United States



Institution: The University of Alabama at Birmingham
Division of Clinical Immunology and Rheumatology
510 20th Street South
Faculty Office Tower 844
University of Alabama at Birmingham
Birmingham, AL 35294

Coordinating Investigator: Fessler, Barri J., MD

Telephone Number: (205) 934-2813

Fax Number: (205) 975-6769

Email: Barri.Fessler@ccc.uab.edu


Institution: Mayo Clinic Scottsdale
13400 E Shea Blvd
Scottsdale, AZ 85259

Coordinating Investigator: Leroy Griffing, MD

Other Local Participant: Lester Mertz, MD

Telephone: (480) 301-7105

Fax Number: (480) 301-7558

Email: lgriffing@mayo.edu


Insititution: Stanford University School of Medicine
1000 Welch Road, Suite 203
Palo Alto CA 94304

Coordinating Investigator: Chung, Lorinda, MD, MS

Other Local Participants: David Fiorentino, MD, PhD

Telephone Number:   650.736.0727
Fax Number: 650.721.3476

Coordinator: Amanda Foster

Nurse for appointments: Jaime Laskowski

Website:  http://stanfordhospital.org/autoimmune

Email shauwei@stanford.edu

Institution: University of California, San Francisco
UCSF Box 0517
San Francisco, CA

Coordinating Investigator: Connolly, Kari, MD
Assistant Prof of Dermatology and Medicine

Other Local Participants: Wofsy, David, MD
Boin, Francesco, MD (Email: Francesco.Boin@ucsf.edu)

Telephone Number: (415) 476-7927
Fax Number: (415) 502-7871

Email: Connolly@derm.ucsf.edu

Institution: UCLA
1000 Veteran Avenue
Room 32-59
Los Angeles, CA 90095-1670

Coordinating Investigator: Clements, Philip, MD
Professor of Medicine

Other Local Participants: Furst, Daniel E., MD
Elizabeth Volkmann, MD, MS
Kaplan, Richard P., MD
Paulus, Harold, MD

Telephone Number: (310) 825-8414

Fax Number: (310) 206-8606



Institution: University of Colorado Anschutz Medical Campus
Division of Rheumatology and Center for Lungs and Breathing
1775 Aurora Court, P.O. Box 6511
Mail Stop B-115, Aurora, Colorado 80045

Coordinating Investigator: Fischer, Aryeh, MD

Participanting Investigator: Kolfenbach, Jason, MD

Clinic phone: 720-848-7700 or 720-848-4400

Clinic fax:  720-848-0750

Website: University of Colorado Rheumatology

Institution: Denver Medical Center
777 Bannock Street #4000
Denver, CO 80204-4507

Coordinating Investigator: Collier, David H., MD
Associate Professor of Medicine

Telephone Number: (303) 436-5902 (DGH)
(303) 436-5774 (Univ)
Fax Number: (303) 436-7249 (DGH)


Institution: University of Connecticut Health Center
Division of Rheumatic Diseases
263 Farmington Avenue
Farmington, CT 06030-1310

Coordinating Investigator: Rothfield, Naomi, F., MD
Professor of Medicine
Chief, Division of Rheumatic Diseases

Other Local Participants: Abeles, Micha, MD
Ingenito, Fran N.P.
Vasquez-Abad, Dolores, MD
Waterman, John, MD

Telephone Number: (860) 679-3605

Fax Number: (860) 679-1287

Email: Rothfield@nso.uchc.edu

Institution: Scleroderma Research Consultants, LLC
45 Jefferson Hill Road S
Litchfield, CT 06759

Coordinating Investigator: Seibold, James MD

Telephone Number: 214.985.3775
Fax Number: 860.540.1400

Email: jamesrseibold@gmail.com

District of Columbia:

Institution: Georgetown University
Department of Medicine/Rheumatology
PHC 3004
3800 Reservoir Road NW
Washington, DC 20007

Coordinating Investigator: Steen, Virginia D., MD

Telephone Number: (202) 444-6200
Fax Number: (202) 625-1471

Patient appointments: Ms. Davis
(202) 444-6200

Coordinator: Emily Semmel
(202) 444-6211


Institution: George Washington University
701 Ross Hall
2300 I Street NW
Washington, DC 20037

Coordinating Investigator: Shanmugam, Victoria, MD

Telephone Number: (202) 741-2488
Fax Number: (202) 994-8188

Email: vshanmugam@mfa.gwu.edu


Institution: University of Illinois at Chicago
1819 West Polk Street
Room A312, M/C 733
Chicago, IL 60612

Coordinating Investigator: Volkov, Suncica
Coordinating Investigator: Sweiss, Nadera MD.

