Rosenberg SB, Estrada JAG, Tewolde S, et al. Medicaid home and community based services are vital for adults with intellectual and developmental disabilities: A descriptive study of service use among all adult enrollees, 2022<\/a>. Disability and Health Journal 2026;102058. doi:https:\/\/doi.org\/10.1016\/j.dhjo.2026.102058<\/p>\n Estrada JAG, Cesare N, Barger K, et al. Fertility rates among women with intellectual and developmental disability enrolled in Medicaid and\/or Medicare, 2011-2022<\/a>. Paediatric and Perinatal Epidemiology 2026. doi:10.1111\/ppe.70121<\/p>\n <\/p>\n Rubenstein E, Toth M, Tewolde S. Autism among Adults with Down Syndrome: Prevalence, Medicaid Usage, and Co-Occurring Conditions<\/a>. Jorunal of Autism and Developmental Disorders 2025;55(10):3670-3677. doi:10.1007\/s10803-024-06484-2<\/p>\n Levine AA, Cole MB, Michals AL, Wang N, Rubenstein E. Inequities in Medicaid home- and community-based services waiver enrollmetn among people with intellectual and\/or developmental disabilities: A nationwide claims study<\/a>. Disability and Health Journal 2025;18(3):101676. doi:10.1016\/j.dhjo.2024.101676<\/p>\n LJ Droscha, Chung S, Li-Khan Z, Scott A, Rubenstein E. Perception of four intellectual and developmental disabilities based on search engine and news portrayal<\/a>. PLOS One 2025;20(2):e0316928. doi:10.1371\/journal.pone.0316928<\/p>\n Higgins A, Tewolde E, Page SD, et al. The occurrence of obstructive sleep apnea and its association with Alzheimer dementia in Medicaid-enrolled adults with Down syndrome, 2011-2019<\/a>. American Journal of Medical Genetics. 2025. doi:10.1002\/ajmg.a.64241<\/p>\n Rubenstein E, Santoro SL. The value of population-level data and looking toward the future<\/a>. Paediatric and Perinatal Epidemiology. 2025;0:1-3. doi:10.1111\/ppe.70038<\/p>\n Rapp, E. Down syndrome versus dementia<\/a>. Alzheimer’s & Dementia. 2025;21(6):e70204. doi:10.1002\/alz.70204<\/p>\n Tewolde S, Rosenberg SB, Estrada JAG, et al. Epidemiology of Alzheimer Disease and Related Dementia Among Medicare and Medicaid Enrolled Autistic Adults, 2011-2019<\/a>. Autism Res. 2025;18(5):1077-1086. doi:<\/span>10.1002\/aur.70035<\/span><\/p>\n Flores-Aguilar L, Hamlett ED, Araya P, et al. Imagine, Discover, Inspire: Proceedings of the 4th International Conference of the Trisomy 21 Research Society<\/a>. Neuromolecular Med. 2025;27(1):5. doi:10.1007\/s12017-024-08824-y<\/p>\n Scott A, Gould R, Quidore L, et al.Stress, Anxiety and Coping in Adults With Down Syndrome: An Exploratory Co-Research Study<\/a>. J Appl Res Intellect Disabil. 2025;38(1):e13311. doi:10.1111\/jar.13311<\/p>\n Tewolde S, Scott A, Higgins A, et al. Doubly Marginalized: The Interplay of Racism and Disability in Outcomes for Minoritized People With Down Syndrome<\/a>. Epidemiology. 2025;36(1):66-75. doi:10.1097\/EDE.0000000000001789<\/p>\n <\/p>\n Rubenstein E, Tewolde S, Skotko BG, Michals A, Fortea J. Occurrence of mosaic Down syndrome and prevalence of co-occurring conditions in Medicaid enrolled adults, 2016-2019<\/a>. Am J Med Genet C Semin Med Genet. 2024;196(4):e32097. doi:10.1002\/ajmg.c.32097<\/p>\n Rubenstein E, Tewolde S, Michals A, et al. Alzheimer Dementia Among Individuals With Down Syndrome<\/a>. JAMA Netw Open. 2024;7(9):e2435018. doi:10.1001\/jamanetworkopen.2024.35018<\/p>\n Levine AA, Cole MB, Michals AL, Wang N, Rubenstein E. Inequities in medicaid home- and community-based services waiver enrollment among people with intellectual and\/or developmental disabilities: A nationwide claims-based analysis<\/a>. Disabil Health J. 2024:101676. doi:10.1016\/j.dhjo.2024.101676<\/p>\n Rubenstein E, Toth M, Tewolde S. Autism Among Adults with Down Syndrome: Prevalence, Medicaid Usage, and Co-Occurring Conditions<\/a>. J Autism Dev Disord. 