{"id":64,"date":"2015-05-21T20:18:47","date_gmt":"2015-05-22T00:18:47","guid":{"rendered":"https:\/\/sites.bu.edu\/childandfamilyhealth\/?page_id=64"},"modified":"2023-11-02T10:26:06","modified_gmt":"2023-11-02T14:26:06","slug":"publications","status":"publish","type":"page","link":"https:\/\/sites.bu.edu\/childandfamilyhealth\/publications\/","title":{"rendered":"Publications"},"content":{"rendered":"

Selected Publications<\/strong><\/span>
\nStudent authors denoted with a “*”<\/em><\/p>\n

Long, K.A., LaRochelle, J., Gordillo, M.L., Pariseau, E.M., DeCelle, M.G., & Orsmond, G. (In Press). Siblings FORWARD: Development of a new program to engage siblings of autistic adults in future planning. Journal of Autism and Developmental Disorders.<\/p>\n

*Garcia, D., Olsavsky, A. L., Hill, K., Patterson, V., Baughcum, A., Long, K.A., Barrera, M., Gilmer, M., Fairclough, D. L., Akard, T.F., Compas, B.E., Vannatta, K., & Gerhardt, C.A. (In Press).\u00a0Associations between parental depression, communication, and self-worth of <\/span>siblings bereaved by cancer.\u00a0Journal of Family Psychology<\/em>. PMID:\u00a037676170<\/span><\/p>\n

Alderfer, M.A., Amaro, C.M., Kripalani, S., Pinto, A.T., Lewis, A.M., Arasteh, K., Hildenbrand, A., Lown, E.A., & Long, K.A. (2023). Trajectories of traumatic stress symptoms among siblings of children with cancer: The first two years post-diagnosis. Journal of Pediatric Psychology, 48(8), <\/em>688-699. PMID: 37354552. – DOI:10.1093\/jpepsy\/jsad033<\/a><\/p>\n

Long, K.A., *Blakey, A.O., *Amaro, C.M., *Eilenberg, J.S., Brochier, A., Garg, A., Drainoni, <\/sup>M.L., Pashankar, F., Esrick, E.B., & Kavanagh, P.L. (2023). Bidirectional processes linking social determinants of health and pediatric sickle cell disease management: A qualitative study. Pediatric Blood & Cancer, 70(10).<\/em> PMID: 37470711. – DOI:10.1002\/pbc.30539<\/a><\/p>\n

*Davis, K.A., Alderfer, M.A., *Pariseau, E., Lewis, A., Kazak, A.E., Muriel, A.C., & Long, K.A. (2023). Validation of the Psychosocial Assessment Tool Sibling Module Follow-Up Version. Journal of Pediatric Psychology, 48(7), <\/em>636-644.\u00a0PMID:\u00a037228163. – DOI:10.1093\/jpepsy\/jsad028<\/a><\/span><\/p>\n

*Davis, K.A., *Brosnan, P.,\u00a0*Mazzenga, M., Buchbinder, D., Alderfer, M.A., *Sharkey, C.A., & Long, K.A. (2023). Inconsistent, Uncoordinated, and Reactive: The Current State of Sibling Psychosocial Care. Pediatric Blood & Cancer, 70<\/em>(2). <\/em>PMID: 36385588. – https:\/\/doi.org\/10.1002\/pbc.30103<\/a><\/p>\n

*Amaro, C.M., Alderfer, M.A., Gerhardt, C., Wawrzynski, S., Goldish, M., & Long, K.A. (2023). Bringing together a transdisciplinary team to create and advance a shared vision for research and support for siblings of youth with cancer. Journal of Pediatric Hematology\/Oncology Nursing. – <\/em>DOI:10.1177\/27527530221121727<\/a><\/p>\n

*Blakey, A.O., *Lavarin, C., Brochier, A., *Amaro, C.M., *Eilenberg, J., Kavanagh, P., Garg, A., Drainoni, M-L., & Long, K.A. (2022) Effects of perceived discrimination in pediatric sickle cell disease: Caregiver and provider perspectives. Journal for Racial and Ethnic Health Disparities. <\/em>PMID: 36536165. – DOI:\u00a0<\/span><\/span>10.1007\/s40615-022-01483-4<\/a><\/span><\/p>\n

*Kizildag, D., *Eilenberg, J.S., *Blakey, A.O., *Cardona, N., Broder-Fingert, S., Feinberg, E., & Long, K.A. (2022). Family experiences with the autism developmental evaluation process: Perspectives of immigrant and US-born parents. Journal of Child and Family Studies. – <\/em>doi.org\/10.1007\/s10826-022-02428-5<\/a><\/p>\n

Long, K.A., *Davis, K., *Pariseau, E., Muriel, A.C., Kazak, A.E, & Alderfer, M.A. (2022). Initial validation of a new sibling-focused psychosocial screener: The PAT sibling modules. Psycho-Oncology. <\/em>– ncbi.nlm.nih.gov\/pubmed\/36029137\/\u00a0<\/a><\/p>\n

