Tewolde S, Skotko BG, Santoro L, Pescador Jim\u00e9nez M, Santoso A, Rubenstein E. The impact of distance to specialty and primary care on health outcomes and service use in adults with Down Syndrome<\/a>. Journal of Intellectual Disabilities 2026 0(0): 1-13. doi:10.1177\/17446295261476518<\/p>\n Khor B, Spinazzi N, Patel L et al. Vaccination in individuals with Down syndrome: immune vulnerability, safety, efficacy, and opportunities<\/a>. npj Vaccines 2026. doi:10.1038\/s41541-026-01489-7<\/p>\n Rosenberg SB, Estrada JAG, Tewolde S, et al. Medicaid home and community based services are vital for adults with intellectual and developmental disabilities: A descriptive study of service use among all adult enrollees, 2022<\/a>. Disability and Health Journal 2026;102058. doi:10.1016\/j.dhjo.2026.102058<\/p>\n Estrada JAG, Cesare N, Barger K, et al. Fertility rates among women with intellectual and developmental disability enrolled in Medicaid and\/or Medicare, 2011-2022<\/a>. Paediatric and Perinatal Epidemiology 2026. doi:10.1111\/ppe.70121<\/p>\n <\/p>\n Rubenstein E, Toth M, Tewolde S. Autism among Adults with Down Syndrome: Prevalence, Medicaid Usage, and Co-Occurring Conditions<\/a>. Jorunal of Autism and Developmental Disorders 2025;55(10):3670-3677. doi:10.1007\/s10803-024-06484-2<\/p>\n Levine AA, Cole MB, Michals AL, Wang N, Rubenstein E. Inequities in Medicaid home- and community-based services waiver enrollment among people with intellectual and\/or developmental disabilities: A nationwide claims study<\/a>. Disability and Health Journal 2025;18(3):101676. doi:10.1016\/j.dhjo.2024.101676<\/p>\n LJ Droscha, Chung S, Li-Khan Z, Scott A, Rubenstein E. Perception of four intellectual and developmental disabilities based on search engine and news portrayal<\/a>. PLOS One 2025;20(2):e0316928. doi:10.1371\/journal.pone.0316928<\/p>\n Higgins A, Tewolde E, Page SD, et al. The occurrence of obstructive sleep apnea and its association with Alzheimer dementia in Medicaid-enrolled adults with Down syndrome, 2011-2019<\/a>. American Journal of Medical Genetics. 2025. doi:10.1002\/ajmg.a.64241<\/p>\n Rubenstein E, Santoro SL. The value of population-level data and looking toward the future<\/a>. Paediatric and Perinatal Epidemiology. 2025;0:1-3. doi:10.1111\/ppe.70038<\/p>\n Rapp, E. Down syndrome versus dementia<\/a>. Alzheimer’s & Dementia. 2025;21(6):e70204. doi:10.1002\/alz.70204<\/p>\n Tewolde S, Rosenberg SB, Estrada JAG, et al. Epidemiology of Alzheimer Disease and Related Dementia Among Medicare and Medicaid Enrolled Autistic Adults, 2011-2019<\/a>. Autism Res. 2025;18(5):1077-1086. doi:<\/span>10.1002\/aur.70035<\/span><\/p>\n Flores-Aguilar L, Hamlett ED, Araya P, et al. Imagine, Discover, Inspire: Proceedings of the 4th International Conference of the Trisomy 21 Research Society<\/a>. Neuromolecular Med. 2025;27(1):5. doi:10.1007\/s12017-024-08824-y<\/p>\n Scott A, Gould R, Quidore L, et al.Stress, Anxiety and Coping in Adults With Down Syndrome: An Exploratory Co-Research Study<\/a>. J Appl Res Intellect Disabil. 2025;38(1):e13311. doi:10.1111\/jar.13311<\/p>\n Tewolde S, Scott A, Higgins A, et al. Doubly Marginalized: The Interplay of Racism and Disability in Outcomes for Minoritized People With Down Syndrome<\/a>. Epidemiology. 2025;36(1):66-75. doi:10.1097\/EDE.0000000000001789<\/p>\n <\/p>\n Rubenstein E, Tewolde S, Skotko BG, Michals A, Fortea J. Occurrence of mosaic Down syndrome and prevalence of co-occurring conditions in Medicaid enrolled adults, 2016-2019<\/a>. Am J Med Genet C Semin Med Genet. 