Europe

Belgium Denmark England France Germany Hungary Ireland Italy The Netherlands Norway Poland Portugal Scotland Sweden Switzerland Turkey Ukraine

Belgium

Institution: Ghent University Hospital
De Pintelaan 185
Ghent 9000
Belgium

Coordinating Investigator: Smith, Vanessa, MD, PhD

Other Local Participants: Filip De Keyser, MD, PhD

Email: vanessa.smith@ugent.be

Denmark

Institution: University Hospital of Copenhagen
Department of Rheumatology

Rigshospitalet
Blegdamsvej 9, Building 4242
Copenhagen 2100 Denmark

Coordinating Investigator: Soren Jacobsen

Other Local Participants: Susanne Ullman
Gitte Strauss

Telephone Number: 45 3545 7560

Fax Number: 45 3545 7568

Email: sj@dadlnet.dk

England

Institution: University Hospital Aintree
3rd Floor Clinical Sciences Centre
Longmoor Lane
Liverpool L9 7AL
UK

Coordinating Investigator: Anderson, Marina MBChB, MSc, FRCP, PhD

Telephone Number: 44 151 529 5888

Emai:l marina.anderson@liv.ac.uk

Institution: Institute of Rheumatic & Musculoskeletal Medicine, University of Leeds
NIHR Leeds Musculoskeletal Biomedical Research Unit
Chapel Allerton Hospital
Chapel Town Road
Leeds, LS7 4SA
England

Coordinating Investigator: Francesco del Galdo, MD, PhD

Other Local Participants: Professor Maya H Buch PhD MBChB, FRCP
Professor Paul Emery BA, MA, MBChir, MRCP, MD, FRCP

Phone Number: +44 113 392 4883

Fax Number: +44 113 392 4991

Email: f.delgaldo@leeds.ac.uk

Institution: Rheumatic Diseases Centre
University of Manchester
Manchester Academic Health Science Centre
Salford Royal Hospital, Salford M6 8HD

Coordinating Investigator: Herrick, Ariane, Dr.

Telephone Number: 44-161-275-5993 (Secretary – Lisa McClair)

Fax Number: 44-161-275-5043

Website: www.manchester.ac.uk/scleroderma

Email Ariane.herrick@manchester.ac.uk

Institution: Royal Free Hospital
Centre for Rheumatology
Rowland Hill Street
London, NW3 2PF

Coordingating Investigator: Christopher Denton, MD, PhD

Other Local Participant: Black, Carol, MD

Telephone Number: 011 44 0 207 794 0432
Fax Number: 011 44 0 207 435 0143

Email: c.denton@medsch.ucl.ac.uk

Institution: Royal National Hospital for
Rheumatic Diseases
Upper Borough Walls
BATH BA1 1RL
ENGLAND

Coordinating Investigator: Professor Neil McHugh MBChB MD FRCP FRCPath

Telephone Number: 011-44-1225-465941

Fax Number: 011-44-1225- 463223

Email: neil.mchugh@rnhrd.nhs.uk

France

Institution: Centre Hospitalier Unversitaire de Grenoble
Department of Vascular Medicine
BP 217
Grenoble Cedex 09
France

Coordinating Investigator: Carpentier, Patrick, PhD

Other Local Participants: Imbert, Bernard, MD

Telephone Number: 011 0033 4 76768960
Fax Number: 011 0033 4 76765824
Institution: Hopital Claude Huriez
Department of Internal Medicine,
National Scleroderma Center

Lille, 59037 France

Coordinating Investigator: Hachulla, Eric

Other Local Participants: David Launay

Telephone Number: 0033 320444296

Fax Number: 0033 320444062

Email: ehachulla@chru-lille.fr

Institution: Hôpital Saint Louis
1, Avenue Claude Vellefaux
75010 Paris France

Coordinating Investigator: Farge, Professor Dominique

Other Local Participants: Alain Mauviel
Zora Marjanovic
Doina Ilie
Marjan Ertault

Fax Number: 33 1 42 49 94 78

Email: Dominique.farge-bancel@sls.ap-hop-paris.fr

Institution: Paris V University School of Medicine
Department of Rheumatology
Hôpital Cochin
27, Rue FG Saint Jacques
75014 Paris, France

Coordinating Investigator: Kahan, Andre, MD, PhD
Professor of Rheumatology

Other Local Participants:
Menkes, Charles Joel, MD

Allanore, Yannick, MD, PhD, Assistant

Telephone Number: 011-331-423-41879

Fax Number: 011-331-432-58723

Email: jocelyne.redon@cch.ap-hop-paris.fr

Institution: Hôpital Cochin
Department of Internal Medicine
27, rue du Faubourg Saint-Jacques
75014 PARIS France

