Author: Melinda Marie Rossi
LIBRE in Berlin: ISOQOL Conference October 2014
While this post is a little belated, we would be remiss to not mention LIBRE’s recent trip to Berlin! Back in October 2014, Molly Marino, LIBRE staff member and current PhD candidate, flew across the Atlantic to represent LIBRE at the International Society for Quality of Life Research (ISOQOL) Annual Conference. The theme of the […]
World Burn Congress Success!
We just got back in the office from a few days in sunny Anaheim, CA attending the Phoenix World Burn Congress (WBC). We’re still exhausted from an exhilarating few days meeting burn survivors, hearing amazing survivor stories, conducting surveys, and grabbing some California sun. This conference marked the official beginning of the second phase of […]
Drs. Kazis and Ryan Present on the Burn Outcomes Questionnaires (BOQ)
Drs. Lewis Kazis, Principal Investigator, and Colleen Ryan, co-investigator of the LIBRE project, presented at the Kaiser Permanente Population Health Strategy Webinar on August 28, 2014. Their presentation highlighted some of the excellent work they have done over the past decade to improve the care received by burn survivors. Drs. Kazis and Ryan spoke about […]
LIBRE at 9th Annual New England Walk for Burn Survivors
Saturday was a beautiful day in Boston for the 9th Annual New England Walk for Burn Survivors put on by the Burn Survivors of New England (BSoFNE). A team from the LIBRE project attended the gorgeous walk around the Charles River to support the great work of our friends at the BSoFNE. The walk raised […]
Interviews Complete!
We have just completed the last of our interviews for this phase of the LIBRE project, and we couldn’t be happier! The feedback and insight we received on the questions we hope to include in the LIBRE measurement tool was wonderful. We’re also so grateful for the interest of the burn survivor community and the […]
Interviews Almost Complete: Only a Few More Burn Surivors Needed!
We’ve busy over at the LIBRE project, completing interviews with some amazing burn survivors. The interest from burn survivors in our project has blown us away and we feel so fortunate for the insightful, honest feedback we’ve received so far in these interviews. That being said, we can still take a few more burn survivors […]
Burn Survivor Interviews Have Begun
LIBRE is currently recruiting burn survivors to take part in one-on-one interviews. Participants will test questions that may be included in the final LIBRE measurement tool. See here for more details.
4 Focus Groups Completed!
During March 2014, LIBRE held 4 focus groups with burn survivors and clinicians. Feedback provided by these focus groups is currently being used to help develop the LIBRE measurement tool. This ensures that the questions asked in tool accurately reflect the burn recovery experience. A great deal of gratitude goes out to everyone who participated […]