Community Advisory Board

Purpose: To provide insight on how we can effectively assess the impact of Medicaid, HCBS waivers, and prenatal care on pregnancy outcomes for people with intellectual and developmental disabilities (IDD).

Goal: To collaborate with all CAB members throughout the research process. By doing so, we plan to gain a solid understanding of IDD community’s needs and be inclusive towards their perspectives.

This will be achieved by:

• Being open to receiving feedback and hearing suggestions on elements of the research such as the study design, data collection, and how we share our study findings.
• Meeting with CAB members every 4-6 months via Zoom to participate in the decision-making process.

Email: promidd@bu.edu

Members:

Lindsay Brillhart

Lindsay is a mom of 2 girls. She is a strong self-advocate for her kids and others. She has (formally) worked with the ARC of Hamilton County and Hamilton County Developmental Disability Services. She currently resides in Cincinnati with her partner Phil and 2 kids: Julianna, and Sara. She was once on the People First of Ohio board. She is a Partners in Policy graduate. She is also a graduate of PATHS (Providing Alternative Thinking Strategies). In her spare time, she loves to travel and to meet new people.

Jamie Junior

Jamie is a cis-gender, African-American woman with Cerebral Palsy. She is the mother to one male child who is also disabled, and the youngest of six siblings. She currently works as the Advocacy and Community Education Coordinator with the Disability Network of Wayne County-Detroit. Jamie has been advocating for herself and others for more than 25 years, and believes that everyone has the right to achieve their life goals and feel valued.

Jamie’s advocacy efforts focus on issues that have a desperate impact on the lives of individuals of Color with Disabilities, and she believes the right to live independently, love as we choose, and successful parenting are among those issues.

Jamie serves with the Michigan Developmental Disabilities Council as the Vice Chairperson and is the Co-Chair of the Constituents Voice advisory board and a member of the Recipient Rights advisory and appeals committee for the Detroit Wayne integrated Health Network which is the county’s community mental health agency.

She is a graduate of and Trainee with the Michigan Leadership Education in Neuro-developmental and Related Disabilities (MI-LEND), which is an interdisciplinary leadership training program that prepares Michigan’s emerging leaders with the goal of improving the health of infants, children, and adolescents with or at risk for neuro-developmental disabilities and other related health care needs.

Jamie is also currently pursuing her BA in Business Leadership.

Chelsea Tighe, M.Ed. 

With over 25 years of experience in the field of disabilities and a background in developmental disabilities, early intervention, childcare, and family support, Chelsea’s work is firmly rooted in increasing positive outcomes for individuals with disabilities.  As the Executive Director of The Association for Successful Parenting (TASP), a non-profit committed to supporting families where the parent(s) have a cognitive disability, Chelsea works closely with a committed Board of Directors, including parents with intellectual and/or developmental disabilities (IDD), to reach professionals and self-advocates across the country, and internationally, to improve outcomes for parents with IDD and their children. Prior to joining TASP in 2017, Chelsea worked at the Kennedy Krieger Institute in Baltimore, Maryland, where she was the Director of the Family Support Services Program at KKI and the Director of the Growing Together Program at PACT, the only supported parenting program in the state. 

Quiana Mayo 

Quiana is the proud mother of 2 young men and 2 young grandsons. Quiana is a strong advocate for disability and children’s rights. She sits at many tables in order to make positive systems changes. She is on the board of TASP, The Association of Successful Parenting. She is the Co-chair and Co-grant Leader for Proud Parents-Leadership & Encouragement for ALL Parents. She finds resources to add to the website and offers peer support. She works on making diversity & disability awareness videos, as well as making public documents easy to read so they are accessible to everyone.  

Quiana also attends many webinars and trainings to continue to learn and help her community. She wants equality & equity for all. 

Kayla Baylor

My name is Kayla Baylor. I am a single mom of a young daughter. Both myself and my daughter are on the Autism Spectrum and have various medical issues. I am passionate about advocacy for others that have varied abilities as myself. I am always looking for new programs to become involved in to broaden not only my own knowledge but also share with others my own experiences in various aspects of life. I want there to be able to be more options and less limitations for my daughter than there was for me, even today.