2024;196(4):e32097. doi:10.1002\/ajmg.c.32097<\/p>\n Rubenstein E, Tewolde S, Michals A, et al. Alzheimer Dementia Among Individuals With Down Syndrome<\/a>. JAMA Netw Open. 2024;7(9):e2435018. doi:10.1001\/jamanetworkopen.2024.35018<\/p>\n Levine AA, Cole MB, Michals AL, Wang N, Rubenstein E. Inequities in medicaid home- and community-based services waiver enrollment among people with intellectual and\/or developmental disabilities: A nationwide claims-based analysis<\/a>. Disabil Health J. 2024:101676. doi:10.1016\/j.dhjo.2024.101676<\/p>\n Rubenstein E, Toth M, Tewolde S. Autism Among Adults with Down Syndrome: Prevalence, Medicaid Usage, and Co-Occurring Conditions<\/a>. J Autism Dev Disord. 2024. doi:10.1007\/s10803-024-06484-2<\/p>\n Van Dyke J, Rosenberg SA, Crume T, et al. Child Age at Time of First Maternal Concern and Time to Services Among Children with Autism Spectrum Disorder<\/a>. J Dev Behav Pediatr. 2024;45(4):e293-e301. doi:10.1097\/DBP.0000000000001283<\/p>\n Rubenstein E, Tewolde S, Levine AA, et al. Medicare, Medicaid, and dual enrollment for adults with intellectual and developmental disabilities<\/a>. Health Serv Res. 2024;59(3):e14287. doi:10.1111\/1475-6773.14287<\/p>\n Furnier SM, Ellis Weismer S, Rubenstein E, et al. Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development<\/a>. Autism. 2024;28(5):1135-1149. doi:10.1177\/13623613231193194<\/p>\n Furnier SM, Gangnon R, Daniels JL, et al. Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning<\/a>. Autism Res. 2024;17(3):650-667. doi:10.1002\/aur.3107<\/p>\n De La Garza E, Scott A, Hillerstrom H, Hendrix J, Rubenstein E. Caregivers’ concerns and supports needed to care for adults with Down syndrome<\/a>. Am J Med Genet C Semin Med Genet. 2024;196(1):e32041. doi:10.1002\/ajmg.c.32041<\/p>\n <\/p>\n Rubenstein E, Tewolde S, Michals A, Fox M, Wang N. Prevalence of Autism Among Medicaid-Enrolled Adults<\/a>. JAMA Psychiatry. 2023;80(12):1284-1287. doi:10.1001\/jamapsychiatry.2023.3708<\/p>\n Rubenstein E, Michals A, Wang N, et al. Medicaid Enrollment and Service Use Among Adults With Down Syndrome<\/a>. JAMA Health Forum. 2023;4(8):e232320. doi:10.1001\/jamahealthforum.2023.2320<\/p>\n Rubenstein E, Kyprianou N, Kumar PS, et al. Healthcare and Behavior Changes for Adults With Down Syndrome 1-Year Into COVID-19<\/a>. Am J Intellect Dev Disabil. 2023;128(4):273-281. doi:10.1352\/1944-7558-128.4.273<\/p>\n Kirova AM, Jakab T, Bartsch G, et al. Developing and implementing a public health co-research program for Special Olympics athletes<\/a>. Res Involv Engagem. 2023;9(1):44. doi:10.1186\/s40900-023-00450-5<\/p>\n Bock E, Brochu P, Rubenstein E. Homelessness and Disability in Public-School Students<\/a>. Pediatrics. 2023;151(4). doi:10.1542\/peds.2022-059885<\/p>\n Kyprianou N, Hendrix J, Hillerstrom H, Grimm R, Kirova AM, Rubenstein E. Caregivers’ perception of adults with Down syndrome willingness to participate in research<\/a>. J Intellect Disabil Res. 2023;67(4):352-361. doi:10.1111\/jir.12999<\/p>\n <\/p>\n Garc\u00eda MH, Petersen JM, Parker SE, Rubenstein E, Werler MM. Medication use during pregnancy among women with congenital physical disabilities<\/a>. Birth Defects Res. 2022;114(14):785-796. doi:10.1002\/bdr2.2048<\/p>\n Rubenstein E, Ehrenthal DB, Nobles J, et al. Fertility rates in women with intellectual and developmental disabilities in Wisconsin Medicaid<\/a>. Disabil Health J. 2022;15(3):101321. doi:10.1016\/j.dhjo.2022.101321<\/p>\n Rubenstein E, Bock E, Brochu P, Byrne T. Quantifying the intersection of disability and homelessness in Massachusetts public schools in 2018-2019<\/a>. Child Care Health Dev. 2022;48(4):569-577. doi:10.1111\/cch.12961<\/p>\n Ransohoff JI, Sujin Kumar P, Flynn D, Rubenstein E. Reproductive and pregnancy health care for women with intellectual and developmental disabilities: A scoping review<\/a>. J Appl Res Intellect Disabil. 