team attended the the American Burn Association conference in Chicago and presented the following abstracts:
Measuring Social Integration using the LIBRE Profile: Reliability and Validity Assessments (correlative)
Social Interactions and Social Activities after Burn Injury: A Life Impact Burn Recovery Evaluation (LIBRE) Study (poster)
Extreme Response Style Bias in Burn Survivors: The LIBRE Project (poster)
November 2017
The 6th manuscript on the LIBRE Project is available online:
Schneider JC, Shie VL, Espinoza BA, Shapiro GD, Lee A, Acton A, Marino M, Jette A, Kazis LE, Ryan CM. The impact of work-related burn injury on social reintegration outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) study. Arch Phys Med Rehabil. 2017 Nov 26. doi: 10.1016/j.apmr.2017.10.022. [Epub ahead of print]
October 2017
The LIBRE team attended the World Burn Congress (WBC) for its fourth year in a row! This new video, filmed at Phoenix World Burn Congress 2017, highlights the impact of burn injury on social participation and speaks to the need for a tool such as the LIBRE Profile to measure social recovery.
The 5th manuscript on the LIBRE Project is available online:
Grieve B, Shapiro GD, Wibbenmeyer L, Acton A, Lee AF, Marino M, Jette A, Schneider JC, Kazis LE, Ryan CM. Long-Term Social Reintegration Outcomes for Burn Survivors With and Without Peer Support Attendance: A Life Impact Burn Recovery Evaluation (LIBRE) Study. Arch PMR . 2017 Oct 31. doi: 10.1016/j.apmr.2017.10.007. [Epub ahead of print]
September 2017
The 4th manuscript on the LIBRE Project is available online:
Marino M, Dore EC, Ni P, Ryan CM, Schneider JC, et al. Developing Item Response Theory-Based Short Forms to Measure the Social Impact of Burn Injuries. Arch Phys Med Rehabil. 2017 Sep 6;PubMed PMID: 28888383. [Epub ahead of print].
http://www.sciencedirect.com/science/article/pii/S0003999317310729
May 2017
The 3rd manuscript on the LIBRE Project was published on the development of the LIBRE Profile:
Kazis LE, Marino ME, Ni, P., Soley-Bori M, Amaya F, Dore EC, Ryan CM, Schneider JC, Shie V, Acton A, and Jette AM. Development of the Life Impact Burn Recovery Evaluation (LIBRE) Profile: Assessing Burn Survivors’ Social Participation. Quality of Life Research (2017) DOI 10.1007/s11136-017-1588-3
Development of the Life Impact Burn Recovery Evaluation (LIBRE) Profile
March 2017
Emily Dore, MSW presented a poster at the American Burn Association conference in Boston on the development of the LIBRE Profile-Short Forms called: Measuring the Social Impact of Burns: The LIBRE Profile.
January 2017
The 2nd manuscript on the LIBRE Project was published on the process of item development:
Marino M, Soley-Bori M, Jette AM, Slavin MD, Ryan CM, Schneider JC, Acton A, Amaya F, Rossi M, Soria-Saucedo R, Resnik L, and Kazis LE. (2017). Measuring the social impact of burns on survivors. Journal of Burn Care and Research, 38(1), e377-e383. doi: 10.1097/BCR.0000000000000398
November/December 2016
The 1st manuscript on the LIBRE Project was published on the development of the conceptual framework:
Marino M, Soley-Bori M, Jette AM, Slavin MD, Ryan CM, Schneider JC, Resnik L, Acton A, Amaya F, Rossi M, Soria-Saucedo R, and Kazis LE. (2016). Development of a conceptual framework to measure the social impact of burns. Journal of Burn Care and Research, 37(6), e569-e578. doi: 10.1097/BCR.0000000000000358
October 2016
The LIBRE team attended the World Burn Congress (WBC) for its third year in a row! If you could not attend WBC 2016, and missed the LIBRE Project presentation updates, you can view the presentation by clicking LIBRE Project Update at WBC 2016.
Also, Alan Jette, PhD presented a poster at the American Congress of Rehabilitation Medicine conference in Chicago on the abstract for Development of the LIBRE Profile: Assessing the Social Impact of Burns.
May 2016
The LIBRE Clinical Advisory Board and Staff attended the American Burn Association annual meeting in Las Vegas this month. Ten abstracts were presented, as described below:
Laura C. Simko, BS presented: The Impact of Burn Injury on Relating with Strangers: A Life Impact Burn Recovery Evaluation (LIBRE) Study as a poster. It won the Best in Category award!
