Investigator Roster

Coordinating Investigator: Marina Anderson, MBChB, MSc, MRCP, PhD
Institution: University Hospital Aintree3rd Floor Clinical Sciences CentreLongmoor LaneLiverpool L9 7AL

UK

Telephone Number: 44 151 529 5888
Email marina.anderson@liv.ac.uk

Coordinating Investigator: Murray Baron, MD
Institution: McGill UniversityJewish General Hospital3755 Cote St. Catherine RdSuite A216

Montreal H3T iE2

Canada

Coordinator : Suzanne Taillefer
Email: sstaillefer@videotron.ca
Web site: http://www.csrg-grcs.ca/
Telephone 514-340-8231
Fax 514-340-7906
Email mbaron@rhu.jgh.mcgill.ca

Coordinating Investigator: Belch, Jill F. MD
Reader and Consultant Physician
Other Local Participant: Morley, K., MD
Institution: University Department of MedicineNinewells Hospital and Medical SchoolDundee, DD1 9SY, Scotland
Telephone Number: 011-44-1382-660111
Fax Number: 011-44-1382-632333
Email: J.J.F.BELCH@dundee.ac.uk

Coordinating Investigator: Bruhlmann, Pius, M.D.
Other Local Participants: Distler, Oliver Maurer, Britta
Institution: Dept. of Rheumatology and Physical Med.University Hospital ZurichGloriastrasse 25, CH – 8091ZURICH – SWITZERLAND
Telephone Number: 011-411-255-2997
Fax Number: 011-411-255-8978
Email: Pius.Bruehlmann@usz.ch

Coordinating Investigator: Carr, Andrew

Professor of Medicine and Director, Centre for Immunology

Institution: Centre for Immunology

St. Vincent’s Hospital Sydney, AustraliaVictoria Street, Sydney 2010

Australia

Other Local Participant: McGrath, Michael, Dr.
Telephone Number: 61-2-361-7700
Fax Number: 61-2-9-361-2391
Email: acarr@stvincents.com.au

Coordinating Investigator: Castelino, Flavia
Institution: Massachusetts General HospitalRheumatologyYawkey 2C-210055 Fruit St

Boston, MA 02114

Telephone Number 617.726.7938
Fax Number: 617.643.1274
Website: http://www.massgeneral.org/rheumatology/
Email: fcastelino@partners.org

Coordinating Investigator: Catoggio, Luis J., MD Head, Rheumatology Section
Other Local Participants: Soriano, Enrique R., MDJavier Rosa, MD Marina Scolnik, MD.
Institution: Hospital Italiano de Buenos AiresSeccion ReumatologiaGascon 4501181 – Buenos Aires

ARGENTINA

Telephone Number: 011-54-1-959-0378(Answering machine or request signal)
Fax Number: 011-54-11-495-90378
Website: www.hospitalitaliano.org.ar
Email – Hospital: luis.catoggio@hospitalitaliano.org.ar
Email – Home: ljcatoggio@connmed.com.ar

Coordinating Investigator: Soumya Chatterjee, MD, MS, MRCP
Institution: Cleveland Clinic Foundation9500 Euclid Avenue/Desk A50Cleveland, OH 44195
Other Local Participants: Jeffrey Chapman, MDConstance Jennings, MD Rula Hajj-Ali, MD
Telephone Number: (216) 444-9945
Fax Number: (216) 445-7569
Email: chattes@ccf.org

Coordinating Investigator: Lorinda Chung, MD, MS
Institution: Stanford University School of Medicine3801 Miranda AvePalo Alto VA Health Care SystemPalo Alto, CA 94304
Other Local Participant: David Fiorentino, MD, PhD
Telephone Number: 650.493.5000 ext 62042
Fax Number: 650.856.8024
Coordinator Amanda Fosteramfoster@stanford.edu650-721-7147
Nurse for appointments Abigail Agustinaagustin@stanfordmed.org650-721-7119
Website: http://stanfordhospital.org/autoimmune
Email: shauwei@stanford.edu

Coordinating Investigator: Clements, Philip, MD Professor of Medicine
Other Local Participants: Kaplan, Richard P., MDPaulus, Harold, MD Daniel E. Furst, MD
Institution: UCLA1000 Veteran AvenueRoom 32-59Los Angeles, CA 90095-1670
Telephone Number: (310) 825-8414
Fax Number: (310) 206-8606
E-mail: pclements@mednet.ucla.edu

Coordinating Investigator: Connolly, Kari, MD Assistant Professor of Dermatology and Medicine
Other Local Participant: Wofsy, David, MD
Institution: University of California, San FranciscoUCSF Box 0517San Francisco, CA 94143-0517
Telephone Number: (415) 476-7927
Fax Number: (415) 502-7871
Email: connolly@derm.ucsf.edu

Coordinating Investigator: Csuka, Mary Ellen, MD Professor of Medicine
Other Local Participants: Cronin, Mary E., MD
Institute: Medical College of WisconsinFMLH – EastDepartment of Rheumatology9200 West Wisconsin Avenue