2022;35(3):655-674. doi:10.1111\/jar.12977<\/p>\n Huezo Garc\u00eda M, Parker SE, Petersen JM, Rubenstein E, Werler MM. Birth outcomes among women with congenital neuromuscular disabilities<\/a>. Disabil Health J. 2022;15(2):101259. doi:10.1016\/j.dhjo.2021.101259<\/p>\n Wiggins LD, Tian LH, Rubenstein E, et al. Features that best define the heterogeneity and homogeneity of autism in preschool-age children: A multisite case-control analysis replicated across two independent samples<\/a>. Autism Res. 2022;15(3):539-550. doi:10.1002\/aur.2663<\/p>\n Rubenstein E, Rice C, Hollingue C, Tsai PC, Stewart L, Daniele Fallin M. Remembering Dr Li-Ching Lee, a pioneer of global autism research<\/a>. Autism. 2022;26(2):562-563. doi:10.1177\/13623613211059641<\/p>\n <\/p>\n Rubenstein E, Ehrenthal DB, Mallinson DC, Bishop L, Kuo HH, Durkin MS. Birth outcomes affecting infants of mothers with intellectual and developmental disabilities<\/a>. Paediatr Perinat Epidemiol. 2021;35(6):706-716. doi:10.1111\/ppe.12765<\/p>\n Ellis Weismer S, Rubenstein E, Wiggins L, Durkin MS. A Preliminary Epidemiologic Study of Social (Pragmatic) Communication Disorder Relative to Autism Spectrum Disorder and Developmental Disability Without Social Communication Deficits<\/a>. J Autism Dev Disord. 2021;51(8):2686-2696. doi:10.1007\/s10803-020-04737-4<\/p>\n Rubenstein E. #Bias: The Opportunities and Challenges of Surveys That Recruit and Collect Data of Autistic Adults Online. Autism Adulthood<\/a>. 2021;3(2):120-128. doi:10.1089\/aut.2020.0031<\/p>\n Wiggins LD, Rubenstein E, Windham G, et al. Evaluation of sex differences in preschool children with and without autism spectrum disorder enrolled in the study to explore early development<\/a>. Res Dev Disabil. 2021;112:103897. doi:10.1016\/j.ridd.2021.103897<\/p>\n Rubenstein E, Kalkbrenner A, Volk H, McGuinn L. Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020)<\/a>. J Autism Dev Disord. 2021;51(5):1808-1809. doi:10.1007\/s10803-020-04762-3<\/p>\n Bishop L, McLean KJ, Rubenstein E. Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system<\/a>. Autism. 2021;25(3):831-839. doi:10.1177\/1362361320942982<\/p>\n <\/p>\n Rubenstein E, Ehrenthal DB, Mallinson DC, Bishop L, Kuo HH, Durkin M. Pregnancy complications and maternal birth outcomes in women with intellectual and developmental disabilities in Wisconsin Medicaid<\/a>. PLoS One. 2020;15(10):e0241298. doi:10.1371\/journal.pone.0241298<\/p>\n Rubenstein E, DuBois L, Sadowsky M, et al. Evaluating the potential of Special Olympics fitness models as a health intervention for adults with intellectual disabilities<\/a>. Disabil Health J. 2020;13(2):100850. doi:10.1016\/j.dhjo.2019.100850<\/p>\n Rubenstein E, Hartley S, Bishop L. Epidemiology of Dementia and Alzheimer Disease in Individuals With Down Syndrome<\/a>. JAMA Neurol. 2020;77(2):262-264. doi:10.1001\/jamaneurol.2019.3666<\/p>\n <\/p>\n Rubenstein E, Croen L, Lee LC, et al. Community-based service use in preschool children with autism spectrum disorder and associations with insurance status<\/a>. Res Autism Spectr Disord. 