*Gordillo, M., *Chu, A., & Long, K.A. (2022). Differences in processes underlying autism service system engagement among Latina and Non-Latina mothers. Journal of Autism and Developmental Disorders. <\/em>PMID: 35059950. – ncbi.nlm.nih.gov\/pubmed\/35059950\/<\/a><\/p>\n

Long, K.A., *Chevalier, L., *Chu, A., Guthrie, K.M., Kao, B., Plante, W., & Lobato, D. (2022). Cultural influences on sibling relationships, roles, and self-concept in the context of autism: Perspectives of Latino\/a\/x and non-Latino\/a\/x siblings. Journal of Autism and Developmental Disorders, 52(9), <\/em>4100-4113. <\/em>PMID: 34559336. – ncbi.nlm.nih.gov\/pubmed\/34559336\/<\/a><\/p>\n

*Eilenberg, J.S., *Kizildag, D., *Blakey, A.O., *Cardona, N., *Oberoi, A., Broder-Fingert, S., Feinberg, E., & Long, K.A. (2022). Implications of universal autism screening: Perspectives from culturally-diverse families with false positive screens. Academic Pediatrics, 22(2)<\/em>, 279-288. –\u00a0<\/em>ncbi.nlm.nih.gov\/pubmed\/34963655\/<\/a><\/p>\n

*Brosnan, P., *Davis, K.A.,\u00a0*Mazzenga, M., Buchbinder, D., Alderfer, M.A., *Sharkey, C.A., & Long, K.A. (2022). Psychosocial care providers\u2019 perspectives: Barriers to implementing services for siblings of children with cancer. Pediatric Blood & Cancer, 69<\/em>(2), PMID: 34786821. – ncbi.nlm.nih.gov\/pubmed\/34786821\/<\/a><\/p>\n

Zhou, E.S., *Mazzenga, M., *Gordillo, M.L., Meltzer, L.J., & Long, K.A. (2021). Sleep education and training among practicing clinical psychologists in Canada and the United States. Behavioral Sleep Medicine. <\/em>PMID: 33336599. – ncbi.nlm.nih.gov\/pubmed\/33336599\/<\/a><\/p>\n

*Loo, S., Brochier, A., *Gordon Wexler, M., Long, K.A., Kavanagh, P.L., Garg, A.<\/strong>, & Drainoni, M.L. (2021). Addressing unmet basic needs for children with sickle cell disease: Clinic and staff perspectives. BMC Health Services Research, 21(1), <\/em>55-62. <\/em>PMID: 33435984 – ncbi.nlm.nih.gov\/pubmed\/33435984\/<\/a><\/p>\n

Long, K.A., Patterson, P., Fainsilber Katz, L., *Amaro, C., & Alderfer, M. (2021). Creating a pathway for psychosocial support in siblings of youth with a chronic illness: Findings from an international summit. Journal of Developmental and Behavioral Pediatrics, 42(4), <\/em>331-339. <\/em>PMID: 33395147. – ncbi.nlm.nih.gov\/pubmed\/33395147\/<\/a><\/p>\n

Wiener, L., Canter, K., Long, K.A., Psihogios, A., & Thompson, A. (2020). Pediatric psychosocial standards of care in action: Research that bridges the gap from need to implementation. Psycho-Oncology, 29<\/em>(12), 2033-2040. <\/em>PMID: 32748495. – ncbi.nlm.nih.gov\/pubmed\/32748495\/<\/a><\/p>\n

Long, K.A., *Gordillo, M., & Orsmond, G. (2020). Improving the validity and generalizability of adult autism research through incorporating family and cultural contexts. Autism in Adulthood, 2<\/em>(3), 177-184. <\/em>PMID: 32959029. – ncbi.nlm.nih.gov\/pubmed\/32959029\/<\/a><\/p>\n

*Gordillo, M., *Chu, A., & Long, K.A. (2020). Mothers\u2019 adjustment to autism: Exploring the roles of autism knowledge and culture. Journal of Pediatric Psychology, 45<\/em>(8), 877-886. <\/em>PMID: 32647887. – ncbi.nlm.nih.gov\/pubmed\/32647887\/<\/a><\/p>\n

*Pariseau, E., *Chevalier, L., Muriel, A., & Long, K.A. (2020). Parental awareness of sibling adjustment: Perspectives of parents and siblings of children with cancer. Journal of Family Psychology, 34<\/em>(6), 698-708.<\/em> PMID: 31829671. – ncbi.nlm.nih.gov\/pubmed\/31829671\/<\/a><\/p>\n