2024. doi:10.1007\/s10803-024-06484-2<\/p>\n Van Dyke J, Rosenberg SA, Crume T, et al. Child Age at Time of First Maternal Concern and Time to Services Among Children with Autism Spectrum Disorder<\/a>. J Dev Behav Pediatr. 2024;45(4):e293-e301. doi:10.1097\/DBP.0000000000001283<\/p>\n Rubenstein E, Tewolde S, Levine AA, et al. Medicare, Medicaid, and dual enrollment for adults with intellectual and developmental disabilities<\/a>. Health Serv Res. 2024;59(3):e14287. doi:10.1111\/1475-6773.14287<\/p>\n Furnier SM, Ellis Weismer S, Rubenstein E, et al. Using adaptive behavior scores to convey level of functioning in children with autism spectrum disorder: Evidence from the Study to Explore Early Development<\/a>. Autism. 2024;28(5):1135-1149. doi:10.1177\/13623613231193194<\/p>\n Furnier SM, Gangnon R, Daniels JL, et al. Racial and ethnic disparities in the co-occurrence of intellectual disability and autism: Impact of incorporating measures of adaptive functioning<\/a>. Autism Res. 2024;17(3):650-667. doi:10.1002\/aur.3107<\/p>\n De La Garza E, Scott A, Hillerstrom H, Hendrix J, Rubenstein E. Caregivers’ concerns and supports needed to care for adults with Down syndrome<\/a>. Am J Med Genet C Semin Med Genet. 2024;196(1):e32041. doi:10.1002\/ajmg.c.32041<\/p>\n <\/p>\n Rubenstein E, Tewolde S, Michals A, Fox M, Wang N. Prevalence of Autism Among Medicaid-Enrolled Adults<\/a>. JAMA Psychiatry. 2023;80(12):1284-1287. doi:10.1001\/jamapsychiatry.2023.3708<\/p>\n Rubenstein E, Michals A, Wang N, et al. Medicaid Enrollment and Service Use Among Adults With Down Syndrome<\/a>. JAMA Health Forum. 2023;4(8):e232320. doi:10.1001\/jamahealthforum.2023.2320<\/p>\n Rubenstein E, Kyprianou N, Kumar PS, et al. Healthcare and Behavior Changes for Adults With Down Syndrome 1-Year Into COVID-19<\/a>. Am J Intellect Dev Disabil. 2023;128(4):273-281. doi:10.1352\/1944-7558-128.4.273<\/p>\n Kirova AM, Jakab T, Bartsch G, et al. Developing and implementing a public health co-research program for Special Olympics athletes<\/a>. Res Involv Engagem. 2023;9(1):44. doi:10.1186\/s40900-023-00450-5<\/p>\n Bock E, Brochu P, Rubenstein E. Homelessness and Disability in Public-School Students<\/a>. Pediatrics. 2023;151(4). doi:10.1542\/peds.2022-059885<\/p>\n Kyprianou N, Hendrix J, Hillerstrom H, Grimm R, Kirova AM, Rubenstein E. Caregivers’ perception of adults with Down syndrome willingness to participate in research<\/a>. J Intellect Disabil Res. 2023;67(4):352-361. doi:10.1111\/jir.12999<\/p>\n <\/p>\n Garc\u00eda MH, Petersen JM, Parker SE, Rubenstein E, Werler MM. Medication use during pregnancy among women with congenital physical disabilities<\/a>. Birth Defects Res. 2022;114(14):785-796. doi:10.1002\/bdr2.2048<\/p>\n Rubenstein E, Ehrenthal DB, Nobles J, et al. Fertility rates in women with intellectual and developmental disabilities in Wisconsin Medicaid<\/a>. Disabil Health J. 2022;15(3):101321. doi:10.1016\/j.dhjo.2022.101321<\/p>\n Rubenstein E, Bock E, Brochu P, Byrne T. Quantifying the intersection of disability and homelessness in Massachusetts public schools in 2018-2019<\/a>. Child Care Health Dev. 2022;48(4):569-577. doi:10.1111\/cch.12961<\/p>\n Ransohoff JI, Sujin Kumar P, Flynn D, Rubenstein E. Reproductive and pregnancy health care for women with intellectual and developmental disabilities: A scoping review<\/a>. J Appl Res Intellect Disabil. 