Coordinating Investigator Luc Mouthon, MD

Other local participants Loic Guillevin, MD

Telephone Number (+33) 01 58 41 20 31
Fax (+33) 01 58 41 14 50

Email: luc.mouthon@cch.aphp.fr

Germany

Insititution: Univerisity of Erlangen
Department of Internal Medicine 3
Medezinische Klinik 3, Universitatsstr. 29
Erlangen, Germany 91054

Coordinating Investigator: Distler, Jorg

Other Principal Investigators: Schett, Georg

Phone: 011-49-9131-85-39102

Fax: 011-49-9131-85-36448

Email joerg.distler@med3.imed.uni-erlangen.de

Institution: Charite University Hospital
Schumannstr. 20/21, Rheumatology
Berlin 10117 Germany

Coordinating Investigator: Riemekasten, Gabriela

Other Local Participants: Burmester, G.R., Professor
Hanitsch, Dr. Leif
Worm, Dr. Margitta
Schumann, Dr. Frank

Telephone Number: 011 0049 30 450613017

Fax Number: 011 0049 30 450513928

Institution: University of Cologne, Germany
Department of Dermatology and Venerology
Joseph Stelzmann Str. 9
50924 (Köln)
GERMANY

Coordinating Investigator: Krieg, Thomas, MD, Professor

Other Local Participants: Hunzelmann, Nicolas, MD, Professor
Moinzadeh, Pia, MD

Telephone Number: 011-49-221-478-4500

Fax Number: 011-49-221-478-4538

Email: ait00@uni-koeln.de

Institution: Kinder- und Jugendrheumatologe
Hamburger Zentrum für Kinder- und Jugendrheumatologie Kompetenz-Zentrum für Sklerodermie im Kindes- und Jugendalter
Am Klinikum Eilbek Dehn
haide 120
22081 Hamburg
Germany

Coordinating Investigator: Foeldvari Ivan MD

Phone: 040 2092 3694

Fax: 040 2092 3693

Website www.kinderrheumatologie.de
www.sklerodermie.org

Appointments sekreteriat@kinderrheumatologie.de
+494020923697 or 3694

Email: foeldvari@uke.uni-hamburg.de

Hungary

Institution: University Medical School of Pecs
Department of Immunology and Rheumatology

H-7621, Pecs
Irgalmasok u. 1.
HUNGARY

Coordinating Investigator: Czirjak, Laszlo, MD, PhD

Other Local Participants: Kumanovics, Gabor MD, PhD
Varju, Cecilia MD
Andrea, Szalai MD
Judit, Radics MD

Telephone Number: 011-36-72-507-359

Fax Number: 011-36-72-507-339

Email: laszlo.czirjak@aok.pte.hu

Ireland

Institution: Dublin Academic Medical Centre
Bone and Joint Unit, St. Vincent’s University Hospital

Elm Park and The Conway Institute of Biomolecular & Biomedical Research
Dublin 4, Ireland

Coordinating Investigator Veale, Douglas, MD
Director of Translational Research
Adjunct Professor of Medicine and
Consultant Rheumatologist

Tel: +35312773142

Fax: +35312779410

Email douglas.veale@ucd.ie
geraldine.jordan@ucd.ie

Italy

Institution: University Sapienza of Rome, Italy
Department of Internal Medicine and Clinical Specialities

Coordinating Investigator: Valeria Riccieri MD, PhD
Assistant Professor in Rheumatology

Other Participants: Massimiliano Vasile, MD
Iliana Sciarra, MD
Katia Stefanantoni, MD

Scleroderma clinic: 00390649974680
sclerodermaclinic@tiscali.it

Patient appointment contact: 0039-0649974685; 0039-82076499

Web site: www.medicinasapienza.it

Email: valeria.riccieri@uniroma1.it

Institute: Cattedra di Reumatologia II
Azienda Ospedaliero Universitaria di Cagliari
SS 554 bivio per Sestu
Monserrato, Cagliari
Sardinia
Italy 09042