*Oberoi, A. R., *Cardona, N. D., *Davis, K. A., *Pariseau, E. M., Berk, D., Muriel, A. C., & Long, K. A. (2020). Parent decision-making about support for siblings of children with cancer: Sociodemographic influences. Clinical Practice in Pediatric Psychology, 8<\/em>(2), 115-125. – doi\/10.1037\/cpp0000324<\/a><\/p>\n

*Kim, H., Zhou, E., *Chevalier, L., *Lun, P., Davidson, R., *Pariseau, E. M. & Long, K. A. (2020). Parental behaviors, emotions at bedtime, and sleep disturbances in children with cancer. Journal of Pediatric Psychology, 45<\/em>(5), 550-560. – ncbi.nlm.nih.gov\/pubmed\/32279072\/<\/a><\/p>\n

*Oberoi, A. R., Towry, L., Lerro, G., *Eilenberg, J., *Phyllis, L., Lerro, G., Alderfer, M. A.,\u00a0\u00a0Long, K.A. (2019). Improving support to siblings of children with cancer through a\u00a0community-academic partnership. Clinical Practice in Pediatric Psychology. – doi\/10.1037\/cpp0000280<\/a><\/span><\/p>\n

*Pariseau, E., *Chevalier, L., Long, <\/strong>K., Clapman, R., Edwards-Leeper, L., & Tishelman, A. (2019). The relationship between family acceptance-rejection and transgender youth psychosocial functioning. Clinical Practice of Pediatric Psychology, 7, <\/em>267-277. – https:\/\/psycnet.apa.org\/doi\/10.1037\/cpp0000291<\/a><\/em><\/p>\n

*Eilenberg, J., *Paff, M., Harrison, A., & Long, K. A. (2019).\u00a0<\/span> <\/span>Disparities based on race, ethnicity, and socioeconomic status\u00a0over the transition to adulthood<\/span>\u00a0<\/span>among adolescents and young adults on the autism spectrum: A systematic review<\/span>.<\/span>\u00a0Current Psychiatry Reports. – <\/i>ncbi.nlm.nih.gov\/pubmed\/30903399\/<\/a><\/span><\/p>\n

Long, K. A., *Lehmann, V., Gerhardt, C., *Carpenter, A., Marsland, A., & Alderfer, M. (2018). Psychosocial functioning and risk factors for siblings of children with cancer: An updated systematic review. Psychooncology, 27, <\/em>1467-1479. <\/em>PMID: <\/em>29441699. –\u00a0ncbi.nlm.nih.gov\/pubmed\/29441699<\/a><\/p>\n

Long, K. A., *Pariseau, E. M., Muriel, A., Kazak, A., *Chu, A., & Alderfer, A. (2018). Development of a psychosocial risk screener for siblings of children with cancer: Incorporating the perspectives of parents. Journal of Pediatric Psychology, 43, <\/em>693-701. <\/em>PMID: 29617821. –ncbi.nlm.nih.gov\/pubmed\/29617821<\/a><\/p>\n

Long, K.A., *Pariseau, E.M., Muriel, A.C., *Chu, A., Kazak, A.E., *Leon, M., & Alderfer, M.A. (2017). Psychosocial screening for siblings of children with cancer: Barriers and preferences. Clinical Practice of Pediatric Psychology, 5, <\/em>364-375. – <\/em>doi\/10.1037\/cpp0000219<\/a><\/p>\n

Harrison, A.J., Long, K.A., Tommet, D., & Jones, R.N.\u00a0 (2017). Examining the role of race, ethnicity, and gender on social and behavioral ratings within the Autism Diagnostic Observation Schedule. Journal of Autism and Developmental Disorders, 47, <\/em>2770-2782. <\/em>PMID: 28597187.\u00a0 –ncbi.nlm.nih.gov\/pubmed\/28597187<\/a><\/p>\n

Harrison, A.\u00a0Long, K., Manji, K., & Blane, K. (2016). Development of a brief intervention to improve knowledge of autism and behavioral strategies among parents in Tanzania.\u00a0Intellectual & Developmental Disabilities, 54,\u00a0<\/em>187-201.\u00a0<\/em>PMID:\u00a027268474.\u00a0<\/span>–ncbi.nlm.nih.gov\/pubmed\/27268474<\/a><\/p>\n

Gerhardt, C., *Lehmann, V., Long, K., & Alderfer, A. (2015). Supporting siblings as a standard of care in pediatric oncology.\u00a0Pediatric Blood & Cancer, 62,\u00a0<\/em>S678-S732. PMID: 26700924.\u00a0 –ncbi.nlm.nih.gov\/pubmed\/26700924<\/a><\/p>\n

*Almy B, Long K, Lobato D, Plante W, Kao B, et al. Perceptions of siblings’ sexual activity predict sexual attitudes among at-risk adolescents. Journal of developmental and behavioral pediatrics : JDBP. 2015; 36(4):258-66. NIHMSID: NIHMS647353 PubMed [journal] PMID: 25741948, PMCID: PMC4414693 – ncbi.nlm.nih.gov\/pubmed\/25741948<\/a><\/p>\n