Telephone Number: (312) 413-9310

Fax Number: (312) 413-9271

Email: suncica@uic.edu

Institution: Northwestern Medical Faculty Foundation
Galter Pavilion (at Northwestern Memorial Hospital)
675 North St. Clair, Suite 14-100
Chicago, Illinois 60611

Coordinating Investigator: Varga, John, MD

Other Local Particpants: Barr, Walter G., M.D.

Telephone Number: (312) 695-8628

Fax Number: (312) 695-0114

Coordinator/New patients: Mary Carns
(312) 503-1137

Website www.scleroderma.northwestern.edu

Email: j-varga@northwestern.edu


Institution: University of Indiana School of Medicine
1110 W. Michigan Street, LO 545
Indianapolis, IN 46202-5100

Coordinating Investigator: Grau, Rafael G., MD

Telephone Number: (317) 274-7792


Institution: Scleroderma and Sarcoidosis Patient Care and Research Center, Tulane University Lung Center
1430 Tulane Avenue
Section of Pulmonary Medicine
New Orleans, LA 70112

Coordinating Investigator: Saketkoo, Lesley, MD, MPH

Other Local Participants: Lasky, Joseph

Email: ctd.ild@gmail.comm

Institution: Louisiana State University
1501 Kings Highway
Department of Medicine – Rheumatology
PO Box 33932
Shreveport, LA 71130-3932

Coordinating Investigator: Hayat, Samina, MD

Other Local Participants: Wolf, Robert E., MD, PhD

Telephone Number: (318) 675-5930

Fax Number: (318) 675-5937

Email: Shayat@lsuhsc.edu


Institution: Johns Hopkins University
5200 Eastern Avenue
Mason Lord Building
Center Tower, Suite 4100
Baltimore, MD 21224

Coordinating Investigator: Wigley, Frederick M., MD
Associate Director, Division of Rheumatology
Director, Scleroderma Center

Other Local Participants: Hummers, Laura, MD
Ami Shah, MD
Zsuzsanna McMahan, MD

Telephone Number: (410) 550-2003

Fax Number: (410) 550-2072

Website www.hopkinsscleroderma.org

Email fwig@jhmi.edu


Institution: Massachusetts General Hospital
Yawkey 2C-2100
55 Fruit St
Boston, MA 02114

Coordinating Investigator: Castelino, Flavia

Telephone Number 617.726.7938

Fax Number: 617.643.1274

Website: http://www.massgeneral.org/rheumatology/

Email: fcastelino@partners.org

Institution: University Massachusetts Medical School
UMass Memorial Medical Center
119 Belmont St
Worcester MA 01605

Coordinating Investigator: Alkassab, Firas, MD

Telephone: (508) 334-5224

Institution: Boston University School of Medicine
Rheumatology Section, E-5
80 East Concord Street
Boston, MA 02118

Coordinating Investigator: Simms, Robert, MD

Study coordinator: Sarah McLaughlin
(617) 638-5383

New patient appointments: (617) 638-4312 (Marylou)

Telephone Number: (617) 638-4486
Fax Number: (617) 638-5226

Email: lafyatis@bu.edu


Institution: University of Michigan Scleroderma Program
Division of Rheumatology/Dept. of Internal Medicine
Suite 7C27
300 North Ingalls Street, SPC 5422
Ann Arbor, MI  48109

Coordinating Investigator: Khanna, Dinesh, MD

Other Local Participants: Young, Amber, MD
Namas, Rajaie, MD

Telephone: 734-647-8173

Fax: 734-763-5761

Website: http://www.mi-arthritis.com/clinical-services/scleroderma-specialty-clini.html

Email: khannad@med.umich.edu

Institution: Michigan State University
College of Human Medicine
1155 East Paris SE Ste 100
Grand Rapids, MI 49546

Coordinating Investigator: Martin, Richard W., MD

Other Local Participants: Head, Andrew J, MD
Eggebeen, Aaron, MD
Slavin, Eric T, MD
Birmingham, James D, MD

Telephone Number: (616) 459-8088

Fax Number: (616) 459-8312

Email: martin@mi-arthritis.com


Institution: University of Minnesota Medical School
Division of Rheumatic & Autoimmune Diseases
420 Delaware Street, SE
A624 mayo Building
Minneapolis, MN 55455

Coordinating Investigator: Molitor, Jerry, MD

Other Local Participants: Carlson, Patt, BS, CCRP
Kim, Hyun, MD
Pritzker, Mark, MD
Thenapin, Thenapin, MD
Duprez, Daniel MD

Telephone: (612) 624-6843

Fax: (612) 624-0600

Email: jmolitor@umn.edu

New Hampshire:

