{"id":37,"date":"2023-12-07T16:25:42","date_gmt":"2023-12-07T21:25:42","guid":{"rendered":"https:\/\/sites.bu.edu\/chkids\/?page_id=37"},"modified":"2024-03-07T13:37:35","modified_gmt":"2024-03-07T18:37:35","slug":"faqs","status":"publish","type":"page","link":"https:\/\/sites.bu.edu\/chkids\/faqs\/","title":{"rendered":"FAQs"},"content":{"rendered":"<div><\/div>\n<h4><span style=\"color: #0000ff;\"><span style=\"color: #ff0000;\">1.<\/span> How did you get my contact information?<\/span><\/h4>\n<div>We were able to find your contact information because your child was identified by the Massachusetts Department of Public Health Birth Defects Registry as a person born with a heart condition.<\/div>\n<div>\n<hr \/>\n<\/div>\n<h4><span style=\"color: #0000ff;\"><span style=\"color: #ff0000;\">2.<\/span> What if I don&#8217;t want to participate?<\/span><\/h4>\n<div>If you choose to not participate in this study, you are free to do so. There will be no consequences or charges for choosing not to participate.<\/div>\n<div>\n<hr \/>\n<\/div>\n<h4><span style=\"color: #0000ff;\"><span style=\"color: #ff0000;\">3.<\/span> What should I expect on the survey?<\/span><\/h4>\n<div>\n<p>This survey asks about <text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"7.55136108398438\" lengthadjust=\"spacingAndGlyphs\" textlength=\"487.636798858643\" x=\"36.4857597351074\" y=\"-497.110015869141\" data-test=\"textbox\">your child, their quality of life and access to <\/text><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"7.55136108398438\" lengthadjust=\"spacingAndGlyphs\" textlength=\"249.404666900635\" x=\"36.8279991149902\" y=\"-481.630004882812\" data-test=\"textbox\">healthcare<\/text>, and your experiences as their caregiver. <text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"7.55136108398438\" lengthadjust=\"spacingAndGlyphs\" textlength=\"537.670036315918\" x=\"36.077278137207\" y=\"-409.869995117188\" data-test=\"textbox\">The survey will take about 20 minutes. It can be completed online, by mail, or over the telephone. None of your answers <\/text><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"7.5072021484375\" lengthadjust=\"spacingAndGlyphs\" textlength=\"156.13875579834\" x=\"36.2870407104492\" y=\"-394.510009765625\" data-test=\"textbox\">will be linked to your name or your <\/text><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"7.66177368164062\" lengthadjust=\"spacingAndGlyphs\" textlength=\"147.019653320312\" x=\"195.535766601562\" y=\"-394.510009765625\" data-test=\"textbox\">child\u2019s name.<\/text><\/p>\n<\/div>\n<p><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"7.66177368164062\" lengthadjust=\"spacingAndGlyphs\" textlength=\"147.019653320312\" x=\"195.535766601562\" y=\"-394.510009765625\" data-test=\"textbox\">A<\/text><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"8.21377563476562\" lengthadjust=\"spacingAndGlyphs\" textlength=\"521.087825775146\" x=\"36.1766395568848\" y=\"-363.529998779297\" data-test=\"textbox\"> $5 gift card is included with the survey for you to keep whether or not you complete the survey. If you choose to <\/text><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"7.5072021484375\" lengthadjust=\"spacingAndGlyphs\" textlength=\"26.2972831726074\" x=\"36.4857597351074\" y=\"-348.049987792969\" data-test=\"textbox\">compl<\/text><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"6.44735717773438\" lengthadjust=\"spacingAndGlyphs\" textlength=\"13.5902404785156\" x=\"64.1208038330078\" y=\"-348.049987792969\" data-test=\"textbox\">ete <\/text><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"7.5072021484375\" lengthadjust=\"spacingAndGlyphs\" textlength=\"14.285758972168\" x=\"80.9606399536133\" y=\"-348.049987792969\" data-test=\"textbox\">the <\/text><text class=\"_textbox_1titd_17\" direction=\"ltr\" height=\"8.2137451171875\" lengthadjust=\"spacingAndGlyphs\" textlength=\"387.437698364258\" x=\"98.6255950927734\" y=\"-348.049987792969\" data-test=\"textbox\">survey, we will send you another gift card worth $20 to thank you for your time.