Milwaukee, Wisconsin 53226

Telephone Number: (414) 955-7028
Fax Number: (414) 456-6205
Study coordinator: Marit Johnson, RN414 955 7022
Patient appointments: (414) 805-6655
Web site: http://www.mcw.edu/rheumatology.htm
Email: mecsuka@mcw.edu

Coordinating Investigator: Czirjak, Laszlo, MD, PhD
Other Local Participants: Gabor Kumánovics MD, PhDCecilia Varjú MDSzalai Andrea MD Radics Judit MD
Institution: Department of Immunology and Rheumatology
University Medical School of PecsH-7621, PecsIrgalmasok u.1.HUNGARY
Telephone Number: 011-36-72-507-359
Fax Number: 011-36-72-507-339
Email: aszlo.czirjak@aok.pte.hu

Coordinating Investigator: Christopher Denton, MD, PhD,
Institution: Royal Free HospitalCentre for RheumatologyRowland Hill StreetLondon, NW3 2PF
Other Local Participant: Black, Carol, M.D.
Telephone Number: 011 44 (207) 794-0432
Fax Number: 011 44 (207) 435-0143
Email: c.denton@medsch.ucl.ac.uk

Coordinating Investigator: Distler, Jorg
Other Local Participant: Georg Schett
Institution: University of ErlangenDepartment of Internal Medicine 3Medizinische Klinik 3, Universitatsstr. 29Erlangen, Germany 91054
Telephone Number: 011-49-9131-85-39102
Fax Number: 011-49-9131-85-36448
Email: jjoerg.distler@med3.imed.uni-erlangen.de

Coordinating Investigator: Doyle MD, Mittie K.
Institution: Centocor R&D200 Great Valley ParkwayMalvern, PA 19355
Telephone Number: 610) 240-5675
Fax Number: (610) 240-4132
Email: MDoyle1@CNTUS.JNJ.COMk

Coordinating Investigator: Professor Paul Emery, BA, MA, MBChir, MRCP, MD, FRCP
Institution: Leeds University, Academic Unit of Musculoskeletal DiseaseDepartment of RheumatologyLeeds General InfirmaryGreat George Street

Leeds, West Yorkshire LS1 3EX

England

Other Local Participants: Cheryl Fernandes, MBChB, MRCP Naomi Reay, RGN, RSCN, BSc
Telephone Number: 44 113 39 22896
Email: p.emery@leeds.ac.uk

Coordinating Investigator: Farge, Professor Dominique
Other Local Participants: Alain MauvielZora MarjanovicDoina Ilie Marjan Ertault
Institution: Hôpital Saint Louis1, avenue Claude Vellefaux75010 Paris France
Telephone Number: 33 1 42 49 94 78
Email: Dominique.farge-bancel@sls.ap-hop-paris.fr

Coordinating Investigator: Fessler, Barri J., M.D. Assistant Professor of Medicine
Institution: University of Alabama at BirminghamDiv of Clinical Immunology & Rheumatology510 20th Street SouthFaculty Office Tower 844

University of Alabama at Birmingham

Birmingham, AL 35294

Telephone Number: (205) 934-2813
Fax Number: (205) 975-6769
Email: Barri.Fessler@ccc.uab.edu

Coordinating Investigator: Fischer, Aryeh MD
Institution: University of Colorado Anschutz Medical Campus
Division of Rheumatology and Center for Lungs and Breathing
1775 Aurora Court, P.O. Box 6511
Mail Stop B-115, Aurora, Colorado 80045
Participating investigator: Jason Kolfenbach, MD
Clinic Telephone Number: 720-848-7700 or 720-848-4400
Clinic Fax Number: 720-848-0750
Website: University of Colorado Rheumatology
Email: fischera@njc.org

Coordinating Investigator: Foeldvari, Ivan Dr.
Institution: Kinder- und JugendrheumatologeHamburger Zentrum für Kinder- und Jugendrheumatologie Kompetenz-Zentrum für Sklerodermie im Kindes- und JugendalterAm Klinikum Eilbek Dehnhaide 12022081 Hamburg

Germany

Telephone Number: 040 2092 3694
Fax Number: 040 2092 3693
Website: www.kinderrheumatologie.dewww.sklerodermie.org
Appointments: sekreteriat@kinderrheumatologie.de+494020923697 or 3694
Email: foeldvari@uke.uni-hamburg.de

Coordinating Investigator: Tracy M. Frech, MD
Institution: University of UtahDivision of Rheumatology50 N Medical DriveSalt Lake City, UT 84132
Email: tracy.frech@hsc.utah.edu

Coordinating Investigator: Furie, Richard, MD
Institution: North Shore University HospitalNYU School of MedicineDivision of Rheumatology andAllergy-Clinical Immunology

2800 Marcus Ave., St. 200

Lake Success, NY 11042

Other Local Participant: Avram Goldberg, MD
Telephone Number: 516 708-2550
Fax Number: 516 708-2573
Email: furie@nshs.edu