Coordinating Investigator: Alessandro Mathieu, MD
Professor of Medicine

Other Local Participants: Alessandra Vacca, MD
Pietro Garau, MD

Telephone Number: 011-39-070-5109-6385

Fax Number: 011-39-070-5109-6382

Patient appointment contact: Mrs Paola Mereu, RN 011-39-070-5109-6328

Email: Mathieu@pacs.unica.it
Ales.vacca@tiscali.it

Institution: DIMMIP-Rheumatology Unit, University of Bari Medical School
Piazza G. Cesare 11
Pad. Chini Policlinico
Bari 70124 Italy

Coordinating Investigator: Lapadula, Professor Giovanni

Other Local Participants: Florenzo Iannone

Telephone Number: 39 080 5478 866

Fax Number: 39 080 5478 802

Email: g.lapadula@reumbari.uniba.it

Institution: University of Genoa, Department of Immune-Endocrinology
U.O. Internal Medicine Immunology
Viale Benedetto XV, 6
Genova 16132
Italy

Coordinating Investigator: Professor Francesco Indiveri

Other Local Participants: Massimo Ghio, MD
Marta Rizzi, MD
Marta Sessarego, MD
Gilberto Filaci, MD

Telephone Number: 011 39 010 353 7988

Fax Number: 011 39 010 353 8994

Email: frindi@unige.it

Institution: Clinical Immunology and Allergology
Fondazione IRCCS Ospedale Policlinico
Mangiagalli e Regina Elena &
University of Milano

Via F. Sforza 35
20122 Milano, Italy

Coordinating Investigator: Scorza, Raffaella, MD

Other Local Participants: Cazzoni, Monica, MD
Vanoli, Massimo, MD
Origgi, Laura, MD
Viscuso, Tiriana, MD
Molteni, Monica, PhD
Raimondi, Massimo, MD
Masciocchi, Michela, MD

Telephone Number: 39 02 5503 3567

Fax: 39 02 5503 3568

Email: raffaella.scorza@unimi.it

Institution: Seconda Universita’ Degli Studi di Napoli
Cattedra di Reumatologia
Edificio 3 -Via S Pansini 5
80131 Napoli, Italy

 Director, Prof. Gabriele Valentini, e-mail: gabriele.valentini@unina2.it, phone: +390815464487; fax: +390815666747
Assistant, Dr. Serena Vettori,  e-mail: serena.vettori@unina2.it, phone/fax: +390815666851
Fellow Dr. Veronica Giacco, e-mail: veronica.giacco@gmail.com, phone/fax: +390815666746
Fellow, Dr. Rossella Chiedo, e-mail: chieffor@homail.it, phone/fax: +390815666746.

Telephone Number: 011-39-0-81-546 4487

Fax Number: 011-39-0-81-566 6747

Website: www.policliniconapoli.it/Reparti/UO/7101

Email gabriele.valentini@unina2.it

Institution: Instituto Di Clinica Medica IV
Dpt Medicine, Div Rheumatology AOUC
Denothe Centre, Univ of Florence
Viale Pieraccini 18
50139 Firenze,  Italy

Coordinating Investigator: Matucci-Cerinic, Marco, MD, PhD
Associate Professor of Medicine

Other Local Participants: Righi,Anna MD
Guiducci Serena MD PhD
Lepri Gemma MD
Bruni Cosimo MD
Porta Francesco MD
Bandinelli Francesca MD
Fiori Ginevra  MD
Conforti, Maria Letizia MD
Salvadorini Giuliana MD
Bartoli Francesca MD
Nacci Francesca MD
Denaro Valentina MD
Melchiorre Daniela MD

Telephone & Fax Number: 011-39-0-55-42-79271

Email: cerinic@unifi.it

Institution: Instituto di Clinica Medica
1st Clinica Medica
Polo Didattico
Via Tronto, 10
60020 Ancona Italy

Coordinating Investigator Gabrielli, Armando, MD

Other Local Participants Sambo, Paola, MD
Casagrande, Walter, MD

Telephone Number 39 71 2206104
Fax Number 39 71 2206103

Email: a.gabrielli@mta01.unian.it

Institution ISTITUTO GAETANO PINI, UNIVERSITY OF MILAN
DIVISION OF RHEUMATOLOGY, 7 FLOOR A
PIAZZA CARDINAL FERRARI 1
MILANO 20122
ITALY

Coordinating Investigator Moroni, Pier Luigi

Other local participants Francesca Ingegnoli
Silvana Zeni

Telephone Number 00390258296272
Fax 00390258318176

Email pierluigi.meroni@unimi.it

The Netherlands

Institution: VU University Medical Center
PO Box 7057
Amsterdam 1007 MB
The Netherlands