\u00a0<\/text><\/p>\n<div>\n<hr \/>\n<\/div>\n<h4><span style=\"color: #0000ff;\"><span style=\"color: #ff0000;\">4.<\/span> Will my responses\/personal information be confidential?\u00a0<\/span><\/h4>\n<div>Yes, we will not release any information that could identify you or your child. Your name and your child\u2019s name will never be shared as having a heart condition, having completed the survey, or having been asked to participate.<\/div>\n<div>\n<hr \/>\n<\/div>\n<h4><span style=\"color: #0000ff;\"><span style=\"color: #ff0000;\">5.<\/span> Can I receive an e-gift card instead of a physical gift card?<\/span><\/h4>\n<div>Yes! You can request one by contacting chkids@bu.edu or 617-358-4599.<\/div>\n<div>\n<hr \/>\n<\/div>\n<h4><span style=\"color: #0000ff;\"><span style=\"color: #ff0000;\">6.<\/span> How do I get the survey in Spanish?\/<span>\u00bfC\u00f3mo obtengo la encuesta en espa\u00f1ol?<\/span><\/span><\/h4>\n<div>If you would like to receive a survey in Spanish, please contact us at chkids@bu.edu or 617-358-4599.<\/div>\n<div><\/div>\n<div>Si desea recibir una encuesta en espa\u00f1ol, comun\u00edquese con nosotros al chkids@bu.edu o 617-358-4599.<\/div>\n<div>\n<hr \/>\n<\/div>\n<h4><span style=\"color: #0000ff;\"><span style=\"color: #ff0000;\">7.<\/span> Can I take the survey online?<\/span><\/h4>\n<div>Yes! Just scan your unique QR code located on the materials inside your survey packet.<\/div>\n<div>\n<hr \/>\n<\/div>\n<h4><span style=\"color: #0000ff;\"><span style=\"color: #ff0000;\">8.<\/span> Who can I contact to ask questions?<\/span><\/h4>\n<div>If you have any questions, you can contact the project coordinator, Alexis Miket, via email at chkids@bu.edu.<\/div>\n<div><\/div>\n","protected":false},"excerpt":{"rendered":"<p>1. How did you get my contact information? We were able to find your contact information because your child was identified by the Massachusetts Department of Public Health Birth Defects Registry as a person born with a heart condition. 2. What if I don&#8217;t want to participate? If you choose to not participate in this [&hellip;]<\/p>\n","protected":false},"author":23185,"featured_media":0,"parent":0,"menu_order":3,"comment_status":"closed","ping_status":"closed","template":"page-templates\/no-sidebars.php","meta":[],"_links":{"self":[{"href":"https:\/\/sites.bu.edu\/chkids\/wp-json\/wp\/v2\/pages\/37"}],"collection":[{"href":"https:\/\/sites.bu.edu\/chkids\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/sites.bu.edu\/chkids\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/sites.bu.edu\/chkids\/wp-json\/wp\/v2\/users\/23185"}],"replies":[{"embeddable":true,"href":"https:\/\/sites.bu.edu\/chkids\/wp-json\/wp\/v2\/comments?post=37"}],"version-history":[{"count":29,"href":"https:\/\/sites.bu.edu\/chkids\/wp-json\/wp\/v2\/pages\/37\/revisions"}],"predecessor-version":[{"id":223,"href":"https:\/\/sites.bu.edu\/chkids\/wp-json\/wp\/v2\/pages\/37\/revisions\/223"}],"wp:attachment":[{"href":"https:\/\/sites.bu.edu\/chkids\/wp-json\/wp\/v2\/media?parent=37"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}