Alzheimer’s Association Care Coordination Study


As the cost of dementia care is projected by 2050 to reach $1.1 trillion, Alzheimer’s disease (AD) and other dementias threaten to bankrupt our health care delivery system. Medicare beneficiaries with Alzheimer’s or related dementias cost Medicare three times as much as a cognitively healthy beneficiary. The quality of care has been adversely affected by the amount of burden placed on the caregiver, and in 2014, the Alzheimer’s Association estimated that 60% of caregivers report a significant amount of emotion stress and depression.

The Alzheimer’s Association MA/NH Chapter is implementing an integrated approach to care coordination for individuals with AD or other dementias and their caregivers in collaboration with three major medical centers. The Dementia Care Coordination project is an innovative model of effective physician partnership, referral, and family support intended to achieve better health outcomes, improve patient-physician-caregiver partnership and communication, reduce caregiver burden, reduce unnecessary clinic and hospital visits, and to reduce overall healthcare costs.In the Dementia Care Coordination intervention, patient-caregiver units in the program will be referred at all stages of disease, to a care coordinator that will specifically tailor resources to the needs of the caregiver and patients, and will follow-up with the referring clinician to ensure better overall continuity of care. The purpose of the current project is the examine the patient-caregiver outcomes related to the Dementia Care Coordination intervention compared to the control condition of the usual and standard care provided by the Alzheimer’s Association.

Approximately 200 patient-caregiver units will be recruited for this research from various clinics in the greater Boston area and through the Alzheimer’s Association over a period of 5 years. Care partners will be asked to complete a set of questionnaires 3 times over a 2 year period. Data from these questionnaires will be used to directly evaluate effectiveness of this new approach to care coordination. Patients do not fill out any questionnaires, but may be asked to participate in care coordination with their care partners.


To participate in this study caregivers must live in Massachusetts or New Hampshire and must be 21 years of age or older. Patients should be 50 years of age or older. Inquires about this study should be directed to Emma Gosselin, the study coordinator at 857-364-2142 or


Contact us:

VA Boston Healthcare System
Jamaica Plain Campus
150 S. Huntington Ave
Boston, MA 02130

tel (857) 364-2142