Coordinating Investigator: Rafael G. Grau, MD
Institution: University of Indiana School of Medicine1110 W. Michigan Street, LO 545Indiana, IN 46202-5100
Telephone Number: (317) 274-7792
Fax Number: (317) 274-7177
Email: rgrau@iupui.edu

Coordinating Investigator: Leroy Griffing, MD
Institution: Mayo Clinic Scottsdale13400 E. Shea BlvdScottsdale, AZ 85259
Other Local Participants: Lester Mertz, MD
Telephone Number: (480) 301-7105
Fax Number: (480) 301-7558
Email: lgriffing@mayo.edu

Coordinating Investigator Gabrielli, Armando, MD
Other Local Participants Sambo, Paola, MD Casagrande, Walter, MD
Institution: Instituto di Clinica Medica1st Clinica MedicaPolo DidatticoVia Tronto, 10

60020 Ancona Italy

Telephone Number: 39 71 2206104
Fax Number 39 71 2206103
Email: a.gabrielli@mta01.unian.it

>Coordinating Investigator Jan Tore Gran, MD
Other Local Participants Oyvind Midtredt Ragnar Gunnarsson
Institution National Hospital RikshopitaletDept. of RheumatologySognsvannsveien 0026Oslo 0029

Norway

Telephone Number 047 23 07 17 99
Fax Number: 047 27 48 69
Email: jan.tore.gran@rikshopitalet.no

Coordinating Investigator: Hachulla, Eric
Other Local Participant: David Launay
Institution: Hopital Claude HuriezDepartment of Internal Medicine, National Scleroderma CenterLille, 59037 France
Telephone Number: 0033 320444296
Fax Number: 0033 320444062
Email: ehachulla@chru-lille.fr

Coordinating Investigator: Hayat, Samina, MD
Other Local Participants: Wolf, Robert E., MD, PhD
Institution: Louisiana State University1501 Kings HighwayDepartment of Medicine – RheumatologyLSUMC

PO Box 33932

Shreveport, LA 71130-3932

Telephone Number: (318) 675-5930
Fax Number: (318) 675-5937
Email: Shayat@lsuhsc.edu

Coordinating Investigator: Herrick, Ariane, Dr.
Institution: University of ManchesterManchester Academic Health Science CentreSalford Royal Hospital, Salford M6 8HD
Telephone Number: 44-161-275-5993 (Secretary – Lisa McClair)
Fax Number: 44-161-275-5043
Website: www.manchester.ac.uk/scleroderma
Email: aherrick@fs1.ho.man.ac.ukMquarmby@fs1.ho.man.ac.uk

Coordinating Investigator: Hesselstrand, Roger MD
Other Local Participants: Scheja, Agneta, M.D., Ph.D. Wuttge, Dirk M. M.D, Ph.D.
Institution: Lund University HospitalDepartment of RheumatologyS-221 85 Lund, Sweden
Telephone Number: 011-46-46-177178
Fax Number: 011-46-46-128468
Email: roger.hesselstrand@skane.se

Coordinating Investigator: Hsu, Vivien, MDDirector, Scleroderma Program
Institution: UMDNJ-Scleroderma ProgramAdult Clinical Research CenterAcute Care Building, 3rd floor51 French St

New Brunswick, NJ 08903

Other Local Participants: Fen Chen, RNHalina Malveau, RN McCloskey, Deborah, RN Mdclosda@umdnj.edu
Telephone Number: (732) 418-8484
Fax Number: (732) 418-8463
Patient Line: (732) 235- 7217
Email: hsuvm@umdnj.edu

Coordinating Investigator: Inanc, Murat MD
Institution: University of IstanbulIstanbul Faculty of MedicineDepartment of Internal MedicineDivision of Rheumatology

34390, Capa, Istanbul, Turkey

Telephone Number: 011-90 212-6613418
Fax Number: 011-90-212-6318699
Email: minanc@superonline.comdrinanc@istanbul.edu.trr

Coordinating Investigator: Professor Francesco Indiveri
Other Local Participants: Massimo Ghio, MDMarta Rizzi, MDMarta Sessarego, MD Gilberto Filaci, MD
Institution: University of Genoa, Department of Immune-Endocrinology, U.O. Internal Medicine ImmunologyViale Benedetto XV, 6Genova 16132Italy
Telephone Number: 011 39 010 353 7988
Fax Number: 011 39 010 353 8994
Email: frindi@unige.it

Coordinating Investigator: Isasi, Elida Susana MD
Other Local Participants: aria Eloisa Isasi, MDEnrique Mendez, MDElena Trucco, MDAna Casinelli, MD