Long KA, Goldish M, Lown EA, Ostrowski NL, Alderfer MA, et al. Major lessons learned from a nationally-based community-academic partnership: addressing sibling adjustment to childhood cancer. Families, systems & health : the journal of collaborative family healthcare. 2015; 33(1):61-7. PubMed [journal] PMID: 25581558 –\u00a0ncbi.nlm.nih.gov\/pubmed\/25581558<\/a><\/p>\n

Long KA, Kao B, Plante W, Seifer R, Lobato D. Cultural and child-related predictors of distress among latina caregivers of children with intellectual disabilities. American journal on intellectual and developmental disabilities. 2015; 120(2):145-65. PubMed [journal] PMID: 25715183 –\u00a0ncbi.nlm.nih.gov\/pubmed\/25715183<\/a><\/p>\n

Alderfer MA, Stanley C, Conroy R, Long KA, Fairclough DL, et al. The social functioning of siblings of children with cancer: a multi-informant investigation. Journal of pediatric psychology. 2015; 40(3):309-19. PubMed [journal] PMID: 25256156, PMCID: PMC4366447 –\u00a0ncbi.nlm.nih.gov\/pubmed\/25256156<\/a><\/p>\n

Long KA, Marsland AL, *Wright A, Hinds P. Creating a tenuous balance: siblings’ experience of a brother’s or sister’s childhood cancer diagnosis. Journal of
\npediatric oncology nursing : official journal of the Association of Pediatric Oncology Nurses. 2015; 32(1):21-31. PubMed [journal] PMID: 25391285 –\u00a0ncbi.nlm.nih.gov\/pubmed\/25391285<\/a><\/p>\n

Long KA, Keeley L, Reiter-Purtill J, Vannatta K, Gerhardt CA, et al. Child-rearing in the context of childhood cancer: perspectives of parents andprofessionals. Pediatric blood & cancer. 2014; 61(2):326-32. PubMed [journal] PMID: 24376229 –\u00a0ncbi.nlm.nih.gov\/pubmed\/24376229<\/a><\/p>\n

Long KA, Marsland AL, Alderfer MA. Cumulative family risk predicts sibling adjustment to childhood cancer. Cancer. 2013; 119(13):2503-10. NIHMSID: NIHMS454260 PubMed [journal] PMID: 23576115, PMCID: PMC3686993 –\u00a0ncbi.nlm.nih.gov\/pubmed\/23576115<\/a><\/p>\n

Long KA, Lobato D, Kao B, Plante W, Grull\u00f3n E, et al. Perceptions of emotion expression and sibling-parent emotion communication in Latino and non-Latino white siblings of children with intellectual disabilities. Journal of pediatric psychology. 2013; 38(5):551-62. PubMed [journal] PMID: 23459309, PMCID: PMC3666121 –\u00a0ncbi.nlm.nih.gov\/pubmed\/23459309<\/a><\/p>\n

Long KA, Alderfer MA, Ewing LJ, Marsland AL. The role of contextual threat in predicting self-reported distress among siblings of children with cancer. Journal
\nof clinical psychology in medical settings. 2013; 20(2):199-208. PubMed [journal] PMID: 23053828 –\u00a0ncbi.nlm.nih.gov\/pubmed\/23053828<\/a><\/p>\n

Marsland AL, Long KA, Howe C, Thompson AL, Tersak J, et al. A pilot trial of a stress management intervention for primary caregivers of children newly diagnosed with cancer: preliminary evidence that perceived social support moderates the psychosocial benefit of intervention. Journal of pediatric psychology. 2013; 38(4):449-61. PubMed [journal] PMID: 23341547, PMCID: PMC3633253 –\u00a0ncbi.nlm.nih.gov\/pubmed\/23341547<\/a><\/p>\n

Thompson AL, Long KA, Marsland AL. Impact of childhood cancer on emerging adult survivors’ romantic relationships: a qualitative account. The journal of sexual
\nmedicine. 2013; 10 Suppl 1:65-73. PubMed [journal] PMID: 23057814 –\u00a0ncbi.nlm.nih.gov\/pubmed\/23057814<\/a><\/p>\n

Long KA, Ewing LJ, Cohen S, Skoner D, Gentile D, et al. Preliminary evidence for the feasibility of a stress management intervention for 7- to 12-year-olds with asthma. The Journal of asthma : official journal of the Association for the Care of Asthma. 2011; 48(2):162-70. PubMed [journal] PMID: 21332379 –\u00a0ncbi.nlm.nih.gov\/pubmed\/21332379<\/a><\/p>\n

Long KA, Marsland AL. Family adjustment to childhood cancer: a systematic review. Clinical child and family psychology review. 2011; 14(1):57-88. PubMed [journal]
\nPMID: 21221783 –\u00a0ncbi.nlm.nih.gov\/pubmed\/21221783<\/a><\/p>\n