Coordinating Investigator: Voskuyl, A.E. MD, PhD

Other local participants: Dijkmans, B.A.C MD, PhD, Professor

Telephone number: 003 20 444 3432

Fax number: 0031 20 444 2138

Email: ae.voskuyl@vumc.nl

Institution: St. Maartenskliniekd
PO Box 9101
Nijmegen, The Netherlands

Coordinating Investigator: Frank HJ van den Hoogen, MD, PhD

Telephone Number 31-24-3659275
Fax Number 31-24-3659743

Email: F.vandenHoogen@Maartenskliniek.nl

Norway

Institution: Dept. of Rheumatology, National Hospital Rikshospitalet
Sognsvannsveien 0026
Oslo 0029
Norway

Coordinating investigator: Gran, Jan Tore MD

Other local participants: Midtredt, Oyvind
Gunnarsson, Ragnar

Phone number: 047 23 07 17 99

Fax number: 047 27 48 69

Email: jan.tore.gran@rikshopitalet.no

Poland

Institution: Dept Dermatology, Central Clinical Hospital MSWia
Woloska 137
Warzawa 02-507
Poland

Coordinating investigator: Rudnicka, Lidia Prof

Other local participants: Email MDoyle1@CNTUS.JNJ.COM
Sicinska, Justyna MD

Email: lrudnicka@cskmswia.pl

Institution: Warsaw School of Medicine
Department of Dermatology
02-008 Warsaw
Koszykowa 82a
Warsaw, POLAND

Coordinating Investigator: Jablonska, Stefania, MD

Other Local Participants: Blasreryic, Maria, Professor of Dermatology
Majewski, Shovomir, Professor of Dermatology
Telephone: 011-48-22-62-15180
Fax Number: 011-48-22-62-25787

Portugal

Institution: Servicio de Reumatologia, Hospitais da Universidade de Coimbra
Praceta Mota Pinto
3000 Coimbra Portugal

Coordinating Investigator: Malcata, Armando
Head of Rheumatology

Other Local Participants: Maria Joao Salvador, MD
Jose Antonio Pereira Silva, MD, PhD

Telephone Number: 35 1239400412

Fax Number: 35 1239401045

Email: amalcata@huc.min-saude.pt

Scotland

Institution: Ninewells Hospital and Medical School
University Department of Medicine
Dundee, DD1 9SY, Scotland

Coordinating Investigator: Belch, Jill F. , MD
Reader and Consultant Physician

Other Local Participants: Morley, K., MD

Telephone Number: 011-44-1382-660111

Fax Number: 011-44-1382-632333

Email: J.J.F.BELCH@dundee.ac.uk

Sweden

Institution: Lund University Hospital
Department of Rheumatology
S-221 85 Lund, Sweden

Coordinating Investigator: Hesselstrand, Roger, M.D. PhD

Other Local Participants: Scheja, Agneta, M.D., Ph.D.
Wuttge, Dirk M MD PhD

Telephone Number: 011-46-46-177178

Fax Number: 011-46-46-128468

Email roger.hesselstrand@skane.se

Switzerland

Institution: Basel University
Department of Rheumatology
Felix Platter Spital
Burgfelderstr. 101
Basel, Switzerland

Coordinating Investigator: Walker, Ulrich MD
Other Local Participants: Alan Tyndall

Telephone Number: 41.61.3264018

Email: Ulrich.walker@fps-basel.ch

Institution: University Hospital Zurich Dept. of
Rheumatology and Physical Med.
Gloriastrasse 25, CH – 8091
ZURICH – SWITZERLAND

Coordinating Investigator: Bruhlmann, Pius, M.D.

Other Local Participants: Michel, Beat A., MD – Professor
Stucki, Gerold, MD, MS

Telephone Number: 011-411-255-2997

Fax Number: 011-411-255-8978

Email: Pius.Bruehlmann@usz.ch

Turkey

Institution: University of Istanbul
Istanbul Faculty of Medicine
Department of Internal Medicine
Division of Rheumatology
34390, Capa, Istanbul, Turkey

Coordinating Investigator: Inanc, Murat MD

Telephone Number: 011-90 212-6613418

Fax Number: 011-90-212-6318699

Email: minanc@superonline.com

drinanc@istanbul.edu.tr

Ukraine

Institution: Lviv Medical University
K.Levytskogo Street 51/6
Lviv 79017 Ukraine

Coordinating Investigator: Nadashkevich, Oleg MD, PhD.

Telephone Number: 38 097 2496042

Fax Number: 38 0322 985911

Email: Prof.Nadashkevich@yahoo.com