Ma. Victorina López Varela, MD

Eugenia Isasi, BSc

Institution: Sociedad Uruguaya de Esclerodermia y Síndromes Afines. Servicio de Cardiología Hospital Maciel1: 2113, Rivera Av. 11200 Montevideo. URUGUAY
Patient contact: Servicio de Cardiología, Hospital Maciel.172, 25 de Mayo st. 11100 Montevideo. URUGUAY
Telephone Number: 011-598-2-203-55 45
Fax Number: 011-598-2-400 71 20
Email: isasictg@adinet.com.uy

Coordinating Investigator: Soren Jacobsen
Other Local Participants: Susanne UllmanGitte Strauss
Institution: University Hospital of Copenhagen Department of Rheumatology, RigshospitaletBlegdamsvej 9, Building 4242Copenhagen 2100 Denmark
Telephone Number: 45 3545 7560
Fax Number: 45 3545 7568
Email: sj@dadlnet.dk

Coordinating Investigator: Jimenez, Sergio A. Jr. Professor, Chief of Rheumatology
Other Local Participant: Fabian Mendoza, MD
Institution: Thomas Jefferson UniversityAutoimmunity Center of Excellence and Scleroderma Center233 S. 10th Street, Room 509 BLSBPhiladelphia, PA 19107-5541
Telephone Number: (215) 503-5042
Fax Number: (215) 923-4649
Email: Sergio.Jimenez@jefferson.edu

Coordinating Investigator: Kahaleh, Bashar, MD Professor, Chief of Rheumatology
Other Local Participants: Santoro, Thomas, MD
Institution: Medical College of OhioUniversity of Toledo Medical Center3120 Glendale AveToledo, OH 43614-5809
Telephone Number: (419) 383-3742
Fax Number: (419) 383-6244
Email: basher.kahaleh@utoledo.edu

Coordinating Investigator: Kahan, Andre, MD Professor of Rheumatology
Other Local Participant: Menkes, Charles Joel, MD Professor of Rheumatology
Institution: Paris V University School of MedicineDepartment of RheumatologyHospital Cochin27, Rue FG Saint Jacques

75014 Paris, France

Telephone Number: 011-331-423-41879
Fax Number: 011-331-432-58723
Email: jocelyne.redon@cch.ap-hop-paris.fr

Coordinating Investigator: Kryser, Cristiane, MD, PhD
Other Local Participant: Andrade, Luis Eduardo Coelho MD, PhD
Institution: Universidade Federal de Sao PaoloRua Botucate, 740, 3 andarDisciplina de ReumatologiaSao Paolo 04023-062

Brazil

Email: cristiane.kayser@unifesp.br

Coordinating Investigator: Dinesh Khanna, MD
Institution: University of Michigan Scleroderma ProgramDivision of Rheumatology/Dept. of Internal MedicineSuite 7C27300 North Ingalls Street, SPC 5422

Ann Arbor, MI  48109

Other Local Participants: Elena Schiopu, M.D. Kristine Phillips, M.D.
Telephone: 734-647-8173
Fax: 734-763-5761
Website: www.med.umich.edu/scleroderma
Email: khannad@med.umich.edu

Coordinating Investigator: Kim, Lauren, MD
Institution: Legacy Health SystemLegacy Clinic Northeast300 North Graham Street, Suite 200Portland, OR 97227
Telephone Number: 503.413.4134
Fax Number: 503.413.1895
Email: lkim@legacy.org

Coordinating Investigator: Krieg, Thomas, MD, Professor
Institution: University of Cologne, GermanyDepartment of Dermatology and VenerologyJoseph Stelzmann Str. 950924 Cologne (Köln)

GERMANY

Other Local Participants: Hunzelmann, Nicolas, MD, Professor Moinzadeh, Pia, MD
Telephone Number: 011-49-221-478-4500
Fax Number: 011-49-221-478-4538
Email: ait00@uni-koeln.de

Coordinating Investigator: Lafyatis, Robert, MD
Institution: Boston University School of MedicineRheumatology Section, K-580 East Concord StreetBoston, MA 02118
Other Local Participant: Simms, Robert, MD
Study Coordinator: Sarah McLaughlin(617) 638-5383Srm29@bu.edu
New patient appointments: (617) 638-4312
Telephone Number: (617) 638-4486
Fax Number: (617) 638-5226
Email: lafyatis@bu.edu

Coordinating Investigator: Lally, Edward V., MD Director, Division of Rheumatology
Other local participants: Reginato, Anthony, Ph.D., MD Zimmermann, Bernard, MD
Institution: Rhode Island Hospital and Brown Medical School2 Dudley St Suite 370Providence, RI 02905
Telephone Number: (401) 444-2248
Fax Number: (401) 444-3558
Coordinator: Kathy PolandKPoland@Lifespan.org
Patient appointments: (401) 444-6120
Email: elally@lifespan.org

>

Coordinating Investigator: Lapadula, Professor Giovanni
Other Local Participants: Florenzo Iannone
Institution: DIMMIP-Rheumatology Unit, University of Bari Medical SchoolPiazza G. Cesare 11Pad. Chini PoliclinicoBari 70124 Italy
Telephone Number: 39 080 5478 866
Fax Number: 39 080 5478 802
Email: g.lapadula@reumbari.uniba.it