Alderfer MA, Long KA, Lown EA, Marsland AL, Ostrowski NL, et al. Psychosocial adjustment of siblings of children with cancer: a systematic review. Psycho-oncology. 2010; 19(8):789-805. PubMed [journal] PMID: 19862680 –\u00a0ncbi.nlm.nih.gov\/pubmed\/19862680<\/a><\/p>\n

Long KA. Informed consent in pediatric cancer clinical trials: giving adolescents a voice. Pediatric blood & cancer. 2010; 55(1):8-9. PubMed [journal] PMID:
\n20486164 –\u00a0ncbi.nlm.nih.gov\/pubmed\/20486164<\/a><\/p>\n

Cluss PA, Ewing LJ, Long KA, Krieger WG, Lovelace J. Adapting pediatric obesity treatment delivery for low-income families: a public-private partnership.
\nClinical pediatrics. 2010; 49(2):123-9. PubMed [journal] PMID: 20080518 –\u00a0ncbi.nlm.nih.gov\/pubmed\/20080518<\/a><\/p>\n

\n

Selected Presentations (last 5 years)<\/strong><\/span><\/p>\n

*Magardino, A., Barahona Paz, K., Long, K.A, Brochier, A., Garg, A. (2023).\u00a0Incorporating Parents\u2019 Perspectives to Revise a Social Determinants of Health Screening Tool [Poster Presentation].\u00a0Pediatric Academic Societies Conference,\u00a0<\/em>Washington, DC.<\/p>\n

*Abramson, M.A., *Cardona, N.D., *Brayton, S., Eustis, E.H., Long, K.A. (2023).\u00a0Concordance of sexual and gender minority young adults\u2019 early emotion socialization by caregivers and their experiences with identity disclosure: A mixed methods exploration [Poster Presentation]. 57th Annual Association for Behavioral and Cognitive Therapies (ABCT) Convention, Seattle, WA.<\/p>\n

*Lai, S., *Davis, K., *Pariseau, E., *Brosnan, P.,\u00a0Long<\/strong>, K.A. (2023). Family decision-making processes regarding sibling involvement in cancer treatment [Poster Presentation]. American Psychological Association Annual Conference, Washington, DC, United States.<\/p>\n

Kuhn, J., Menon, N., Much-Hichos, M., Long, K., Feinberg, E., Silverstein, M., & DeWalt, L., (2023). Adaptations to evidence-based depression prevention intervention for optimal fit with autistic youth. American Psychological Association Annual Conference, Washington, DC, United States.<\/p>\n

*Meyer, R., *Guan, S., *Suswaram, S., *Eilenberg, J. S., *Wilson, J., *Feng, W., Chu, A., Long, K.A. (2023). The influence of culture on stigma and self-blame experienced by parents of youth with autism [Poster Presentation].\u00a0American Psychological Association Annual Conference, Washington, DC, United States.<\/p>\n

*Mastrangelo, C., *Kim, Y., *Gordillo, M.L., Orsmond, G., & Long, K.A (2023). Acceptability of a program to support sibling involvement in future planning with autistic adults [Poster Presentation]. American Psychological Association Annual Conference, Washington, DC, United States.<\/p>\n

*Eilenberg, J.S., *Suswaram, S., *Gordillo, M., Gabovitch, E., Martin, K., & Long, K.A (2023). Community-based research approaches to meaningfully engage racially and ethnically diverse first-person autistic perspectives in qualitative research [Poster Presentation]. <\/em>International Society for Autism Research Annual Meeting, Stockholm, Sweden. \u00a0<\/em><\/p>\n

*Paredes, A., *Gordillo, M., & Long, K.A (2023).\u00a0Understanding service provider stress and burnout in the context of service quality for Latino families of children with intellectual and developmental disabilities (IDD)\u00a0[Paper Presentation]. 55th Annual\u00a0Gatlinburg Conference, Kansas City, MO, United States.<\/p>\n

*Bowman, S. E., *Davis, K. A., *Amaro C. M., *Cardona, N. D., Mazzenga, M. M., Alderfer, M. A., Muriel. A. C., Long, K. A. (2023) Telehealth as a modality of psychosocial support for siblings of youth with cancer\u00a0[Poster Presentation].\u00a0Society of Pediatric Psychology Annual Conference<\/em>, Chicago, IL, United States.<\/p>\n

*Pariseau, E.M., *Brosnan, P., Alderfer, M., Pincus, D., Muriel, A. C., Long, K.A. (2023).\u00a0The impact of COVID-19 on siblings of youth with cancer [Poster Presentation]. Society of Pediatric Psychology Annual Conference, Chicago, IL.<\/p>\n