2022;35(3):655-674. doi:10.1111\/jar.12977<\/p>\n Huezo Garc\u00eda M, Parker SE, Petersen JM, Rubenstein E, Werler MM. Birth outcomes among women with congenital neuromuscular disabilities<\/a>. Disabil Health J. 2022;15(2):101259. doi:10.1016\/j.dhjo.2021.101259<\/p>\n Wiggins LD, Tian LH, Rubenstein E, et al. Features that best define the heterogeneity and homogeneity of autism in preschool-age children: A multisite case-control analysis replicated across two independent samples<\/a>. Autism Res. 2022;15(3):539-550. doi:10.1002\/aur.2663<\/p>\n Rubenstein E, Rice C, Hollingue C, Tsai PC, Stewart L, Daniele Fallin M. Remembering Dr Li-Ching Lee, a pioneer of global autism research<\/a>. Autism. 2022;26(2):562-563. doi:10.1177\/13623613211059641<\/p>\n <\/p>\n Rubenstein E, Ehrenthal DB, Mallinson DC, Bishop L, Kuo HH, Durkin MS. Birth outcomes affecting infants of mothers with intellectual and developmental disabilities<\/a>. Paediatr Perinat Epidemiol. 2021;35(6):706-716. doi:10.1111\/ppe.12765<\/p>\n Ellis Weismer S, Rubenstein E, Wiggins L, Durkin MS. A Preliminary Epidemiologic Study of Social (Pragmatic) Communication Disorder Relative to Autism Spectrum Disorder and Developmental Disability Without Social Communication Deficits<\/a>. J Autism Dev Disord. 2021;51(8):2686-2696. doi:10.1007\/s10803-020-04737-4<\/p>\n Rubenstein E. #Bias: The Opportunities and Challenges of Surveys That Recruit and Collect Data of Autistic Adults Online. Autism Adulthood<\/a>. 2021;3(2):120-128. doi:10.1089\/aut.2020.0031<\/p>\n Wiggins LD, Rubenstein E, Windham G, et al. Evaluation of sex differences in preschool children with and without autism spectrum disorder enrolled in the study to explore early development<\/a>. Res Dev Disabil. 2021;112:103897. doi:10.1016\/j.ridd.2021.103897<\/p>\n Rubenstein E, Kalkbrenner A, Volk H, McGuinn L. Benefits, Burden, and COVID-19: A Response to Dutheil et al. (2020)<\/a>. J Autism Dev Disord. 2021;51(5):1808-1809. doi:10.1007\/s10803-020-04762-3<\/p>\n Bishop L, McLean KJ, Rubenstein E. Epilepsy in adulthood: Prevalence, incidence, and associated antiepileptic drug use in autistic adults in a state Medicaid system<\/a>. Autism. 2021;25(3):831-839. doi:10.1177\/1362361320942982<\/p>\n <\/p>\n Rubenstein E, Ehrenthal DB, Mallinson DC, Bishop L, Kuo HH, Durkin M. Pregnancy complications and maternal birth outcomes in women with intellectual and developmental disabilities in Wisconsin Medicaid<\/a>. PLoS One. 2020;15(10):e0241298. doi:10.1371\/journal.pone.0241298<\/p>\n Rubenstein E, DuBois L, Sadowsky M, et al. Evaluating the potential of Special Olympics fitness models as a health intervention for adults with intellectual disabilities<\/a>. Disabil Health J. 2020;13(2):100850. doi:10.1016\/j.dhjo.2019.100850<\/p>\n Rubenstein E, Hartley S, Bishop L. Epidemiology of Dementia and Alzheimer Disease in Individuals With Down Syndrome<\/a>. JAMA Neurol. 2020;77(2):262-264. doi:10.1001\/jamaneurol.2019.3666<\/p>\n <\/p>\n Rubenstein E, Croen L, Lee LC, et al. Community-based service use in preschool children with autism spectrum disorder and associations with insurance status<\/a>. Res Autism Spectr Disord. 2019;66. doi:10.1016\/j.rasd.2019.101410<\/p>\n Rubenstein E. Is the Autism Boom Headed for Medicaid? Patterns in the Enrollment of Autistic Adults in Wisconsin Medicaid, 2008-2018<\/a>. Autism Res. 2019;12(10):1541-1550. doi:10.1002\/aur.2173<\/p>\n Bishop-Fitzpatrick L. The Physical and Mental Health of Middle Aged and Older Adults on the Autism Spectrum and the Impact of Intellectual Disability<\/a>. Res Autism Spectr Disord. 