Coordinating Investigator: Lawrence, Able, MBBS, MD, DM
Institution: Sanjay Gandhi Postgraduate Institute of Medical SciencesDepartment of ImmunologyRaebareli RoadLucknow, Uttar Pradesh

226014

India

Other Local Participants: Amita Aggarwal Ramnath Misra
Telephone Number: +91 522 2494315 (office)+91 522 2494000 2495000Extn (res)+91 9984648333 (mobile)
Fax Number: +91 522 2668812 (Fax)
Email: abledoc@gmail.com

>Coordinating Investigator: Lee, Peter, Dr. Associate Professor of Medicine
Institution: Mt. Sinai Hospital/University of Toronto60 Murray StreetSuite 2-004, Box #9Toronto ON Canada M5T 3L9
Other Local Participants: Keystone, Edward C., Dr. Johnson, Sindhu
Telephone Number: (416) 586-4800 ext 8247
Fax Number (416) 586-8766
Email: plee@mtsinai.on.ca

Coordinating Investigator Tafazzul H. Mahmud, MB, MRCP
Institution: Shaikh Zayed Federal Postgraduate Medical InstituteDepartment of Rheumatology and ImmunologyLahore, Punjab, Pakistan 54600
Telephone Number: 011-00-9242 5865731-4 Ext. 2221
Fax Number: 011-00-9242 5864218
Patient Office: Crescent Rheumatology Service608 ShadmanLahore, PakistanPhone: 00923024252422
Website: www.pakrheumatology.org
Email: thmahmud@msn.com

>Coordinating Investigator: Malcata, Armando Head of Rheumatology
Other Local Participants: Maria Joao Salvador, MD Jose Antonio Pereira Silva, MD, PhD
Institution: Servicio de Reumatologia, Hospitais da Universidade de CoimbraPraceta Mota Pinto3000 Coimbra Portugal
Telephone Number: 35 1239400412
Fax Number: 35 1239401045
Email: amalcata@huc.min-saude.pt

Coordinating Investigator: Martin, Richard W., MD
Other Local Participants: Andrew J. Head, MD Aaron Eggebeen, MD
Institution: Michigan State UniversityCollege of Human Medicine1155 East Paris SE Ste 100Grand Rapids, MI 49546
Telephone Number: (616) 459-8088
Fax Number: (616) 459-8312
Website http://www.mi-arthritis.com
Email: martin@mi-arthritis.com

Institute: Cattedra di Reumatologia IIAzienda Ospedaliero Universitaria di CagliariSS 554 bivio per SestuMonserrato, Cagliari

Sardinia

Italy 09042

Coordinating Investigator: Alessandro Mathieu, MD Professor of Medicine
Other Local Participants: Alessandra Vacca MD Dr. Pietro Garau, MD
Patient appointment contact: Mrs Paola Mereu, RN011-39-070-5109-6328
Telephone Number: 011-39-070-5109-6385
Fax Number: 011-39-070-5109-6382
Email: Mathieu@pacs.unica.it

Coordinating Investigator: Matucci-Cerinic, Marco, MD, PhD Professor of Medicine
Other Local Participants: Righi,Anna MDGuiducci Serena MD PhDLepri Gemma MDBruni Cosimo MD

Porta Francesco MD

Bandinelli Francesca MD

Fiori Ginevra  MD

Conforti, Maria Letizia MD

Salvadorini Giuliana MD

Bartoli Francesca MD

Nacci Francesca MD

Denaro Valentina MD

Melchiorre Daniela MD

Institute:M Dpt Medicine, Div Rheumatology AOUCDenothe Centre, Univ of FlorenceViale Pieraccini 1850139 Firenze, Italy
Telephone & Fax Number: 390557949271
Email: cerinic@unifi.it

Coordinating Investigator: Maureen Mayes, MD, MPH
Institution: Univ. of Texas-Houston Medical SchoolDivision of Rheumatology and Clinical Immunogenetics6431 Fannin St., MSB 5.270Houston, TX 77030
Other Local Participant: Assassi, Shervin, MD, PhD
Coordinator: Ann Saulino, RN
Telephone Number: (713) 500-7118
Fax Number: (713) 500-0580
Clinic appointment line: (713) 486-3100
Email: maureen.d.mayes@uth.tmc.edu

Institution: Royal National Hospital for Rheumatic DiseasesUpper Borough WallsBATH BA1 1RLENGLAND
Telephone Number: 011-44-1225-465941
Fax Number: 011-44-1225- 463223
Email: neil.mchugh@rnhrd.nhs.uk
Coordinating Investigator: McKown, Kevin M., MD
Other local participant: Karen E. Hansen, MD
Institution: University of Wisconsin – Madison1685 Highland Avenue4136 MFCBMadison, WI 53705-2281
Telephone Number: (608) 263-3457
Fax Number: (608) 263-7353
Patient number: (608) 263-7577
Website for patients: www.uwhealth.org
Email: km4@medicine.wisc.edu