*Davis, K.A., *Amaro, C.M., Mazzenga, M.M., *Cardona, N., *Bowman, S., Muriel, A.C., Alderfer, M.A., & Long, K. A. (2023). Preferences for parent involvement in a new trauma-focused group intervention for siblings of youth with cancer: A mixed-methods study from a racially and ethnically diverse sample of parents, siblings, and providers [Poster presentation]. Society of Pediatric Psychology Annual Conference, Chicago, IL, United States.<\/p>\n

Long, K.A., *Amaro, C.M., *Davis, K.A., *Mazzenga, M.M., *Cardona, N., Muriel, A.C., & Alderfer, M.A. (2022). Development of a new trauma-focused intervention for adolescent siblings of youth with cancer [Paper Presentation]. Society of Paediatric Oncology Annual Conference, Barcelona, Spain.<\/p>\n

*Davis, K. A., Alderfer, M. A., *Pariseau, E. M., Lewis, A., Kazak, A. E., & Long, K. A. (2022). The PAT Sibling Modules: Psychometric properties of a sibling psychosocial risk screener [Paper Presentation]. Society of Paediatric Oncology Annual Conference, Barcelona, Spain.<\/p>\n

Alderfer, M.A., Kripalani, S., *Amaro, C.M., Taggi Pinto, A., Lewis, A., Hidenbrand, A. K., Lown, E.A., & Long, K.A. (2022). Trajectories of cancer-related traumatic stress among siblings of children with cancer within two years of diagnosis [Paper Presentation]. International Society of Paediatric Oncology, Barcelona, Spain.<\/p>\n

*Blakey, A.O., *Amaro, C. M., *Eilenberg, J., Brochier, A., Kavanagh, P., Garg, A., Drainoni, M-L., & Long, K.A. (2022) Disease management decision-making amongst caregivers of children with sickle cell anemia. American Society of Hematology Annual Meeting in New Orleans, LA.<\/p>\n

Kim. Y., Mastrangelo, C., Long, K.A., Gordillo, M., & Orsmond, G.I. (2022).\u00a0Feasibility of a program to\u00a0support adult sibling involvement in family future planning for family members on the autism\u00a0spectrum\u00a0<\/em>[Poster presentation].\u00a0Occupational Therapy Summit of Scholars, Madison, WI.<\/p>\n

*Blakey, A.O., *Lavarin, C., *Amaro, C.M., Brochier, A., *Eilenberg, J., *Messmer, E., Kavanagh, P., Garg, A., Drainoni, M-L., & Long, K.A. (2022). Effects of perceived discrimination in pediatric sickle cell anemia: Caregiver and provider perspectives [Poster Presentation]. Society of Pediatric Psychology, Annual Conference<\/em>, Phoenix, AZ.<\/p>\n

    \n
  • Society for Pediatric Psychology Diversity Special Interest Group Poster Award Winner<\/em><\/li>\n<\/ul>\n

    *Davis, K.A., Mazzenga, M., *Brosnan, P., Buchbinder, D., Alderfer, M. A., *Sharkey, C.M., & Long, K. A. (2022). Development of a blueprint for psychosocial services for siblings of youth with cancer: A nationwide study [Invited Symposium Presentation]. American Psychosocial Oncology Society Annual Conference<\/em>, Portland, OR.<\/p>\n

    *Davis, K. A., *Brosnan, P., Mazzenga, M., Buchbinder, D., Alderfer, M. A., & Long, K. A. (2022). Characterizing current sibling assessment and support services in pediatric cancer care [Poster Presentation]. Society of Pediatric Psychology Annual Conference<\/em>, Phoenix, AZ.<\/p>\n

    *Chevalier, L., *Pariseau, E., Long, K.A., Langer, D., Pincus, D. (2021). Efficacy of a treatment for sleep-related problems in children with anxiety: A mixed methods study [Poster Presentation]. SLEEP Annual Conference, Virtual.<\/p>\n

    *Amaro, C.M., *Blakey, A.O., *Eilenberg, J., Garg, A., Kavanagh, P., Drainoni, M.L., & Long, K.A. (2021). Family impact and involvement in pediatric sickle cell disease. In C. M. Amaro (Chair), A Multisystemic Approach to Improving Care in Pediatric Sickle Cell Disease<\/em> [Symposium]. American Psychological Association Annual Convention, Virtual.<\/p>\n

    *Schmidt, E., *Gordillo, M., Getz, M., Orsmond, G., & Long, K.A. (2021). Sibling and service provider perspectives on sibling involvement in the lives of adults on the autism spectrum. International Society for Autism Research Annual Meeting, Virtual.<\/p>\n

    *Cardona, N.D., *Kizildag, D., *Eilenberg, J.S., *Blakey, A.O., Long, K.A. (2021). In their own words: Perceived hardiness in culturally-diverse caregivers of children with false-positive autism screens [Poster Presentation]. Society of Pediatric Psychology Annual Conference, Virtual.<\/p>\n