Institution: Dartmouth Medical School Remsen 7400
DMS Genetics
Hanover, NH 03755

Coordinating Investigator: Whitfield, Michael, PhD

Telephone Number: 603.650.1188

Email: michael.l.whitfield@dartmouth.edu

New Jersey:

Institution: Rutgers-RWJ Medical School
51 French St
Medical Education Bldg-558
New Brunswick, NJ 08903

Coordinating Investigator: Hsu, Vivien, MD
Director, Scleroderma Program

Other Local Participants: Chen, Fen, RN
Malveau, Halina, RN
McCloskey, Deborah, RN, BSN  mcclosda@rwjms.rutgers.edu

Telephone Number:  (732) 418-8484

Fax Number: (732) 418-8463

Patient Line: (732) 235- 7217

Email:  hsuvm@rwjms.rutgers.edu

New York:

Institution: Hospital for Special Surgery
535 East 70th Street
New York, NY 10021

Coordinating Investigator:  Spiera, Robert F., MD

Other Local Participants: Crow, Mary, MD
Gordon, Jessica, MD

Research Coordinators

Annel Fernandez, 212-774-2123
Alexandra Morquette 212-774-7194
Emily Bakaj (212) 774-7620

Patient appointments/Research (212) 774-2048
Patient appointments/Clinic (212) 606-1173 and (212) 860-4000

Website: www.hss.edu/scleroderma-vasculitis-center.asp

Email: spierar@hss.edu
Institution: Steffens Scleroderma Center
6 Care Lane
Saratoga Springs, NY 12866

Coordinating Investigator Shapiro, Lee, MD

Other Local Participants: Farrell, Jessica, Pharm. D
Telephone: (518) 584-4953

Website www.steffens-scleroderma.org

Email: lshapiro@joint-docs.com

Institution: Hofstra Northwell School of Medicine
Division of Rheumatology and Clinical Immunology
865 Northern Boulevard Suite 302
Great Neck, NY 11021

Coordinating Investigator: Furie, Richard, MD

Other Local Participants:

Narain, Sonali MBBS, MPH

Telephone Number: 516.708.2550

Fax Number: 516.708.2597

Email: rfurie@northwell.edu


Institution: The Center for Rheumatology
1367 Washington Avenue Suite 101
Albany, NY 12206

Coordinating Investigator: Shapiro, Lee, MD

Other Local Participants: Kremer, Joel, MD
Romanoff, Norman, MD
Greenstein, Neal, MD
Hausner-Sypek, Dorota, MD
Michaels, Victoria, MD
Cavaliere, Frank, MD

Telephone: (518) 489-4471
Fax: (518) 489-4506

Institution:  Columbia University Medical Center
630 West 168th Street, Suite 10-445
New York, NY 10032

Coordinating Investigator:   Bernstein, Elana J., MD, MSc

Telephone Number: (212) 305-6327

Fax Number:  (212) 304-6070

Email:  ejb2153@cumc.columbia.edu

North Carolina

Institution: Duke University Medical Center (DUMC)
34229 Hosp South
Durham, NC 27710

Coordinating investigator: E. William, St. Clair, MD

Other Local Participants: Sullivan, Keith, MD

Telephone: (919) 684-2193
Fax: (919) 684-8298

Website www.sclerodermatrial.org

Email: stcla003@mc.duke.edu


Institution: Cleveland Clinic
9500 Euclid Avenue/Desk A50
Cleveland, OH 44195

Coordinating Investigator: Chatterjee, Soumya, MD, MS, FRCP

Telephone Number: (216) 444-9945
Fax Number: (216) 445-7569
Email: chattes@ccf.org

Other Local Participants:  Highland, Kristin, MD;
Parambil, Joseph, MD;
Kirby, Donald, MD, FACG, AGAF

Institution: Medical College of Ohio
University of Toledo Medical Center
3120 Glendale Ave
Toledo, OH 43614-5809

Coordinating Investigator: Kahaleh, Bashar, MD
Professor, Chief of Rheumatology

Other Local Participants: Santoro, Thomas, MD

Telephone Number: (419) 383-3742

Fax Number: (419) 383-6244

Email: basher.kahaleh@utoledo.edu


Institution: Legacy Health System
Legacy Clinic Northeast
300 North Graham Street, Suite 200
Portland, OR 97227

Coordinating Investigator: Kim, Lauren, MD

Telephone Number: 503.413.4134

Fax Number: 503.413.1895

Email: lkim@legacy.org


Institution: Centocor R&D
200 Great Valley Parkway
Malvern PA 19355

Coordinating Investigator: Doyle, Mittie K MD

Phone (610) 240-5675
Fax (610) 240-4132


Institution: Thomas Jefferson University
Division of Rheumatology
233 S 10th St, Room 509 BLSB
Philadelphia PA 19107-5541