Coordinating Investigator: Medsger, Thomas A., Jr., MD
Institution: University of PittsburghDept. of Med/Div. of Rheumatology3500 Terrace StreetS 721 BSTWR

Pittsburgh, PA 15261

Other Local Participants: Robyn Domsic, MD, MPH
Telephone Number: (412) 383-8765
Fax Number: (412) 383-8753
Email: medsger@msx.dept-med.pitt.edu
Coordinating Investigator Moroni, Pier Luigi
Other local participants Francesca Ingegnoli Silvana Zeni
Institution: ISTITUTO GAETANO PINI, UNIVERSITY OF MILANDIVISION OF RHEUMATOLOGY, 7 FLOOR APIAZZA CARDINAL FERRARI 1MILANO 20122

ITALY

Telephone Number 00390258296272
Fax: 00390258318176
Email: pierluigi.meroni@unimi.it

Coorindinating Investigator: Peter A. Merkel, MD, MPHChief, Division of Rheumatology Professor of Medicine and Epidemiology
Institution: University of Pennsylvania8th Floor Penn Tower3400 Spruce StreetPhiladelphia, PA 19104
Telephone: 215-614-4401
Fax: 215-614-4402
Email: pmerkel@upenn.edu

Coordinating Investigator Luc Mouthon, MD
Other local participants: Loic Guillevin, MD
Institution: Hôpital Cochin27, rue du Faubourg Saint-Jacques75014 PARIS France
Telephone Number (+33) 01 58 41 20 31
Fax: (+33) 01 58 41 14 50
Email: luc.mouthon@cch.aphp.fr

>Coordinating Investigator: Nadashkevich, Oleg MD, PhD
Institution: Lviv Medical UniversityK.Levytskogo Street 51/6Lviv 79017 Ukraine
Telephone Number: 38 097 2496042
Fax Number: 38 0322 985911
Email: Prof.Nadashkevich@yahoo.com

Coordinating Investigator: Pope, Janet, MD MPH FRCPC Professor of Medicine
Institution: St. Joseph’s Health CentreRheumatology Department268 Grosvenor StreetLondon ON, N6A 4L6
Telephone Number: (519) 646-6332
Fax Number: (519) 646-6334
Email: Janet.Pope@sjhc.london.on.ca

Coordinating Investigator: Dr. Susanna Proudman, MB, BS, FRACP
Other Local Participants: Professor Les Cleland, MBBS, MD, FRACP Jenny Walker, MBBS, PhD
Institution: Royal Adelaide Hospital Rheumatology Unit, Adelaide University Medical SchoolLevel 4 Eleanor Harrald BuildingRoyal Adelaide Hospital

North Terrace, Adelaide 5000

Australia

Patient contact: Mrs Leah McWillamsLeah.McWilliams@Health.sa.gov.au
Fax Number: +618 82225895
>Email: sproudman@internode.on.net

Coordinating Investigator: Valeria Riccieri MD, PhDAssistant Professor in Rheumatology
Institution: University Sapienza of Rome, ItalyDepartment of Internal Medicine and Clinical Specialities
Other Participants: Massimiliano Vasile, MDIliana Sciarra, MD Katia Stefanantoni, MD
Scleroderma clinic: 00390649974680sclerodermaclinic@tiscali.it
Patient appointment contact: 0039-0649974685; 0039-82076499
Web site: www.medicinasapienza.it
Email: valeria.riccieri@uniroma1.it

Coordinating Investigator: Rodriguez-Reyna, Tatiana S. MD
Other Local Participants: Jorge Alcocer-Varela, MD, PhDAntonio Cabral-Castaneda, MD Gabriela Hernandez-Molina, MD, MS
Institution: Insitituto Nacional de Ciencias Medicas y Nutricion Salvador ZubiranVasco de Quiroga 15. Col. Seccion XVIDel. TlalpanMexico City, Mexico 14000
Telephone Number: 52 55 58 46 78 31
Fax Number: 52 55 55 73 20 96
>Email: sofarodriguez@yahoo.com.mx

>

Coordinating Investigator: Rothfield, Naomi, F., MDProfessor of Medicine Chief, Division of Rheumatic Diseases
Other Local Participants: Ingenito, Fran N.P. Waterman, John, MD
Institution: University of Connecticut Health CenterDivision of Rheumatic Diseases263 Farmington AvenueFarmington, CT 06030-1310
Telephone Number: (860) 679-3605
Fax Number: (860) 679-1287
Email: Rothfield@nso.uchc.edu

Coordinating Investigator: Lidia Rudnicka Professor
Other Local Participants: El?bieta Szymanska, MD, PhDJustyna Sicinska, MD
Institution: Dept Dermatology Central Clinical Hospital MSWiAWoloska 137Warszawa 02-507