    *Brosnan, P., *<\/strong>Davis, K.A.,\u00a0Mazzenga, M., Buchbinder, D., Alderfer, M.A., & Long, K.A. (2021). Through the eyes of the provider: Facilitating sibling-specific services for siblings of children with cancer. Society of Pediatric Psychology Annual Conference, virtual.<\/p>\n

    *Blakey, A.O., *Eilenberg, J., *Amaro, C.M., Kavanagh, P., Garg, A., Drainoni, M-L., & Long, K.A. (2021). Links between social ecology and caregivers\u2019 daily disease management in pediatric sickle cell anemia [Poster Presentation]. Society of Pediatric Psychology Annual Conference, virtual.<\/p>\n

    *Kizildag, D., *Eilenberg, J., *Cardona, N., *Blakey, A.O., & Long, K.A. (2021). Cultural influences in family experiences with early screening for autism spectrum disorder [Poster Presentation]. 54th<\/sup> Annual Gatlinburg Conference, virtual.<\/p>\n

    *Blakey, A.O., *Eilenberg, J., *Kizildag, D.,\u00a0*Cardona, N., & Long, K.A. (2021). Caregivers\u2019 perspectives on family involvement during the autism evaluation process [Poster Presentation]. 54th<\/sup> Annual Gatlinburg Conference, virtual.<\/p>\n

    *Amaro, C., Alderfer, M., Gerhardt, C., & Long, K. (2021). Bringing together an international group of professional and family stakeholders to create a vision for research and support for siblings of youth with cancer [Podium Presentation]. American Psychosocial Oncology Society Annual Conference, Virtual.<\/p>\n

    *Chevalier, L., *Pariseau, E.M., *Kim, H., *Davidson, R.D., *Lun, P., Zhou, E.S., & Long, K.A. (2021). Elucidating changes in sleep-related parenting during inpatient and outpatient pediatric cancer treatment [Poster Presentation]. American Psychosocial Oncology Society Annual Conference, Virtual.<\/p>\n

    Long, K.A., *Mazzenga, M.M., *Davis, K., *Oberoi, A., *Brosnan, P., *Sharkey, C., Buchbinder, D., *Amaro, C., Barrera, M., Fainsilber Katz, L., Gerhardt, C., Lown, A., & Alderfer, M.A. (2020). \u201cThey are not the priority\u201d: Characterizing and overcoming barriers to providing psychosocial services to siblings of children with cancer. Society of Paediatric Oncology Annual Conference, Annual Conference, Ottawa, ON. (Not presented due to COVID-19)<\/p>\n

    Long, K.A., *Davis, K., *Mazzenga, M.M., *Brosnan, P., *Oberoi, A., *Sharkey, C., Buchbinder, D., & Alderfer, M.A. (2020). Development of a Blueprint for Psychosocial Services for Siblings of Children with Cancer: A Nationwide Study. Society of Paediatric Oncology Annual Conference, Annual Conference, Ottawa, ON. (Not presented due to COVID-19)<\/p>\n

    *Pariseau, E. M., *Carter, Q. B., Long, K. A., & Ng, L. C. (2019, September). Barriers and facilitators to implementation of a brief PTSD intervention for adolescents in primary care<\/em>. Poster presentation at the 2019 Developing and Researching Advanced Models of Integrated Primary Care (DREAM IPC) Biennial Conference, Wilmington, DE.<\/p>\n

    *Cowser, T., *Pariseau, E., *Carter, Q., *Adolf, E., Muriel, A., & Long, K. (2019). The Influence of Family Psychosocial Risk on Utilization of Sibling Support in Families of Children with Cancer [Poster Presentation]. American Psychological Association Annual Conference, Chicago, IL.<\/p>\n

    Long, K.A., *Pariseau, E.M., Muriel, A.C., Kazak, A.E., & Alderfer, M.A. (2019). Initial Validation of the PAT Sibling Module: A Screener for Siblings of Children with Cancer. [Symposium]. American Psychological Association Annual Conference, Chicago, IL.<\/p>\n

    Long, K.L., Getz, M., *Gordillo, M., & Orsmond, G. (2019). Engaging adult siblings in autism-related planning for the future [Symposium Presentation]. American Psychological Association Annual Conference, Chicago, IL.<\/p>\n

    Long, K.A., Buchbinder, D., Amaro, C., Barrera, M., Fainsilber Katz, L., Gerhardt, C., Lown, A., Sharkey, C., & Alderfer, M.A. (2019). On the Outside Looking In: A Nationwide Examination of Barriers to and Facilitators of Implementing the Standard of Psychosocial Care for Siblings of Children with Cancer [Paper Presentation]. American Psychosocial Oncology Society Annual Conference, Atlanta, GA.<\/p>\n