Vivian Shie, BS presented: The Impact of Work-Related Injury on Employment Reintegration Outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) Study as a poster.
Colleen M. Ryan, MD presented: The Effects of Burn Size on Long-Term Community Reintegration Outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) Study as the plenary presentation.
Gabriel Shapiro, PhD presented: Factor Structure of the Life Impact Burn Recovery Evaluation Questionnaire (LIBRE – 192) as a poster.
Jeremy Goverman, MD presented: Psychosocial Outcomes 10 Years Post-Burn: A Life Impact Burn Recovery Evaluation (LIBRE) Study as an oral presentation.
Emily Dore, MSW presented: Impact of Burns on Family Function: A Life Impact Burn Recovery Evaluation (LIBRE) Study as a poster. It won the Best in Category award!
Brian Grieve, BA presented: Assessment of the Role of Peer Support Groups in psychosocial recovery from burn injury: A Life Impact Burn Recovery Evaluation (LIBRE) Study as an oral presentation.
Benjamin Levi, MD presented: The Impact of Gender on Long-Term Community Reintegration Following Burn Injury: A Life Impact Burn Recovery Evaluation (LIBRE) Study as an oral presentation.
Sara Cartwright, MD presented: Burn Survivors Injured as Children Exhibit Resilience in Long-Term Community Integration Outcomes: A Life Impact Burn Recovery Evaluation (LIBRE) Study as a poster.
John T. Schulz III, MD presented The Impact of Education on Quality of Burn Survival: A Life Impact Burn Recovery Evaluation (LIBRE) Study as a poster.
October 2015
Drs. Lewis Kazis and Colleen Ryan described the origin and goals of the LIBRE Project and how collaboration is an integral part to its success. This presentation is based off of a talk given at Phoenix Society’s World Burn Congress in 2015. This is Part 1 of the presentation, and Part 2 will be available spring 2016.
LIBRE Presentation at Phoenix Society’s World Burn Congress 2015, Part 1
July 2015
LIBRE staff recorded 2 presentations presenting the background and initial phases of the LIBRE Project. These presentations are based off of presentations given throughout 2014 and 2015 at professional meetings and conferences. The videos include powerpoint slides, audio and closed captioning with the hope of making information about the LIBRE Project easily accessible for all. You can view both videos below.
Presentation 1: LIBRE Background and Significance
Presentation 2: Conceptual Framework and Item Development
April 2015
The abstract “Social Participation of Burn Survivors: A Conceptual Framework” was accepted at the American Burn Association’s Annual Meeting in Chicago. The abstract focused on the development of the conceptual framework guiding the LIBRE Project and the development of items for the questionnaire. Molly Marino, MPH, presented the abstract during the meeting that took place from April 21 – 25, 2015.
ABA Abstract “Social Participation of Burn Survivors: A Conceptual Framework”:
October 2014
Molly Marino, MPH, presented a poster at the International Society for Quality of Life Research (ISOQOL) conference in Berlin on October 17, 2014. The poster focused on the conceptual framework that guides the LIBRE Project and on the development of the items to be included in the LIBRE questionnaire.
ISOQOL 2014 Poster
August 2014
Drs. Lew Kazis, Principal Investigator, and Colleen Ryan, co-investigator of the LIBRE Project, presented on the Burn Outcomes Questionnaires (BOQ) for children and young adults at the Kaiser Permanente Population Health Strategy Webinar on August 28, 2014. The BOQ surveys laid the groundwork for what the LIBRE Project is doing with adults. You can read more about the presentation in LIBRE news.
You can also view the Presentation Slides without audio or you can watch the full webinar. Use the time bar at the bottom of the webinar to skip the introductions and go right to the presentation:
- 09:28: Dr. Kazis – using the BOQ with children and clinical trials
- 27:40: Dr. Ryan – using the BOQ with young adults and clinical applications
April 2014
Molly Marino, MPH, a current PhD student, presented a poster on LIBRE at the Boston University’s Scholars Day on April 15, 2014. The poster focused on the development of the conceptual framework and item pool that will guide the creation of the LIBRE questionnaire.
Poster Presentation at BU Scholars Day
March 2014
In March 2014, Lewis Kazis, ScD, principal investigator for the LIBRE Project, presented an overview of LIBRE Project at the American Burn Association Annual Meeting in Boston, MA. To see a copy of the presentations, please click below.
PowerPoint Presentation at the American Burn Association March 2014
