SCTC Vascular/Raynaud’s Phenomenon Working Group (SCTC-VWG)
Purpose of the Working Group:
The SCTC-VWG was devised in 2015 and tasked with refining or developing improved methods for assessing peripheral vascular disease in systemic sclerosis.
Any SCTC member (clinicians and scientists) with an interest in the assessment and management of peripheral vascular disease/Raynaud’s phenomenon in SSc are very welcome and encouraged to attend. The SCTC-VWG has currently received support from over 30 scleroderma units across 4 continents.
The SCTC-VWG has a number of active work streams including:
1) Development of a novel PRO instrument for assessing Raynaud’s phenomenon in systemic sclerosis: PIs John Pauling (UK) and Robyn Domsic (US)
2) Validation of the Digital Ulcer Clinical Assessment Score (DUCAS): PIs Cosimo Bruni (Italy), Marco Mattucci Cerinic (Italy) and Dan Furst (US)
3) Development of a novel PRO instrument for assessing Digital Ulceration in systemic sclerosis: PIs Mike Hughes (UK) and John Pauling (UK)
The SCTC-VWG has been a highly productive working environment securing grant support from the SCTC that has resulted in publications in high-impact rheumatology journals. The SCTC-VWG is open to new members and is seeking ideas for new projects.
Please contact us if you wish to join the group or propose new project ideas (JohnPauling@nhs.net ).