2019;66. doi:10.1016\/j.rasd.2019.101410<\/p>\n Rubenstein E. Is the Autism Boom Headed for Medicaid? Patterns in the Enrollment of Autistic Adults in Wisconsin Medicaid, 2008-2018<\/a>. Autism Res. 2019;12(10):1541-1550. doi:10.1002\/aur.2173<\/p>\n Bishop-Fitzpatrick L. The Physical and Mental Health of Middle Aged and Older Adults on the Autism Spectrum and the Impact of Intellectual Disability<\/a>. Res Autism Spectr Disord. 2019;63:34-41. doi:10.1016\/j.rasd.2019.01.001<\/p>\n Wiggins LD, Rubenstein E, Daniels J, et al. A Phenotype of Childhood Autism Is Associated with Preexisting Maternal Anxiety and Depression<\/a>. J Abnorm Child Psychol. 2019;47(4):731-740. doi:10.1007\/s10802-018-0469-8<\/p>\n Levy SE, Pinto-Martin JA, Bradley CB, et al. Relationship of Weight Outcomes, Co-Occurring Conditions, and Severity of Autism Spectrum Disorder in the Study to Explore Early Development<\/a>. J Pediatr. 2019;205:202-209. doi:10.1016\/j.jpeds.2018.09.003<\/p>\n Rubenstein E, Wiggins LD, Schieve LA, et al. Associations between parental broader autism phenotype and child autism spectrum disorder phenotype in the Study to Explore Early Development<\/a>. Autism. 2019;23(2):436-448. doi:10.1177\/1362361317753563<\/p>\n Rubenstein E. A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder<\/a>. Autism Res. 2019;12(1):20-25. doi:10.1002\/aur.2010<\/p>\n Rubenstein E, Young JC, Croen LA, et al. Brief Report: Maternal Opioid Prescription from Preconception Through Pregnancy and the Odds of Autism Spectrum Disorder and Autism Features in Children<\/a>. J Autism Dev Disord. 2019;49(1):376-382. doi:10.1007\/s10803-018-3721-8<\/p>\n <\/p>\n Rubenstein E, Schieve L, Wiggins L, et al. Trends in documented co-occurring conditions in children with autism spectrum disorder, 2002-2010<\/a>. Res Dev Disabil. 2018;83:168-178. doi:10.1016\/j.ridd.2018.08.015<\/p>\n Rubenstein E, Durkin MS, Harrington RA, Kirby RS, Schieve LA, Daniels J. Relationship Between Advanced Maternal Age and Timing of First Developmental Evaluation in Children with Autism<\/a>. J Dev Behav Pediatr. 2018;39(8):601-609. doi:10.1097\/DBP.0000000000000601<\/p>\n Rubenstein E. Broader autism phenotype in parents of children with autism: a systematic review of percentage estimates<\/a>. J Child Fam Stud. 2018;27(6):1705-1720. doi:10.1007\/s10826-018-1026-3<\/p>\n Rubenstein E, Daniels J, Schieve LA, et al. Trends in Special Education Eligibility Among Children With Autism Spectrum Disorder, 2002-2010<\/a>. Public Health Rep. 2018;133(1):85-92. doi:10.1177\/0033354917739582<\/p>\n Rubenstein E, Schieve L, Bradley C, et al. The prevalence of gluten free diet use among preschool children with autism spectrum disorder<\/a>. Autism Res. 2018;11(1):185-193. doi:10.1002\/aur.1896<\/p>\n <\/p>\n Rubenstein E, Edmondson Pretzel R, Windham GC, et al. The Broader Autism Phenotype in Mothers is Associated with Increased Discordance Between Maternal-Reported and Clinician-Observed Instruments that Measure Child Autism Spectrum Disorder<\/a>. J Autism Dev Disord. 2017;47(10):3253-3266. doi:10.1007\/s10803-017-3248-4<\/p>\n Blake JM, Rubenstein E, Tsai PC, et al. Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh<\/a>. Autism. 2017;21(5):611-621. doi:10.1177\/1362361316683890<\/p>\n Rubenstein E, Wiggins LD, Lee LC. A Review of the Differences in Developmental, Psychiatric, and Medical Endophenotypes Between Males and Females with Autism Spectrum Disorder<\/a>. J Dev Phys Disabil. 2015;27(1):119-139. doi:10.1007\/s10882-014-9397-x<\/p>\n2025<\/h2>\n
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