Poland

Email: lrudnicka@cskmswia.pl

Coordinating Investigator Scorza, Raffaella, MD
Other Local Participants Cazzoni, Monica, MDVanoli, Massimo, MDOriggi, Laura, MDViscuso, Tiriana, MD

Molteni, Monica, PhD

Raimondi, Massimo, MD

Masciocchi, Michela, MD

Institution: Clinical Immunology and Allergology Fondazione IRCCS Ospedale PoliclinicoMangiagalli e Regina Elena &University of Milano

Via F. Sforza 35

20122 Milano, Italy

Telephone Number: 39 02 5503 3567
Fax : 39 02 5503 3568
Email: raffaella.scorza@unimi.it

Coordinating Investigator: Molitor, Jerry M.D.
Other Local Participants: Hyun Kim, MDMark Pritzker, MDMonica Colvin-Adams, MD Daniel Duprez, MD
Institution: University of Minnesota Medical SchoolDivision of Rheumatic & Autoimmune Diseases420 Delaware Street, SEA624 Mayo Building

Minneapolis, MN 55455

Telephone: (612) 624-6843
Fax: (612) 624-0600
Email: jmolitor@umn.edu

>

Coordinating Investigator: Saketkoo, Lesley MD MPH
Institution: Louisiana State University Health Sciences Center; Scleroderma and Sarcoidosis Patient Care and Research Center1542 Tulane Avenue, TM-4Department of Medicine, Section of Rheumatology

New Orleans, LA 70112

Other Local Participants: Luis R. Espinoza Bennet DeBiosblanc
Email: ctd.ild@gmail.com

Coordinating Investigator: Seibold, James MD
Institution: Scleroderma Research Consultants, LLC97 Deer RunAvon, CT
Telephone Number: 860.404.2353
Fax Number: 860.404.2983
Email: jamesrseibold@gmail.com

Coordinating Investigator: Jean-Luc Senecal
Institution: University of Montreal School of MedicineCentre Hospitalier de l’Universite de Montreal1560 East Sherbrooke StreetMontreal, Quebec Canada

H2L 4M1

Telephone Number: (514) 890-8000, ext. 27131
Fax Number: (514) 412-7548
Patient contact: Tamara Grodzicky, MD
Telephone: (514) 890-8000, extension 28800
Fax: (514) 412-7630
Email: jeanluc.senecal@sympatico.ca

Other Local Participants:

Coordinating Investigator: Smith, Vanessa MD, PhD
Institution: Ghent University HospitalDe Pintelaan 185Ghent 9000Belgium
Filip De Keyser, MD, PhD
Email: vanessa.smith@ugent.be

Coordinating Investigator: Robert F. Spiera, MD
Institution Hospital for Special Surgery535 East 70th StreetNew York, NY 10021
Other Local Participants: Mary Crow, MD Jessica Gordon, MD
Research Coordinators Uzunma Udeh (212) 774-2123Nina Paddu (212) 774-7194
Patient appointments/Research (212) 774-2048
Patient appointments/Clinic (212) 606-1173 and (212) 860-2100
Website svcenter@hss.edu http://www.hss.edu/scleroderma-vasculitis-center.asp
Telephone Number: (212) 774-2048
Fax Number: (212) 774-2358
Email: spierar@hss.edu

Other local participants:

Coordinating Investigator: Bill St. Clair, MD
Institution: Duke University Medical CenterSuite 09, Baker House, Orange Zone, HospitalSouth, DUMC Box 3145Durham, NC 27710
Keith Sullivan
Coordinator: Kellie Cochran, RN, NP(919) 688-3754
Telephone: (919) 684-2193
Fax: (919) 681-8298
Website: www.sclerodermatrial.orghttp://cellulartherapy.medicine.duke.edu
Email: stcla003@mc.duke.edu

Coordinating Investigator: Shapiro, Lee, MD
Other Local Participants: Jessica Farrell, Pharm. D
Institution: Steffens Scleroderma Center6 Care LaneSaratoga Springs, NY 12866
Telephone: (518) 584-4953
Website: www.steffens-scleroderma.org
Email: lshapiro@joint-docs.com

Coordinating Investigator: Silver, Richard M., M.D.
Other Local Participants: Smith, Edwin A, MD Faye Hant, DO, MSCR
Institution: Medical University of South CarolinaDivision of Rheumatology96 Jonathan Lucas St.Suite 912

PO Box 250623

Charleston, SC 29425

Telephone Number: (843) 792-1991
Fax Number: (843) 792-7121
Coordinator Contact: (843) 792-1991
Patient Appointment Contact: (843) 792-9200
Website: www.musc.edu
Email: silverr@musc.edu

Coordinating Investigator: Steen, Virginia D., MD
Institution: Georgetown UniversityDepartment of Medicine/RheumatologyPHC 30043800 Reservoir Road NW

Washington, DC 20007

Telephone Number: (202) 444-6200
Fax Number: (877) 625-1471)
Patient appointments Ms. Davis, (202) 444-6200
Coordinator: Emily Semmel (202) 444-6211
Email: steenv@georgetown.edu