Coordinating Investigator: Jimenez, Sergio A, Jr

Other local participants: DelGado, Francesco MD, PhD

Phone (215) 503-5042

Fax (215) 923-4649

Email: Sergio.Jimenez@jefferson.edu

Institution: University of Pennsylvania
White Building, 5th Floor
3400 Spruce Street
Philadelphia, PA 19104

Tel: 215-614-4401
Fax: 215-614-4402

Cooridinating Investigator:  Merkel, Peter, M.D., Ph.D.
Chief, Division of Rheumatology
Professor of Medicine and Epidemiology

Institution: University of Pittsburgh
Dept. of Med/Div. of Rheumatology
3500 Terrace Street
Pittsburgh, PA 15261

Coordinating Investigator: Lafyatis, Robert, MD

Other Local Participants: Domsic, Robyn, MD, MPH

Telephone Number: (412) 383-8765
Fax Number: (412) 383-8753

Email: medsger@msx.dept-med.pitt.edu

Rhode Island:

Institution: Rhode Island Hospital and Brown Medical School
2 Dudley St Suite 370
Providence, RI 02905

Coordinating Investigator: Lally, Edward V., MD
Director, Division  of Rheumatology

Other Local Participants: Zimmermann, Bernard, MD

Telephone Number: (401) 444-2248
Fax Number: (401) 444-3558

Coordinator: Kathy Poland

Patient appointments: (401) 444-6120


South Carolina:

Institution: Medical University of South Carolina
Division of Rheumatology
96 Jonathan Lucas St.
Suite 912
PO Box 250623
Charleston, SC 29425

Coordinating Investigator: Silver, Richard M., MD

Other Local Participants: Smith, Edwin A, MD
Faye Hunt, DO, MSCR

Telephone Number: (843) 792-1991
Fax Number: (843) 792-7121
Coordinator Contact: (843) 792-1991
Patient Appointment Contact: (843) 792-9200

Website: www.musc.edu

Email: silverr@musc.edu


Institution:  Vanderbilt University Medical Center
1161 21st Avenue S.
MCN T-3113
Nashville, TN 37

Coordinating Investigator: Crofford, Leslie J., MD

Other Local Participants: Barnardo, April,  MD

Zaha, Oana, MD

Telephone Number: (615) 322-4746

Fax Number: (615) 322-6248

Email: leslie.j.crofford@vanderbilt.edu


Institution: Radiant Research Dallas
St. Paul University Hospital
5939 Harry Hines Blvd. Suite 400
Dallas, TX 75235

Coordinating Investigator: Cohen, Stanley, MD
Other Local Participants: Roy Fleischmann, MD

Telephone Number: (214) 879-6720

Institution: Univ. of Texas-McGovern Medical SchoolHouston
Div. Rheum and Clinical Immunogenetics
6431 Fannin, MSB 5.270/ Rm. 5264
Houston, TX 77030

Coordinating Investigator: Mayes, Maureen, MD, MPH

Other Local Participant: Assassi, Shervin, MD, PhD

Salazar, Gloria, MD

Gonzalez, Patricia, LVN

Telephone Number:713) 500-7118

Fax Number: (713) 500-0580

Clinic appointment line: (713) 486-3100

Email: maureen.d.mayes@uth.tmc.edu


Institution: University of Utah

Division of Rheumatology
50 N Medical Drive
Salt Lake City, UT 84132

Coordinating Investigator: Frech,Tracy M., MD

Email: tracy.frech@hsc.utah.edu


Institution: University of Wisconsin – Madison
1685 Highland Avenue
4136 MFCB
Madison, WI 53705-2281

Coordinating Investigator: McKown, Kevin M., MD

Other local participant: Hansen, Karen E., MD

Telephone Number: (608) 263-3457

Fax Number: (608) 263-7353

Patient number: (608) 263-7577

Website for patients www.uwhealth.org

Email: Km4@medicine.wisc.edu

Institution: Medical College of Wisconsin
FMLH – East
Department of Rheumatology
9200 West Wisconsin Avenue
Milwaukee, Wisconsin 53226

Coordinating Investigator: Csuka, Mary Ellen, MD
Associate Professor of Medicine

Other Local Participants: Cronin, Mary E., MD

Telephone Number: 414-955-7028

Fax Number: (414) 456-6205

Study coordinator: Marit Johnson, RN, 414 955 7022

Patient appointments: (414) 805-6655

Web site: http://www.mcw.edu/rheumatology.htm

Email: mecsuka@mcw.edu