    *Gordillo, M.L., Orsmond, G., & Long, K.A. (2019). Cultural considerations for future Planning: focus on Latino families of adults with autism. [Symposium Presentation]. 52nd<\/sup> Annual Gatlinburg Conference, San Antonio, TX.<\/p>\n

    *Gordillo, M.L., *Chu, A., & Long, K.A. (2019). Differences in how mothers conceptualize ASD generally and in their own children: When increased knowledge does not lead to acceptance. [Poster Presentation]. 52nd<\/sup> Annual Gatlinburg Conference, San Antonio, TX.<\/p>\n

    *Eilenberg, J., *Paff, M., Harrison, A., & Long, K. (2019). Racial, ethnic, and socioeconomic disparities over the transition to adulthood among adolescents and young adults with autism spectrum disorders: A systematic review. [Symposium Presentation]. 52nd<\/sup> Annual Gatlinburg Conference, San Antonio, TX.<\/p>\n

    *Pariseau, E.,\u00a0*Chevalier, L.,\u00a0Muriel, A.,\u00a0& Long, K. (2019).\u00a0 Family functioning influences discrepancies in parent-sibling reports of the psychosocial functioning of siblings of children with cancer.\u00a0[Poster Presentation]. Society of Pediatric Psychology Annual Conference. New Orleans, LA.<\/p>\n

    *Chevalier, L., Pariseau, E., Muriel, A., Long, K. (2018). Coping strategies used by siblings and parents when a child has cancer [Poster Presentation]. The 52nd<\/sup> Annual Convention of the Association of Behavioral and Cognitive Therapies. Washington, DC.<\/p>\n

    *Chu, A., Broder-Fingert, M., Long, K., & Feinberg, E. (2018). State-level autism policies and their impact on families\u2019 access to early intensive behavioral interventions [Poster Presentation]. International Society for Autism Research Annual Meeting. Rotterdam, Netherlands.<\/p>\n

    *Chu, A., *Gordillo, M, & Long, K. (2018). The influence of culture on the decision-making process of disclosing a child\u2019s autism diagnosis to family and friends: A qualitative study of parents’ experiences [Symposium]. Gatlinburg Conference, San Diego, CA.<\/p>\n

    *Kim, H., Zhou, E., & Long, K.A. (2018). Sleep quality in children with cancer: Associations with parental sleep hygiene and sleep quality [Poster Presentation]. The Society of Pediatric Psychology Annual Conference, Orlando, FL.<\/p>\n

    *Chevalier, L., *Pariseau, E.M., *Chu, A., Muriel, A.C., & Long, K.A. (2018). Communication with siblings of children with cancer in Hispanic and non-Hispanic Families [Poster Presentation]. The Society of Pediatric Psychology Annual Conference, Orlando, FL.<\/p>\n

    Long, K.A.,\u00a0*Pariseau, E.,\u00a0*Chu, A., Muriel, A.C., Kazak, A., &\u00a0Alderfer, M.A. (2017). Development and initial validation of a screening module to assess psychosocial risk among siblings of children with cancer [Poster Discussion]. Society of Paediatric Oncology Annual Conference, Washington, DC.<\/p>\n","protected":false},"excerpt":{"rendered":"

    Selected Publications Student authors denoted with a “*” Long, K.A., LaRochelle, J., Gordillo, M.L., Pariseau, E.M., DeCelle, M.G., & Orsmond, G. (In Press). Siblings FORWARD: Development of a new program to engage siblings of autistic adults in future planning. Journal of Autism and Developmental Disorders. *Garcia, D., Olsavsky, A. L., Hill, K., Patterson, V., Baughcum, […]<\/p>\n","protected":false},"author":10156,"featured_media":0,"parent":0,"menu_order":6,"comment_status":"closed","ping_status":"closed","template":"","meta":[],"_links":{"self":[{"href":"https:\/\/sites.bu.edu\/childandfamilyhealth\/wp-json\/wp\/v2\/pages\/64"}],"collection":[{"href":"https:\/\/sites.bu.edu\/childandfamilyhealth\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/sites.bu.edu\/childandfamilyhealth\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/sites.bu.edu\/childandfamilyhealth\/wp-json\/wp\/v2\/users\/10156"}],"replies":[{"embeddable":true,"href":"https:\/\/sites.bu.edu\/childandfamilyhealth\/wp-json\/wp\/v2\/comments?post=64"}],"version-history":[{"count":44,"href":"https:\/\/sites.bu.edu\/childandfamilyhealth\/wp-json\/wp\/v2\/pages\/64\/revisions"}],"predecessor-version":[{"id":846,"href":"https:\/\/sites.bu.edu\/childandfamilyhealth\/wp-json\/wp\/v2\/pages\/64\/revisions\/846"}],"wp:attachment":[{"href":"https:\/\/sites.bu.edu\/childandfamilyhealth\/wp-json\/wp\/v2\/media?parent=64"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}