Coordinating Investigator: Dr Wendy Stevens MBBS FRACP
Institution: St Vincent’s Hospital Melbourne55 Victoria Parade, Level 6Fitzroy, VictoriaAustralia 3065
Patient Contact Barbara Gemmell  Barbara.GEMMELL@svhm.org.au
Other Local Participant Dr Mandana Nikpour m.nikpour@unimelb.edu.au
Telephone Number: 61 3 94174844
Fax Number: 61 3 94170822
Email: seejgee@bigpond.net.au

Coordinating Investigator: Sutton, Evelyn, MD, FRCPC
Institution: QEII Health Science Centre, Rheumatology Division, Dalhousie University1341 Summer Street, Suite 245 NSRCHalifax, Nova Scotia, B3H 4K4
Patient Contact: Barbara Gemmell Barbara.GEMMELL@svhm.org.au
Local Participant  Dr Mandana Nikpour m.nikpour@unimelb.edu.a
Telephone Number: 902 473 7040
Fax Number: 902 473 7019
Email: evelyn.sutton@cdha.nshealth.ca

Coordinating Investigator: Valentini, Gabriele, MD
Other Local Participants: Vettori, Serena MD, PhDCuomo, Giovanna MD Iudici, Michele, MD
Institution: Seconda Universita’ Degli Studi di NapoliCattedra di ReumatologiaEdificio 3 -Via S Pansini 580131 Napoli, Italy
Telephone Number: 011-39-0-81-546 4487
Fax Number: 011-39-0-81-566 6747
Website: www.policliniconapoli.it/Reparti/UO/7101
Email: gabriele.valentini@unina2.it

Coordinating Investigator: Varga, John MD
Institution: Northwestern Medical Faculty Foundation Galter Pavilion (at Northwestern Memorial Hospital)675 North St. Clair, Suite 14-100Chicago, Illinois 60611
Other local participants: Monique Hinchcliff, MD, MS
Telephone Number: (312) 695-8628
Fax Number: (312) 695-0114
Coordinator/New patients: Mary Carns(312) 503-1137m-carns@northwestern.edu
Website www.scleroderma.northwestern.edu
Email: j-varga@northwestern.edu

Coordinating Investigator: Frank HJ van den Hoogen, MD, PhD
Institution: St. MaartenskliniekPO Box 9101Nijmegen, The Netherlands
Telephone Number 31-24-3659275
Fax Number 31-24-3659743
Email: F.vandenHoogen@Maartenskliniek.nl

Coordinating Investigator Veale, Douglas, MDDirector of Translational ResearchAdjunct Professor of Medicine and Consultant Rheumatologist
Institution: Dublin Academic Medical Centre, Bone and Joint Unit, St. Vincent’s University HospitalElm Park and The Conway Institute of Biomolecular & Biomedical ResearchDublin 4

Ireland.

Telephone: +35312773142
Fax: +35312779410
Email: ddouglas.veale@ucd.iegeraldine.jordan@ucd.ie

Coordinating Investigator: Suncica Volkov
Institution: University of Illinois at Chicago1819 West Polk StreetRoom A312, M/C 733Chicago, IL 60612
Other Local Participants: Nadera Sweiss
Telephone Number: (312) 413-9310
Fax Number: (312) 413-9271
Email: suncica@uic.edu

>Coordinating Investigator: A.E. Voskuyl, MD, PhD
Other Local Participants: B.A.C. Dijkmans, MD, PhD
Institution: VU University Medical CenterP.O. Box 7057Amsterdam 1007 MBThe Netherlands
Telephone Number: 0031 20 444 3432
Fax Number: 0031 20 444 2138
Email: ae.voskuyl@vumc.nl
Coordinating Investigator: Walker, Ulrich MD
Other Local Participants: Alan Tyndall
Institution: Basel UniversityDepartment of Rheumatology
Felix Platter SpitalBurgfelderstr. 101Basel, Switzerland
Telephone Number: 41.61.3264018
Email: Ulrich.walker@fps-basel.ch

Coordinating Investigator: Michael Whitfield, PhD
Institution: Dartmouth Medical SchoolRemsen 7400DMS GeneticsHanover, NH 03755
Telephone Number: 603.650.1188
Email: michael.l.whitfield@dartmouth.edumichael.l.whitfield@dartmouth.edu

Coordinating Investigator: Wigley, Frederick M., MDAssociate Director, Division of Rheumatology Director, Scleroderma Center
Other Local Participants: Hummers, Laura MDAmi Shah, MDFrancesco Boin, MD Zsuzsanna McMahan, MD
Institution: Johns Hopkins University Scleroderma Center5200 Eastern AvenueMason Lord BuildingCenter Tower, Suite 4100

Baltimore, MD 21224

Telephone Number: (410) 550-2003
Fax Number: (410) 550-2072
Website: www.hopkinsscleroderma.org
Email: wig@jhmi.edu