2019;63:34-41. doi:10.1016\/j.rasd.2019.01.001<\/p>\n Wiggins LD, Rubenstein E, Daniels J, et al. A Phenotype of Childhood Autism Is Associated with Preexisting Maternal Anxiety and Depression<\/a>. J Abnorm Child Psychol. 2019;47(4):731-740. doi:10.1007\/s10802-018-0469-8<\/p>\n Levy SE, Pinto-Martin JA, Bradley CB, et al. Relationship of Weight Outcomes, Co-Occurring Conditions, and Severity of Autism Spectrum Disorder in the Study to Explore Early Development<\/a>. J Pediatr. 2019;205:202-209. doi:10.1016\/j.jpeds.2018.09.003<\/p>\n Rubenstein E, Wiggins LD, Schieve LA, et al. Associations between parental broader autism phenotype and child autism spectrum disorder phenotype in the Study to Explore Early Development<\/a>. Autism. 2019;23(2):436-448. doi:10.1177\/1362361317753563<\/p>\n Rubenstein E. A matter of time: The necessity of temporal language in research on health conditions that present with autism spectrum disorder<\/a>. Autism Res. 2019;12(1):20-25. doi:10.1002\/aur.2010<\/p>\n Rubenstein E, Young JC, Croen LA, et al. Brief Report: Maternal Opioid Prescription from Preconception Through Pregnancy and the Odds of Autism Spectrum Disorder and Autism Features in Children<\/a>. J Autism Dev Disord. 2019;49(1):376-382. doi:10.1007\/s10803-018-3721-8<\/p>\n <\/p>\n Rubenstein E, Schieve L, Wiggins L, et al. Trends in documented co-occurring conditions in children with autism spectrum disorder, 2002-2010<\/a>. Res Dev Disabil. 2018;83:168-178. doi:10.1016\/j.ridd.2018.08.015<\/p>\n Rubenstein E, Durkin MS, Harrington RA, Kirby RS, Schieve LA, Daniels J. Relationship Between Advanced Maternal Age and Timing of First Developmental Evaluation in Children with Autism<\/a>. J Dev Behav Pediatr. 2018;39(8):601-609. doi:10.1097\/DBP.0000000000000601<\/p>\n Rubenstein E. Broader autism phenotype in parents of children with autism: a systematic review of percentage estimates<\/a>. J Child Fam Stud. 2018;27(6):1705-1720. doi:10.1007\/s10826-018-1026-3<\/p>\n Rubenstein E, Daniels J, Schieve LA, et al. Trends in Special Education Eligibility Among Children With Autism Spectrum Disorder, 2002-2010<\/a>. Public Health Rep. 2018;133(1):85-92. doi:10.1177\/0033354917739582<\/p>\n Rubenstein E, Schieve L, Bradley C, et al. The prevalence of gluten free diet use among preschool children with autism spectrum disorder<\/a>. Autism Res. 2018;11(1):185-193. doi:10.1002\/aur.1896<\/p>\n <\/p>\n Rubenstein E, Edmondson Pretzel R, Windham GC, et al. The Broader Autism Phenotype in Mothers is Associated with Increased Discordance Between Maternal-Reported and Clinician-Observed Instruments that Measure Child Autism Spectrum Disorder<\/a>. J Autism Dev Disord. 2017;47(10):3253-3266. doi:10.1007\/s10803-017-3248-4<\/p>\n Blake JM, Rubenstein E, Tsai PC, et al. Lessons learned while developing, adapting and implementing a pilot parent-mediated behavioural intervention for children with autism spectrum disorder in rural Bangladesh<\/a>. Autism. 2017;21(5):611-621. doi:10.1177\/1362361316683890<\/p>\n Rubenstein E, Wiggins LD, Lee LC. A Review of the Differences in Developmental, Psychiatric, and Medical Endophenotypes Between Males and Females with Autism Spectrum Disorder<\/a>. J Dev Phys Disabil. 2015;27(1):119-139. doi:10.1007\/s10882-014-9397-x<\/p>\n2025<\/h2>\n
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